M
MadsDad
Kim C, A Southern Island?
Kim C, A Southern Island?
You don't live on Saint Simons do you?
Kim C, A Southern Island?
You don't live on Saint Simons do you?
Help Support Valve Replacement Forums:
M
MadsDad
23 MM Saint Judes valve...
23 MM Saint Judes valve...
That is adult size, thanks to her outflow tract being enlarged, she may be able to go with this valve into adulthood.
Madison has her own room now and is visiting with her friends.
WE MAY GO HOME TOMMOROW.
23 MM Saint Judes valve...
That is adult size, thanks to her outflow tract being enlarged, she may be able to go with this valve into adulthood.
Madison has her own room now and is visiting with her friends.
WE MAY GO HOME TOMMOROW.
G
Georgia
It's pretty amazing how fast kids heal. And they don't seem to dwell on stuff like we do - they get fixed and get over it. It's survival of the species, I guess.
Congrats to you and madsmom for making it through this; your biggest problem in about 2 weeks will be keeping that kids down a little. We should all have had such problems post-surgically.
Congrats to you and madsmom for making it through this; your biggest problem in about 2 weeks will be keeping that kids down a little. We should all have had such problems post-surgically.
M
MadsDad
Flouro Gram?
Flouro Gram?
We just had a flourogram done on Madison. This was the coolest thing I have ever seen. Basically an Xray, her chest was on TV in real time. You could clearly see the metal ties holding her chest together, and there in all its glory was her new valve. Bouncing to the rythm of her heart. The cardioligist tweaked some settings, zoomed in, and there plain as day you could see the leaflets opening and closing. Absolutely AMAZING. They gave us a still shot for Madisons scrapbook. Have any of you seen this technology? It blew my mind. It was nice of them to let us stay and watch it.
An echo revealed that her valve had seated nicely, no leaks, heart working perfectly.
The surgeon made his rounds and told us more than likely, we will go home tommorow, less than 96 hours from the surgery. Thank you sweet Jesus.
Flouro Gram?
We just had a flourogram done on Madison. This was the coolest thing I have ever seen. Basically an Xray, her chest was on TV in real time. You could clearly see the metal ties holding her chest together, and there in all its glory was her new valve. Bouncing to the rythm of her heart. The cardioligist tweaked some settings, zoomed in, and there plain as day you could see the leaflets opening and closing. Absolutely AMAZING. They gave us a still shot for Madisons scrapbook. Have any of you seen this technology? It blew my mind. It was nice of them to let us stay and watch it.
An echo revealed that her valve had seated nicely, no leaks, heart working perfectly.
The surgeon made his rounds and told us more than likely, we will go home tommorow, less than 96 hours from the surgery. Thank you sweet Jesus.
X
xtremlee
Im glad your daughter is doing great. She has more courage at her age than I have at 33. We should adopt her as our poster child.
Lee
God bless her.
Lee
God bless her.
S
SJJ
I'm so glad to hear the surgery went well and little Madison will be going home soon. You're really going to have your hands full keeping that exuberant child at a reasonable pace over the next few weeks and months. I assume she'll be on a fast track of healing given her youth-have they given you estimates of when she'll be able to do different activities? I know this must have been a very stressful time for Madison and your entire family-you've been real troopers and the reward is about to begin. Keep sending us glowing posts on Madison's progress-it does all of our hearts good.
Sue
Sue
That is wonderful news about Maddy. I've never seen a flourogram. I wonderful if it will ever replace the echo.
I had a 25mm St. Jude mitral valve implanted last August.
I had a 25mm St. Jude mitral valve implanted last August.
Nancy
Well-known member
Hi Madison and Madison's Dad-
Sorry I haven't posted before this, I have been busy with my own Grand-Rug-Rats, who were visiting, a boy 6 and a girl 3. Talk about energy!
The best thing is that I had a whole wonderful thread about Madison to read, and such wonderful news.
Congratulations all around for Madison and family. What a terrific bouncy child you have! She's a tiny hero.
My husband has been on Coumadin for 26 years. He's so used to it, it really doesn't bother him at all. He's had problems with some of his other medications, but not with Coumadin. It fluctuates and you need testing, AND you really have to have someone good monitoring the INR. That's probably the most important thing right now, for you folks since she's new to it. After a while, I bet you will be home testing. My husband doesn't, he's not the least interested, although I've tried to push for it, but he stands firm that he doesn't mind the lab draws.
I think of his Coumadin in a similar way that diabetics think of their Insulin. It's something you need and it needs to be checked because it can differ from test to test.
Children are more accepting of these kinds of things. When we get a little older, we get so set in our ways, it feels like an imposition.
My guess is that Madison will do just fine with Coumadin.
