GOOD NEWS!!!!!
69 August 05, 2005 at 01:45 AM CDT
Just a quick note: Yes, we are HOME!!! And very grateful to be here! Katie was already outside playing basketball. Kissed all of her tomato plants - and, no, they weren't dead. Had four ripe tomatoes just waiting for her to pick..........for those of you who don't know, Katie loves tomatoes. She would just as soon eat tomatoes as candy. I wouldn't let her kiss Friend, though. (And, yes, thankfully he is still alive, too.) She had to settle for the top of his container. And opened her packages with her princess chair embroidered with Katielion and her Tinkerbell sheets.........and her bunny from Wendy. Thank you so much, Wendy. She loves her bunny. Now Lola has a friend. And MIss Carol and Papa had a huge welcome home sign up and lots of purple balloons.
Katie saw her ped today. She said Katie - amazingly - looked and sounded great. Got her blood drawn for her INR check. 2.6, so we probably were a tad low yesterday AM. Won't check again until next week, though. So I will be sweating that for a while as I know we aren't truly regulated yet.
I screwed up, too! GASP! I made the assumption (and you know what they say about assumptions!)that we would get our own home INR test kit since Tommy did, but they had started all of his insurance garbage way in advance since they knew that a mechanical valve was where they were going. We have all the forms, but I am sure it will be a couple of months to wade through all the redtape, so that's a lot of pokes in the meantime, unfortunately. We called all over today trying to find a place that would do the finger stick INR check. We found a few, but they wouldn't do them on children - only adults! ARGH! Katie was such a trooper about it. This kid totally amazes me. She complains more about the yukky old aldactone than the pokes. She has never questioned why she has to endure all that she does..........I guess that time will come one day..........sigh!
Got Trip registered for school today, too! 7th grade!!!! Where has my little boy gone? HOnors Math and English and he's switching to the tenor sax this year. And, Chris, that roller coaster is awesome! (so much better than this chd roller coaster!) Thank you so much. Now Trip gets to head to Galveston tomorrow with friends. Wish I could go...............
Instead, I get to go back to work tomorrow............huge sigh! Where did the summer go?
Well, I will try and fill in the gaps later..........yes, yes, I know I never filled in the last gaps.........how much does mortar cost? But I am so tired. Guess I'm suffering from train lag. I feel more tired now than I did up there at the hospital. Guess it was the heat of the battle that kept me going........My butt has an APB put out on it as it is somewhere between Michigan and here.......... Mary, it might be somewhere in Missouri.......would you please be on the lookout?
Please keep Tommy and Jerra in your prayers. Jerra is making slow, but sure, progress and continues to amaze everyone. Tommy's parents, however, received a difficult blow. The only option they were give by the cardiac team was that of a transplant. My heart just aches for them. They have been evaluated by the transplant team, but are not going to officially list him until his symptoms worsen. Please pray that this does not occur for many years. He is just the cutest little four year old blonde boy that rarely complains and is so full of life. Please pray for his parents as well as their life of uncertainty continues.........
All of you have sustained me and kept me going these past 3 weeks and six days...........gosh! has it really been that long? and some of you for even longer as you put up with my being a basketcase those last few weeks before surgery. How can I possibly thank you? Many grateful hugs.
Oh, oh, one last thing. Katie ran across the kitchen floor tonight and said, "See, Momma, I can run again." God is good. Much love. J.
Enjoy her in all her glory.
