how to make a new heart?

[Evgenii]

планируемое краткосрочное прекращение приема АКТ (варфарина) для этого вмешательства

Yes, they ask to cancel a few days in advance

 

[pellicle]

Hi

apparently pellicle said: планируемое краткосрочное прекращение приема АКТ (варфарина) для этого вмешательства

Yes, they ask to cancel a few days in advance

which confirms my suspicion that you are speaking Russian and are using a translate engine (which doesn't bother me). That you are considering buying a Coaguchek suggests you are not as likely to be from the Eastern provinces.

Since that's the case then I can't really blame corporate greed and instead will agree with your earlier assessment about being lied to. However in their defence I'd say that Russian Doctors may actually misunderstand the "signalling" in the language where just like birds in a tree all writers of papers on valves who push the bio-prosthetic angle continue with words like:

• the burden of INR testing
• the risks of stroke from mechanical valves
• the increased risk of bleeds (0.5% increase is still an increase even if it vanishes to 0 with proper INR management)
• the refusal to acknowledge the existence of ACT

Best Wishes

 

[Evgenii]

I live in Moscow and here every clinic sells what they were told to sell, mostly mechanical ones but without choosing the manufacturer

 

[pellicle]

here every clinic sells what they were told to sell, mostly mechanical ones

to me that's (bolded) encouraging to read ... IIRC Norway also has a strong preference for a mechanical in patients under 60 yo

What really matters is that you maintain INR within the therapeutic range (2 ~ 3) for the greater majority of the time.

Some interesting listening/reading
https://www.medscape.com/viewarticle/838221

MP3 here: https://bi.medscape.com/pi/editorial/studio/audio/2015/core/838221.mp3

 

[Evgenii]

to me that's (bolded) encouraging to read ... IIRC Norway also has a strong preference for a mechanical in patients under 60 yo

What really matters is that you maintain INR within the therapeutic range (2 ~ 3) for the greater majority of the time.

are there any exact indications for surgery? or is it not fixed? in my case the situation is not clear, those who put a mechanical valve say to wait a little longer
"They operate on severe aortic stenosis, but you still have moderate" (c)

 

[pellicle]

are there any exact indications for surgery? or is it not fixed?

its a bit vexed because its not like a human is as simple a system as a solution of copper sulphate where we can accurately predict the conditions for precipitation or crystalisation.

There are a number of criteria to be assessed and assessed in the light of modern thinking (formed by observing the less than ideal outcomes of old thinking). Become aware of some of the issues in this and be able to recognise properly (not QAnonly) if the medical professional you're talking to is outdated or up to modern speed.

There is much written on this site on this topic (not least by the members Astro or Chuck C). This search is a good start on the topic.

Despite your apparent protest against Google with your frowning penguin its a good tool and we will all be poorer for its loss.

 

[Chuck C]

are there any exact indications for surgery? or is it not fixed?

There are two camps on this question. One says to get surgery once your aortic stenosis becomes severe. The other says to wait for it to become severe with symptoms.
My surgeon is of the opinion to not wait for symptoms and generally get surgery once stenosis is severe. With aortic stenosis the left ventricle enlarges as it works harder and harder to get your blood through the shrinking valve opening. After surgery, the LV will remodel and reduce in size, but if it becomes too enlarged, there is an increasing chance that it will never return to normal size, which could mean diastolic and/or systolic dysfunction.

The idea with not waiting for symptoms is to get surgery before your heart enlarges to the point that it will not fully remodel back to normal. In other words, get your surgery done before irreversible damage occurs to your heart. Also, as my surgeon pointed out, your first symptom might be sudden death, so better to get the surgery sooner rather than wait, provided it is in the severe. Since I was getting a mechanical valve, it made even more sense to not wait for symptoms. I'm glad that I did get surgery when I did, as my LV wall thickness did return to normal afterwards.

"They operate on severe aortic stenosis, but you still have moderate" (c)

It is generally not yet time for surgery if your stenosis is in the moderate range. There are exceptions, for example the size of one's aneurysm could drive the need for surgery even if your aortic stenosis is still moderate. At 43mm, it would not appear that this would be the case for you.

the average pressure gradient increased to 38 and one of the hospitals concluded that a valve replacement was needed, but other hospitals continued to insist that a replacement was not yet necessary

A mean pressure gradient of 38mmHg is still in the moderate range, so I can see why the other hospitals are telling you that it is not yet time. For the one hospital which recommended surgery now, what was their reasoning?

 

[V__]

Do any of you smoke cigarettes or did you smoke before the surgery? How are things going with that? Will it be possible to smoke after they allow you to walk?

No, I didn't smoke ever. But I noticed "if you smoke, quit!" in the preparation materials before the surgery. This seemed as an unusually direct suggestion. Now I think they were not direct enough. They could've said instead "if you have any sense in you, quit smoking immediately!"

Basically, in the post-surgical state your body is weak. The lungs in particular are affected. Their effective volume goes down by something like the factor of 7 (by my estimate). Of course, it recovers, and there should be breathing exercises to do to facilitate the recovery. But it will take time (probably several weeks) before it recovers completely.

Put another way, there is very little stamina left when you wake up, and the extra stress from smoking will be too much for you.

Regarding walking, the nurses and doctors should be asking you to walk very soon, perhaps the next day after the surgery. The sooner, the better - a long inactivity is bad by itself. The first walk can be a *very* short, but it will help. The walking duration should also recover. These things depend on your fitness level and individual circumstances, but the full recovery will likely take weeks, if not longer.

So, "if you have any sense in you, quit smoking immediately".

I feel deceived by medicine

Well, echo and other modern medical tests can "see" the problems even when you don't have the symptoms yet. And the guidelines can suggest an intervention before irreparable damage is done. So I see the open heart operations as a triumph of modern medicine. It's a very well polished machine that saves lives (and quality of life).

 

[pellicle]

Now I think they were not direct enough

How about "if you don't quit find a surgeon willing to accept inferior outcomes"

 

[Evgenii]

A mean pressure gradient of 38mmHg is still in the moderate range, so I can see why the other hospitals are telling you that it is not yet time. For the one hospital which recommended surgery now, what was their reasoning?

valve plastic surgery was offered, which is not done at late stages of the disease. it was 3 months ago, the fibrous ring was 26 mm and they offered me to do the ozaki procedure, and now it is 28-30 mm on another device. it turns out that I missed the opportunity to do the ozaki procedure or do it reliably according to suitable parameters. I have seen stories that the fibrous ring can be reduced, but apparently this is not a very reliable technique. when I came for the first consultation I did not have any symptoms, now I feel like I sometimes feel my heart beating on my neck and shins, as it seems to me this appears after physical activity in the pool or if I walk 8 km or more. maybe I am going crazy after such news and this is neuralgia