Did not have surgery on Jan 8

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Hi Harmony-

Love the name. Let me chat with you a little about my husband and what valve surgery and other chest surgeries meant to him.

Joe developed rheumatic fever as a teenager. As a result of that he had valve damage. When this happened (in the mid 1940s), he was told by his old cardiologist to live life to the fullest because he wouldn't live past 50.

There wasn't anything that could be done at that time to correct bad valves. People just died.

So Joe DID go on and lived his life to the fullest. He was a superb athlete in spite of having a very loud murmur, played basketball, football, baseball and ran track.

He held down very responsible jobs.

When he was in his mid 40s, he was playing basketball with his nephew, and passed out. His aortic valve had become stenotic and would no longer close properly, flooding his heart with blood. You see, heart valves are like check valves in plumbing. They keep the blood going in the right direction, then they close off so there is no backflow. When the valves don't close briefly, the blood rushes back into the heart and makes it pump very, very hard to get that blood out.

Because of this, the heart muscle gets enlarged, and when it gets too enlarged it no longer works well, and causes all kinds of symptoms, even death.

So valve problems are basically a plumbing problem.

But I digress.

After Joe passed out, he saw his cardiologist and found out that now there was a fix for heart valve problems and that he could live out a normal lifespan. He went ahead with his aortic heart valve replacement and after the initial recovery did marvelously well.

After many years, the rheumatic fever damage continued to attack his valves, and he had a mitral valve replacement. He then had another valve surgery to close a small leak in the sewing cuff around the mitral valve replacement. Both the aortic and first mitral valve surgeries were through the sternum.

His third surgery was done using the Heart Port method through his side. That worked wonderfully.

He did extremely well after all of his heart surgeries, even the ones that were done when he was in his 60s.

Along the way, he also had two lung surgeries, which he said were worse than heart surgery.

And he had many, many other very serious medical problems.

Joe was the most fearless person I have ever known. He didn't care what they did to him. He told me that in his mind, he didn't have a choice. He had to get the problems fixed or he would die.

And darn it, he was SO right!

He lived to a normal life span of 75 years old, with the longest list of serious medical problems I ever saw. It was 4 pages long in a very small font. It was so long that no one could take down a history, I had to present this list to them.

So, what I am saying is this surgery is an absolute miracle.

Sure you will be sore for a while, yes, it's scary. But it beats the alternative. Death will happen if the plumbing does not get repaired.

There isn't any other way at this time. Surgery is the only thing that will take care of it.

I thank God every day that Joe had his surgeries and was with me for as long as he was. I learned a lot from him.

And by the way, he did not die of valve problems. His very, very old mechanical valve and his newer streamlined mitral mechanical valve were still ticking away until he took his last breath.

Wishing you all the best in whatever you decide. God Bless.
 
I have to agree with everything that has been said already.
I had minimally invasive mitral valve repair 3 1/2 yrs ago in Baltimore. The surgeon who did mine does several hundred a year. You definitely want a surgeon who does lots of valve surgery-not bypasses. The surgeon will make it clear that he has the option to do a replacement if he thinks the repair will not work.
You will have lots of support from the staff at the hospital and you will need support at home for several weeks after your surgery.
If you delay making a decision to have the surgery your heart will become more enlarged and less efficient.
Please follow all of us who have put their faith in their surgeons and had the surgery. We will be there in spirit with you and waiting here when you are better and able to post from the "other side of the mountain". Don't let that valve continue to keep your heart from working properly.
Joanne
 
Hi Harmony...
The pain is the last thing you should be concerned about...honestly I dislocated my small toe on the weekend and it was more painful than any pain I had from OHS...
Just find a surgeon you like, make your decision and get it done...once its fixed you will wonder what all the worry was for.
We wouldnt all be here telling you that its not so bad if it really was terrible.
 
Harmony said:
I have no idea why people keep writing I am afraid to go for surgery.

Umm......

