I'm praying extra, extra hard for Katie, Janet, Don, and the whole family. I need my little "cousin" to come back to us! She needs to sing Christmas songs to me again (so what if Christmas is long past). Lord, I know you're listening, and I know you'll bring our precious angel through this. She's not done tormenting her mother yet...
Katie Update (from Carepage)
- Thread starter perkicar
- Start date
Help Support Valve Replacement Forums:
Marguerite53
Premium Level User
oh, all my best wishes
oh, all my best wishes
Checking in just to see how Katie is doing and this is not what I had hoped to hear. She must be such a brave and wonderous being........wishing her all the best. My thoughts are with her whole family.
Marguerite
oh, all my best wishes
Checking in just to see how Katie is doing and this is not what I had hoped to hear. She must be such a brave and wonderous being........wishing her all the best. My thoughts are with her whole family.
Marguerite
S
savysmommy
Oh my - Thanks for the update Perkicar. I was thinking of little Katie this morning. I hope everything turns around. She is in my thoughts and prayers!
P
Paula
praying also...
praying also...
Paula
praying also...
Thoughts and prayers are with you.Karlynn said:
Paula
C
countryboy
My wife and I are both praying for Katie, as well as Janet and Don. God, work your wonders and help this little angel. Thy will be done.
God Bless,
Bobby and Michaellla
God Bless,
Bobby and Michaellla
PJmomrunner
Well-known member
I'm wishing, hoping, praying and believing that, with all the love Katie's got swirling around her and all the spunk she's got in her funky little heart, she's going to be okay. Hang in there sweetie, mom, dad and everyone else who's worried sick.
G
Guest
I'm sending prayers heavenward for our dear, sweet Katie.
Janet and Don, may God flood your hearts with His peace that passes all understanding during this time. You are all loved by many here at VR.
Janet and Don, may God flood your hearts with His peace that passes all understanding during this time. You are all loved by many here at VR.
Janet and Don, my heart is with yours.
C
cocoalab
Janet you know you are on the top of my prayer list!
Janet you know you are on the top of my prayer list!
Katie is so precious and i know that God is watching her. Praying for strength as you wait. Wisdom for each on the surgery team and extra extra grace.
Big ((((hugs)))) Wishing I could be there in person for you,
wendy
Janet you know you are on the top of my prayer list!
Katie is so precious and i know that God is watching her. Praying for strength as you wait. Wisdom for each on the surgery team and extra extra grace.
Big ((((hugs)))) Wishing I could be there in person for you,
wendy
Wise
Well-known member
Adding my prayers for Katie and family as well.
G
geebee
New Update
New Update
Just posted on the carepage:
38 July 12, 2005 at 08:30 PM CDT
Hi all it's Kim again. Well I just talked to Janet again and I must say there was a much better tone in Janet's voice, which I was very happy to hear! Okay so the good news is Katie is out of surgery and in the PICU now. As I am typing this Janet and Don are on their way up to see their little girl. So Dr. Bove went back in and right away saw that the issue Katie was having had to do with the valve repair, which is where the bad news comes in. It ends up that he went ahead and did the valve replacement rather than risking Katie anymore problems later down the road. Although in retrospect, it is not that bad considering. So Katie now has a mechanical valve, which Don and Janet are at peace with for the most part. As Janet said, if things were going to go south with the valve, she would much rather know now than to find out a few days from now or like last time a month from now. The fontan looks good thus far and did not need to be taken down...HOORAY!!!! Due to Katie's heart going through as much as it did, the heart has some swelling to it and they have left her chest open. It is not really what you want, but does happen on occasion and usually in a day or two can be closed. There were some irregular rhythms that occurred so they are going to keep an eye on this over the next few days. At this time they feel it is due to the surgery she just went through and they expect to see this considering the time she was on by-pass. If there is still concern on this later then she may need to have a pacemaker. She is being monitored at this time with the pacer wires that she has in, again a normal thing after surgery.
So our good news is they found the source of the problem, fixed it, and the fontan did not need to be taken down. Prayer is an amazing thing! Now Katielion is not out of the woods yet and is still critical so please continue to keep her in your thoughts and prayers. She still has a way to go, but this little spitfire is headed in the right direction! Janet and Don want to thank everyone who is keeping their family in their thoughts and prayers. I should hear from Janet again tomorrow and will update as soon as I do. Way to go Katie, you are one tough lioness; it won?t be long before you are directing everyone on how to do things your way. Much love to you sweetie!
