pellicle
Professional Dingbat, Guru and Merkintologist
Hi
well as it happens I'm doing well on the outside but it is highly dependent on luck. You see I still have no idea if I have the infection (and it is being held in check by antibiotics) or if it is clear. The infection control specialist still has me on 500mg Amoxicillin 3 times a day (yes every 8 hours) which I have been taking daily since 2012.
So IF I was not someone who was tolerant of antiboitiics (and there are many) I may indeed have a very different outcome. As you perhaps know, the reason for me remaining on the antibiotics is that the risk of my prosthesis becoming infected is high. Should it become infected you can pretty much write me off. There are people here who have had to have their sternum totally removed to treat their infection. That brings with it many issues (all of which can be dealt with in the fight to stay alive).
So in a sense I'm lucky.
Also as I am on Anti Coagulation Therap (ACT) you could also take the view that I'm an excellent example of why there is no worry about being on Warfarin.
indeed, but your words made it seem trivial .. you know,you can just do it again and again ... they did not sound cautionary.
and indeed those risks compound with each and every redo. You will note also that I never quibble about people choosing tissue valves when they are over 60, its the ones who are under 40 that I provide cautionary advice to.
I believe strongly that we who speak here have an obligation to newbies and lurkers who are trying to become informed to be factual and not just be hopeful.
exactly, and being on ACT is indeed not to be dismissed as without problem. You will note that I almost always say "without other factors" ... indeed such factors can come up even later in life which makes it difficult to then "stop" being on ACT .... so its no clear path that's for sure.
But like going to the casino its all about probabilities. For someone who is younger and in good health the probabilities of multiple reops causing problems are high.
a point I often also make ... you may choose a valve with the express intention of avoiding ACT but be placed on it for other reasons ....
I'm sorry to hear of your mothers health problems. I wish that we could all go through aging without these dramas. I asked because so often the words people use when saying things can mislead people to think things that are not quite right. For instance saying "we chose TAVI" makes it sound to someone who is anxious about their OHS that you had a simple choice of A or B and you chose A for no other reason than you felt like it. From what you've said TAVI was a choice based on the significant risks associated with more regular OHS.
I'm glad to hear that, I know only too well what it means to loose your loved ones.
Best Wishes
knotguilty;n851720 said:pellicle, Just wanted to comment on your response to my post, When I say that heart surgery can be performed over and over again, I am going on people like you who have been opened up a few times and are doing great.
well as it happens I'm doing well on the outside but it is highly dependent on luck. You see I still have no idea if I have the infection (and it is being held in check by antibiotics) or if it is clear. The infection control specialist still has me on 500mg Amoxicillin 3 times a day (yes every 8 hours) which I have been taking daily since 2012.
So IF I was not someone who was tolerant of antiboitiics (and there are many) I may indeed have a very different outcome. As you perhaps know, the reason for me remaining on the antibiotics is that the risk of my prosthesis becoming infected is high. Should it become infected you can pretty much write me off. There are people here who have had to have their sternum totally removed to treat their infection. That brings with it many issues (all of which can be dealt with in the fight to stay alive).
So in a sense I'm lucky.
Also as I am on Anti Coagulation Therap (ACT) you could also take the view that I'm an excellent example of why there is no worry about being on Warfarin.
My primary told me of a girl who unfortuetely is on drugs and has had to have three valve replacements. But I do see here many people who have gone under the knife more than twice. I did not say it gets any easier, but you can survive
indeed, but your words made it seem trivial .. you know,you can just do it again and again ... they did not sound cautionary.
All operations, especially open heart have their risks.
and indeed those risks compound with each and every redo. You will note also that I never quibble about people choosing tissue valves when they are over 60, its the ones who are under 40 that I provide cautionary advice to.
I believe strongly that we who speak here have an obligation to newbies and lurkers who are trying to become informed to be factual and not just be hopeful.
As far as being on ATC, I know of people that have passed from a bump on the head, internal hemorage. On ATC, any bumps, falls, or forgetfullness can be life treatening. My grandfather died from masive hemorage so I know that being on ATV as an elderly person can be dangerous.
exactly, and being on ACT is indeed not to be dismissed as without problem. You will note that I almost always say "without other factors" ... indeed such factors can come up even later in life which makes it difficult to then "stop" being on ACT .... so its no clear path that's for sure.
But like going to the casino its all about probabilities. For someone who is younger and in good health the probabilities of multiple reops causing problems are high.
But probably not too many elderly people aren't on some kind of blood thinners.
a point I often also make ... you may choose a valve with the express intention of avoiding ACT but be placed on it for other reasons ....
They decided to do TAVR on my mother because of a number of reasons. She is on maintenance doses of chemo for lung cancer that is in remision. She had a masectomy(sp?) years ago and an implant, they cannot access her body or do anything through that arm,. Her veins are very small and she bruises very easily
I'm sorry to hear of your mothers health problems. I wish that we could all go through aging without these dramas. I asked because so often the words people use when saying things can mislead people to think things that are not quite right. For instance saying "we chose TAVI" makes it sound to someone who is anxious about their OHS that you had a simple choice of A or B and you chose A for no other reason than you felt like it. From what you've said TAVI was a choice based on the significant risks associated with more regular OHS.
She is alive and moving well.
I'm glad to hear that, I know only too well what it means to loose your loved ones.
Best Wishes