Harmony said:
Cutting the sternum really scares me.

Many things I had read and heard made me think this type of surgery could be dangerous.

I spent one year in a wheel chair with broken legs. I dont want to spend another year again in my home. I had to have assistance for everything I wanted to do. You have no idea how horrible it is to have someone help you wash or go to the bathroom. I was in rehab for 3 month.

Harmony... we can certainly understand that the car accident was a very painful and traumatic experience for you on so many levels and the thought of having to endure that sort of thing again must be very upsetting. I think that's why we are all trying to reassure you that heart surgery - as extreme as it may seem - is nowhere near as awful as what you have already been through and survived!!

Most of us are cutting back on the pain meds only a week or so after coming out of hospital and after a few weeks can start getting back to more normal physical things. As far as people having to help with every little thing, most of us never require help with showering or toileting - even in hospital!! I think out of ALL the stories I've read everywhere on the net, I've only ever heard of ONE person that needed help with this because she was quite elderly and very overweight.

Meanwhile I hope your cardio is right in saying you can afford to wait (although for how long?) and that extra time will allow you to find a surgeon you feel comfortable with. The better health you are in when you have this done, the better your recovery will be, so I do hope for your sake that this is something you don't leave too long.

((((Hugs)))) to you...


A x
 
OLD School Cardiologists are Notorious for wanting to wait for symptoms (i.e. DAMAGE) before recommending surgery.

Due to the extraordinary high Success Rates of OHS, NEW thinking is that it is better to Repair / Replace defective Valves BEFORE there is Permanent Damage to the Heart Muscles and Walls. This philosophy results in improved Surgical Outcomes.

To MY mind, SURGEONS have a better perspective on WHEN to proceed with Valve Surgery.

You should also know that patients are encouraged (forced?) to get up and start moving about shortly after surgery (within a day or two at most) and encouraged to WALK Every Day (starting out slowly, for a few minutes at a time) to build their stamina and help speed the excretion of the anethesia medication.

Staying Bedridden only Prolongs the Recovery.

'AL Capshaw'
 
abbanabba's post is exactly why were coming off the way we are. If we're misinterpreting, sorry, but that's exactly how you made it sound. ;)
 
Harmony, I'm not sure if everyone remembers, but this isn't the first surgery you have cancelled, is it? If I remember correctly, at first, you were very worried about being able to have your purse with you because you didn't have any friends to watch out for you and your husband was not supportive of this surgery at all. Then you were worried about having money for the cab to get home if you couldn't take your purse, etc.... I agree with Ross, we all think that you seem afraid of the surgery because that is exactly the impression you are giving us. WE WERE ALL SCARED!

You can find all of the reasons in the world NOT to do this. Why not make a list of reasons TO DO IT? Thank goodness I don't have PH (although my Dr's were concerned that I would have it because of the damage to my heart), but from what I understand, it is not something you want. If fixing your heart can lessen it or even make it go away altogether, that is all I would need to know. You have consulted with several surgeons now. Am I wrong in saying that they all say you need to do it now? They have no ulterior motive in telling you that. They are trying to help you.

I don't think there is anything else any of us can say to you to change your mind. You have to figure out a way to make peace with this one way or the other. If you opt not to have it now, so be it. But know that you aren't getting younger and your heart isn't going to fix itself. I really wish you the very best.

Kim
 
Harmony,

You've been through at lot in the last few years and I admire your strength and perseverance to overcome your accident in 2006. Open heart surgery is somewhat different than what you've experienced because you now have time to reflect, plan, and envision the outcome of a major surgery. That's quite a burden on a person, but it also helps us in creating the best outcome possible within the confines of what we can control. We all struggle with this planning and decision making because we all want the best outcome.

You have experienced many things in the past few years that make you a stronger woman and those experiences will help you in your decision making regarding your heart surgery. I encourage you to find that strength and I am sure that you will make a good decision about what is best for you.

Please take care, we are on your side and here for support,
John
 

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