Aw man I just realized in all the relief that things are looking better, I forgot to ask what her O2 sats are?.darn. Well that will be on my list of questions tomorrow.
Thanks again for the out pour of prayers and love to the Steffen Family!
Kim, mama to Xander (with complex CHD?s)
New Update
Just posted on the carepage:
38 July 12, 2005 at 08:30 PM CDT
Hi all it's Kim again. Well I just talked to Janet again and I must say there was a much better tone in Janet's voice, which I was very happy to hear! Okay so the good news is Katie is out of surgery and in the PICU now. As I am typing this Janet and Don are on their way up to see their little girl. So Dr. Bove went back in and right away saw that the issue Katie was having had to do with the valve repair, which is where the bad news comes in. It ends up that he went ahead and did the valve replacement rather than risking Katie anymore problems later down the road. Although in retrospect, it is not that bad considering. So Katie now has a mechanical valve, which Don and Janet are at peace with for the most part. As Janet said, if things were going to go south with the valve, she would much rather know now than to find out a few days from now or like last time a month from now. The fontan looks good thus far and did not need to be taken down...HOORAY!!!! Due to Katie's heart going through as much as it did, the heart has some swelling to it and they have left her chest open. It is not really what you want, but does happen on occasion and usually in a day or two can be closed. There were some irregular rhythms that occurred so they are going to keep an eye on this over the next few days. At this time they feel it is due to the surgery she just went through and they expect to see this considering the time she was on by-pass. If there is still concern on this later then she may need to have a pacemaker. She is being monitored at this time with the pacer wires that she has in, again a normal thing after surgery.
So our good news is they found the source of the problem, fixed it, and the fontan did not need to be taken down. Prayer is an amazing thing! Now Katielion is not out of the woods yet and is still critical so please continue to keep her in your thoughts and prayers. She still has a way to go, but this little spitfire is headed in the right direction! Janet and Don want to thank everyone who is keeping their family in their thoughts and prayers. I should hear from Janet again tomorrow and will update as soon as I do. Way to go Katie, you are one tough lioness; it won?t be long before you are directing everyone on how to do things your way. Much love to you sweetie!
Aw man I just realized in all the relief that things are looking better, I forgot to ask what her O2 sats are?.darn. Well that will be on my list of questions tomorrow.
Thanks again for the out pour of prayers and love to the Steffen Family!
Kim, mama to Xander (with complex CHD?s)
P
Phyllis
That's good news! Thanks for the update and we will keep Katie, Janet and Don in our prayers and looking for even better news tomorrow.
Harrybaby666
Well-known member
Thank God!!!
Thank God!!!
Way to go Katie!! Bandit (my cat, or in my eyes my child) and I are wishing you nothing but love, care and peace as you recover and We will keep up our prayers!!! Harrybaby
Thank God!!!
Way to go Katie!! Bandit (my cat, or in my eyes my child) and I are wishing you nothing but love, care and peace as you recover and We will keep up our prayers!!! Harrybaby
Done!
Done!
I have added Katie, Janet and Don to my prayer chain. There are many many others praying for Katie. Katie is a fighter and I have a feeling she will do fine. God Bless you all.
Gail
Done!
I have added Katie, Janet and Don to my prayer chain. There are many many others praying for Katie. Katie is a fighter and I have a feeling she will do fine. God Bless you all.
Gail
M
Mary
I feel so much better about Katie's situation! We just need to keep Katie and her family in our prayers, and hope that tomorrow brings equally good news.
francie12
Well-known member
Prayers are happening here too. Our whole family is holding Katie and her family in our hearts.
hensylee
Well-known member
God is good - we are standing by, praying for Katie. Thanks for updating us. And, I agree, let's keep this thread at the top.
Ross
Well-known member
Sorry everyone, but after 14 hours on here, I needed to take a break. I see the new update got posted, so I'm not going to sticky this. Just please, everyone, keep her in your prayers. It isn't over until she's home with mom and dad!
C
cocoalab
Praise God!
Praise God!
just keep her in your prayers for continued recovery. I have just seen too many lost in this surgery.(The Fontan) Praying God keeps his hand on her and gives strength to her parents as well. I feel good about her making it. May God grant it be true!
Praise God!
just keep her in your prayers for continued recovery. I have just seen too many lost in this surgery.(The Fontan) Praying God keeps his hand on her and gives strength to her parents as well. I feel good about her making it. May God grant it be true!
G
geebee
Found this picture on Katie's carepage. Thought it would help us with our prayers (as if we needed it) and it makes me smile. I hope Janet doesn't mind me sharing it.
