Heart Valve problems

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My prayers also go out to you and your Dad...He's so lucky to have a great family. :) :) Please stay in touch with us.. Bonnie
 
Ronald

Ronald

My thoughts and prayers are with you and your family. My family left it up to me . You all ways fell damed if you do and damed if you don't. My family was there for me for both my surgeries. It was really hard going to Clveland on everyone. That why I decided to have second one here where I live. It was the right descion for me then. Good luck with whatever you decide to do. There is another book out there that is called THE HEALING by DR. OZ. He was on Ophrah and now he has his own show on TLC on week night aat 5 Pm think. Check your local paper. Good Luck again!:D

Sherrin Hutt
Mitri valve repair 5/99 Clevland Clinic Cosgrove ring
Valve repalacement 3/02 St. Jude Louisville Ky
Dr. *******-Trained under Dr.Cosgrove
 
Best wishes to Ronald and here's a prayer for him and his family. I firmly believe that everything happens for a reason, and Ronald's trip to the ER has probably saved his life by getting him the medical attention he needs and speeding up the date of his surgery.

I will be keeping you in my thoughts.
 
I'm so sorry to hear about the situation your dad and your family are in. It is so hard for everybody. Nobody can second-guess you -- you must make the best decision and try never, never to feel guilty no matter what it is, knowing you did your absolute best.
 
just wondering how things are going with ronald...

just wondering how things are going with ronald...

hi!
wanted to find out if ronald came home, how he is doing and let you know that we are thinking about all of you as a family.
please let us know when you have a chance.
hoping all is well, sylvia
 
Hello again. I'll let you all know how my dad is doing now that he's home from the hospital. He came home last Thursday and we are now getting in-home care from a local agency that sends out nurses, nurse's aides, and a physical therapist a few days each week. My dad is soooooo happy to be home. We are thankful that we have him back home.

However, it is a struggle to care for him since he's so incredibly weak and lacks the strength to do much of anything. Basically his existence is in the family room. That's where he eats and sleeps. It's not much of a life, but at least he is still alive. My mother and I bought him some necessary supplies from a medical store and now he's as comfortable as we can make it for him. I'm not sure if he'll need to go back to the hospital anytime soon again. We can already see where some swelling is starting up again in his legs. I've told him to keep his feet elevated and we are trying to cut down on the sodium he takes in. His heart just isn't pumping properly, so fluid builds up quickly and can't go down normally.

We mentioned the Cleveland Clinic to our doctors and every single one of them have heard of that place and know of the outstanding reputation it has. They said that if they felt that place could help my dad, they would have suggested it to us sooner. At this point, our cardiologist said there's no point in even thinking about going there. The consensus we are getting from everyone is that there is no point in going to any other doctors or going to any other hospitals or traveling to Cleveland. If we had only known about the valve problem long time ago, we could have had the time and opportunity to do something to help my dad sooner. Now it seems like it's out of our hands.

For now we all feel quite drained since we aren't getting much sleep. My dad just can't sleep and even the sleeping pill Ambien isn't working. We have to ask the doctor for something else. My mother and I get up during the night to care for my dad. Now that I go back to work as of tomorrow, this will wear at me, but I'm staying as strong as I can for my parents.

We thank you so much for your thoughts and prayers. They mean more to us than you'll ever know. We are praying that somehow my dad can stay alive for quite a while yet, but we just don't know what the future holds. We are taking each day as it comes. Thanks again for your prayers.

I'll post time to time again to let you know how he's doing.
 
I'm glad to see your dad is back home - hopefully the comfortable and familiar surrounds will help him with his recovery.

All the best
Anna : )
 
Update:
My dad had two doctor appointments this week and both doctors seemed pleased with how my dad is doing. Their main concern at this point is the continued swelling in his legs. They do look bad. I suppose he may end up back in the hospital to get rid of that swelling. Supposedly one of the new drugs he was put on, Tikosyn, causes swelling, so we aren't sure if this is just a reaction to the medication or not. He's still rather weak, but he sure is glad to be home.

We found out that his in-home care will be discontinued in the coming weeks. Medicare feels that he's doing too well to receive the services of nurses, aides, and therapists in the home after a certain number of weeks. This is disappointing news. We were hoping for a longer duration of help.

Just getting my dad to his appointments is real difficult. He uses a walker, but he's very unsteady and could fall over with the slightest bump or hesitation. I don't suppose he'll get stronger. But we are trying to work with him on moving around more and getting some exercise. He's come very close to falling down a few times at home. I worry that if he ever does that my mother and I wouldn't be able to lift him back up.

At least he is trying not to dwell on all of this too much and he doesn't seem too depressed. I think he has been able to maintain a good attitude most of the time.

Thanks again for all the prayers and positive encouragements. It's comforting for him to know how many people care about how he's doing.
 
It's good to see your post and to hear that there is some improvement. As long as things are going in the right direction, it doesn't matter how long it takes. I hope they can get the swelling down for him. I'm sure it will help make it easier for him to move around. His muscles are probably quite debilitated from being so ill, and that in itself can make him unsteady.

Please let us know from time to time. We all care about your dad, and you.
 
To Ronald and his family,


It sounds as though you are blessed with a lot of love and support in your family. You have been faced with so many trials. God bless you all.
 
Ronald and family. By now you have noticed this site is supported by a group of fighters. People who have been where you are and fought for their lives. Now they are sending you all the spirit and love they can. Know that if there is a chance of recovery that spirit and love will be part of it.

Tell Ronald that I am one of those old guys and to remember that we are a tough bunch. Our generation survived some hard times and for him to keep fighting. Never give up!
 
The human spirit is the strongest medicine. I will continue to keep your father and your family in my prayers.
 
hi!
thank you for letting us know how ronald is doing. we think of him often.
i'm sorry that the in-home care is being discontinued; must make it so difficult for you and your mom.
it sounds like your dad is improving a bit. that's always encouraging.
my dad had swollen ankles for some time as a result of one of his meds too.
hopefully this will improve soon.
please wish ronald our best and keep us posted on his condition.
wishing your family all the best, sylvia
 
My father passed away on February 1. We knew this day was coming, but we still held out hope that we would have a longer time with him before he would die. So in a way this did take us by surprise. He had been feeling fine under the circumstances. His doctors seemed pleased for the most part, and we were exercising him more, too. The doctor had just switched him over to a different heart medication so that he wouldn't be on Tikosyn anymore, which was causing some swelling. But he died in his sleep early Sunday morning. We will have a funeral for him this Thursday.

I don't know what else to add at the moment. My mother and I are hanging in there the best we can. This is a difficult time, but we'll be all right. Thank you for your advice and support.
 
Oh, I am so terribly sorry to hear this. My deepest sympathies to you and your family. Your dad fought an excellent fight. He gave it his every effort. And his wonderful family helped him every step of the way. He'll always be with you every time you think of him.

May God help you get through these very difficult days.
 
I'd like to exrend my sympathies as well. Ronald was fortunate to have such a loving family.
 
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