My husband has a "bleeder" in his nose, and it can bleed from time to time. With Coumadin, it can last a little longer than normal. I would ask the doctor for guidelines on what you should do at home to stop the bleed, if it should happen. You probably have things that you do now for her, but with Coumadin, the doc may have some additional ideas for you.
Glad you joined us.
Sorry I haven't posted before this, I have been busy with my own Grand-Rug-Rats, who were visiting, a boy 6 and a girl 3. Talk about energy!
The best thing is that I had a whole wonderful thread about Madison to read, and such wonderful news.
Congratulations all around for Madison and family. What a terrific bouncy child you have! She's a tiny hero.
My husband has been on Coumadin for 26 years. He's so used to it, it really doesn't bother him at all. He's had problems with some of his other medications, but not with Coumadin. It fluctuates and you need testing, AND you really have to have someone good monitoring the INR. That's probably the most important thing right now, for you folks since she's new to it. After a while, I bet you will be home testing. My husband doesn't, he's not the least interested, although I've tried to push for it, but he stands firm that he doesn't mind the lab draws.
I think of his Coumadin in a similar way that diabetics think of their Insulin. It's something you need and it needs to be checked because it can differ from test to test.
Children are more accepting of these kinds of things. When we get a little older, we get so set in our ways, it feels like an imposition.
My guess is that Madison will do just fine with Coumadin.
My husband has a "bleeder" in his nose, and it can bleed from time to time. With Coumadin, it can last a little longer than normal. I would ask the doctor for guidelines on what you should do at home to stop the bleed, if it should happen. You probably have things that you do now for her, but with Coumadin, the doc may have some additional ideas for you.
Glad you joined us.
M
MadsDad
We are going home!!!!!!!!
We are going home!!!!!!!!
4 days after coming to the Hospital, we are going home. Madison is doing great. She had a nosebleed while playing in the toy room and man was her blood watery. We were able to get it stopped with direct pressure for 15 minutes, NO PROBLEMS! That was one of our biggest fears about the coumadin. The feeding tube she had in her nostril must have irritated her nose. As soon as we saw it in her right nostril we knew she would have problems with inflamation. She has never had a nose bleed out of her left nostril, only her right.
The surgeon said he wants to keep her INR between 2 and 3.5
Does that sound about right? What is a "normal" range? They had given her 3 mg of coumadin the past two nights, they are sending us home with a 2mg dose for tonight. Back tommorow for bloodwork and coumadin adjustment. The nurse said her INR was 3.
Whoever warned us about the Boost or Ensure was right. Sure nuff, in CICU they tried to give her an ensure. Good thing we were there to stop them. My wife also had to remind the nurses that 2nd night to give my daughter her coumadin. She was supposed to get it at 8, when midnight rolled around, my wife asked if they had already given it to her....Ooops we better go get it. Madison's surgeon was not pleased to hear that. Hopefully the next update will be from the house with some good pictures attached.
We are going home!!!!!!!!
4 days after coming to the Hospital, we are going home. Madison is doing great. She had a nosebleed while playing in the toy room and man was her blood watery. We were able to get it stopped with direct pressure for 15 minutes, NO PROBLEMS! That was one of our biggest fears about the coumadin. The feeding tube she had in her nostril must have irritated her nose. As soon as we saw it in her right nostril we knew she would have problems with inflamation. She has never had a nose bleed out of her left nostril, only her right.
The surgeon said he wants to keep her INR between 2 and 3.5
Does that sound about right? What is a "normal" range? They had given her 3 mg of coumadin the past two nights, they are sending us home with a 2mg dose for tonight. Back tommorow for bloodwork and coumadin adjustment. The nurse said her INR was 3.
Whoever warned us about the Boost or Ensure was right. Sure nuff, in CICU they tried to give her an ensure. Good thing we were there to stop them. My wife also had to remind the nurses that 2nd night to give my daughter her coumadin. She was supposed to get it at 8, when midnight rolled around, my wife asked if they had already given it to her....Ooops we better go get it. Madison's surgeon was not pleased to hear that. Hopefully the next update will be from the house with some good pictures attached.
L
Leadfoot
We're so happy that Madison is doing so well. All of our family is praying for her swift recovery! I may be up your way later in the year, finally got my new engine in the car.
Your Texas cousin!
Your Texas cousin!
R
Raverlaw
Dad,
So glad to hear that little Madison is doing well! I'm looking forward to a good picture of the little sweetie!
For all of the rest of us, it kind of puts things in perspective, doesn't it? Here we are *complaining* about the cement truck that flattened us, and little Madison's up and about and wants to go home and play.
Best wishes for a good recovery to Madison and her family. Thanks for keeping us posted on her progress.
So glad to hear that little Madison is doing well! I'm looking forward to a good picture of the little sweetie!
For all of the rest of us, it kind of puts things in perspective, doesn't it? Here we are *complaining* about the cement truck that flattened us, and little Madison's up and about and wants to go home and play.
