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I don't often laugh out loud when I'm sitting at the computer. So sorry you have to go through this, but man you make it a great story!!

My son has the BAV. His father and younger brother both have dilated ascending aortas, but no BAV. All testing (except Matt's subsequent MRA) has been done by echo.

Another possible culprit could be fructose malabsorption. I'd been able to digest anything, all my life, until recently--a problem just what you describe. My smart GP put me on an informal elimination diet. Dairy, originally suspected, was not the problem, but fructose is. It's apparently...

Janice--Just back from a week-long trip and reading Adam's news. So sorry you didn't get the repair and that things are so difficult. I'm rooting for you and hoping you are now over the hardest part. All the best good wishes that it is a smooth ride from here on out. Jane

The Cleveland Clinic will do a long distance consult. You have to send them the actual studies (tapes, CDs, etc.) and they review them and give you an opinion.

My amateur's view is that there are degrees of connective tissue problem. When connective tissue weakness is expressed in a certain number of symptoms (or features like concave chest, long skinny limbs, etc), and it takes alot, then you are diagnosed with a connective tissue syndrome (def of...

I can understand your interest in the Ross procedure. It's a possibility in the cards for my son too. After much research and pondering about it (I'll leave the details to those who've experienced it and know first hand), the one thing I would like to throw out is that it is essential to find...

From these responses, so far it doesn't look like BAV bodies tend to look like Marfan bodies... I'm told that there are many types of connective tissue disorders and only the more major ones have names. Guess there's alot more to be studied in the area. I know that Abe Lincoln has been...

Hi-- The previous thread about body size and MVP encouraged me to ask a question that I've been wondering about for a long time. Do people with BAV tend to have a certain body-type? My son is very "Marfany" looking with some, though probably not all, Marfan characteristics (he is being...

Lucky for us you made it to thirteen. Here's to another thirteen, and another thirteen, and another thirteen, and...

Hi Alpha--Have you received my PM? I'll send another with my email address. We'll get this right yet!

Hi--Sorry you weren't able to PM me. I do exist! Maybe you put a space between francie and 12? I hope I'll be able to answer any questions...I'll be happy to try.

He did a successful bicuspid AV repair about three weeks ago on lleonard's (username) son. They seemed to be very pleased.

...when you don't have enough eyelashes to even consider dying...

Wishing you a smooth and successful surgery, Bob. All the best!

Little time today, but I just had to jump in and let you know there is another person out there rooting for you and your son. So sorry that the repair did not last. Here's hoping that the replacement you choose will last for a very, very long time. A surgeon with alot of experience in redos...

Check out this page from the Cleveland Clinic site. From what I understand they have the best statistics you can find for success in aortic valve repairs. Good luck. http://www.clevelandclinic.org/heartcenter/pub/guide/disease/valve/aorticvalvesurgery.htm

Happy Birthday, Ross!!

http://content.onlinejacc.org/cgi/content/full/44/1/138 This link takes you to a published paper entitled "Bicuspid Valves are Heritable." Others will chime in I'm sure, but in the case of our family a screening done because of our older son (see signature below) revealed dilated aortas in...

My son was about to turn 12, my dog's name is Francie... presto...Francie12!