Katie Update (from Carepage)

shop deals on amazon
Shop deals on ebay
Advertise with us
Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
geebee said:
Found this picture on Katie's carepage. Thought it would help us with our prayers (as if we needed it) and it makes me smile. I hope Janet doesn't mind me sharing it.
Click to expand...

thanks Gina for posting the Carepage update. It is sure good to hear that Dr Bove found the source of the problem and was able to fix it. She will probably be fascinated by the clicking valve! I'm just relieved to hear she made it through, I was really scared for her and her mom and dad.
I guess I can go to bed now!
 
John & I are praying for Katie & her family.
Katie is a rather special girl. We met Katie & her family when we had a vr.com mini-reunion last October at a Dallas restaurant. What an active little girl!
May God work healing miracles on Katie ....
 
Thank you God for getting our little superwoman through her surgery. Thank you for the gifted medical team. I ask that You continue to be ever present with Katie as she begins her recovery. I ask that You give her the strength she needs for her precious body to heal. Continue to be with her Mommy and Daddy, friends and family.

Amen
 
Prayers for Katie and her family!

Prayers for Katie and her family!

I am hoping and praying for the best.

Kristi
 
39 July 13, 2005 at 03:40 AM CDT
Baby steps, Baby steps! This is Janet, by the way, and thanks so much for updating for me, Kim. My butt is dragging and my brain is mush, so I will keep this short...........yes, Cort, even for me.

Well, we didn't get to see Katie until 10Pm (this here time as opposed to whatever y'all's time is). Apparently after being brought up to the PICU, she decided things had not been lively enough today, and she needed to get everyone hopping again. Her heart started "jetting" - yes, that was the OFFICIAL medical term used by the cardiologist on call; in other words, her heart was racing out of control. Then her blood pressure took another dive. They tried externally pacing her, but she didn't like that and her blood pressure would take another dive..............

It took awhile to get all of that quasi under control. Her HR was still 178 when we went up to see her at ten and her blood pressure was too low. Katie is on Vasopressin (sp) and dopamine for her blood pressure and amiodorone (sp) to help her HR. She was also packed in ice to lower her temp, which helps lower the HR. She is also getting blood and fluid to help. Long story short: as of 15 minutes ago, Katie's heart is back in sinus rhythm, dropped back down to 110, and her blood pressure is coming up slowly - although she is getting lots of help to do that, so that is still a real concern. And I don't like the chest being open for numerous reasons, but mainly due to infection risk. STill on the vent - 32% O2 w/resp. support @20 breaths per minute. And did I mention that I don't like the chest being left open??

She woke up ever so briefly before they knocked her back out. She was gagging on the vent and had tears in her eyes. I think she knew I was there before they re-sedated her. As much as I hated seeing her gagging, I needed to see my Katie was still in there.

I am so blessed - to have one hell of surgeon (guess I really shouldn't use blessed and hell in the same sentence, huh?), a little lioness for a daughter, a terrific son and family, and wonderful friends like y'all. Thank you all so much for your kind words and notes and PRAYERS! The notes are comforting to read and the prayers are really appreciated. Please keep those coming as we have a long way to go. Much love. Janet
 
Sending all the prayers and positive thoughts I can muster.
Lots of love,
Gemma.
 
Just woke up to check on Katie. Still praying, still praying and still praying.

Thanks, Ross, for the most recent update.
 
My thoughts and prayers will be with all of you throughout the day and I will be checking in from work for updates. Prayer is the strongest medicine there is and there are lots of people praying right now.
 
Just woke up and got the update. We will be watching and praying all day. Trying to send you all strength across the miles!
 
Checking on my way to work, running a little late, but I had to see. Good news still. Not perfect, but good, and getting better. Still thinking of you all.

Very best wishes,
 
tobagotwo said:
Checking on my way to work, running a little late, but I had to see. Good news still. Not perfect, but good, and getting better. Still thinking of you all.

Very best wishes,
Click to expand...
Katie is in our prayers, as are Mom and Dad.... Janet, try and rest a bit if you can, pace yourself. Katie is in good hands!

Praying for continued progress!

The Carabellese Family.
 
Janet, my heart goes out to your lion-hearted family, especially the littlest lioness. Get better and better, Katie!

love,

P. J.
 
Janet-

My thoughts and prayers are with you and Katie during this difficult time. It sounds as if she has a wonderful team working on her, and she will be stable soon. But what a struggle. My heart goes out to you. It brings tears to my eyes.
 
I'm off to work but just had to check on Katie before I left. Sounds like it was a rough night for everyone. Janet, please don't forget to take care of Mom and to eat and get some rest. I know that's next to impossible when you think of your little princess in the PICU, but when she's ready to terrorize the nurses and awake, you'll need all your energy to rein her in.
I know the open chest is scary but I think the compression from the closed chest and the irritation and pressure it could cause her heart could be scarier. So hang in there!
Much love and prayer for you all is coming your way!
 
Still sending them heavenward. Didn't let out my breath until I checked Katie's care page this morning.
 
Katie's still got a long way to go, but there's no doubt that with the continued prayers of all who love her, she will triumph. It's just a matter of time.
Mary
 
You must log in or register to reply here.

Latest posts

Back
Top