Best wishes for a good recovery to Madison and her family. Thanks for keeping us posted on her progress.
B
bethanne
Thanks for posting about your daughter, the news certainly brightened my day. I am also glad for you that she had her first nose bleed at the hospital. You will feel more confident now if/when it happens at home. God is good, even in the little things!
Can't wait to see our new poster child. Do we need to take a poll on that?
Look forward to pictures...
Can't wait to see our new poster child. Do we need to take a poll on that?
Look forward to pictures...
Maddy's Dad
Maddy's Dad
Her INR of 3 is perfect..Be sure and ask her Cardio for a script for a home testing unit..The Protime. ..Get in touch with QAS and get the ball rolling. I am sure your insurance will pay for it..Just a prick in her finger..if she stays stable with her INR..You will only need to check it every few weeks...After she stays stable for a few weeks. Easy to do..they will have a nurse instruct you on how to use it..I have had mine almost 2 years and can do it under 5 minutes..Machine warming, prick, blood drops inserted into machine..and a few minutes to wait for results. She will not feel much..slight prick Maddy does not need anymore pain in her lifetime Post a picture soon....Bonnie
Maddy's Dad
Her INR of 3 is perfect..Be sure and ask her Cardio for a script for a home testing unit..The Protime. ..Get in touch with QAS and get the ball rolling. I am sure your insurance will pay for it..Just a prick in her finger..if she stays stable with her INR..You will only need to check it every few weeks...After she stays stable for a few weeks.
Easy to do..they will have a nurse instruct you on how to use it..I have had mine almost 2 years and can do it under 5 minutes..Machine warming, prick, blood drops inserted into machine..and a few minutes to wait for results. She will not feel much..slight prick Maddy does not need anymore pain in her lifetime Post a picture soon....Bonnie
M
MadsDad
Here is your Poster Child!
Here is your Poster Child!
She is at home sitting at the kitchen table painting a big picture with her crayola paints. I tell you, the kid amazes me.
Here is your Poster Child!
She is at home sitting at the kitchen table painting a big picture with her crayola paints. I tell you, the kid amazes me.
Nancy
Well-known member
Madison's a real beauty. You can just see her wonderful spirit.
R
Raverlaw
Hey Dad,
Madison looks great! I bet she's really glad to be home. Please tell her she's my hero and give her a big hug for me. We're "St. Jude Buddies" !!
Madison looks great! I bet she's really glad to be home. Please tell her she's my hero and give her a big hug for me. We're "St. Jude Buddies" !!
Ross
Well-known member
I'm so happy to see your all home and feeling much better.
I didn't warn you about the ensure and boost to keep her from having it, but when one is trying to get regulated on Coumadin, that is not something to be drinking. I don't know why these hospital dieticians do not know this, it's labeled right on the can in plain site with the Vitamin K content which is huge! They might as well give her a package of Brussel Sprouts and let her eat those. They taste better anyway!
Please stick around and let us know how your all doing as time moves along.
I didn't warn you about the ensure and boost to keep her from having it, but when one is trying to get regulated on Coumadin, that is not something to be drinking. I don't know why these hospital dieticians do not know this, it's labeled right on the can in plain site with the Vitamin K content which is huge! They might as well give her a package of Brussel Sprouts and let her eat those. They taste better anyway!
Please stick around and let us know how your all doing as time moves along.
What a doll
What a doll
The weather should improve this week..so she can go outside soon. Son says to tell you..Just let the Lawrenceville police know..if you need anything. He is head of day shift..6 a.m. to 4 p.m...His son, my grandson on my avator..was taken to hospital by ambulance..2 weeks ago today for appendix operation..by fire dept..1/2 mile from his home. He was at work..and scared the pooky out of me and Papa at 7 a.m...They took charge. and had him there in 6 minutes. Son left Lawrencevile in police car and was at hospital in Gainesville in 30 minutes. If you need any help..e-mail me and I will give you my son's name...Hope little Maddy has no pain..and sleeps with the angels.. Bonnie
What a doll
The weather should improve this week..so she can go outside soon. Son says to tell you..Just let the Lawrenceville police know..if you need anything. He is head of day shift..6 a.m. to 4 p.m...His son, my grandson on my avator..was taken to hospital by ambulance..2 weeks ago today for appendix operation..by fire dept..1/2 mile from his home. He was at work..and scared the pooky out of me and Papa at 7 a.m...They took charge.
and had him there in 6 minutes. Son left Lawrencevile in police car and was at hospital in Gainesville in 30 minutes. If you need any help..e-mail me and I will give you my son's name...Hope little Maddy has no pain..and sleeps with the angels.. Bonnie
K
KathyH
She is a cutie, So Glad that she is back home and on the mend. You know, she is one of, if not the youngest valvers here, so now you will have to keep up updated while she is growing up. You are so right- "God is Good"
Kathy H
Kathy H
