Youngmom, it sounds like you're thinking like I did. Several years ago when I was told I'd most likely need surgery "some day", I decided it wasn't gonna happen to me! I knew enough about heart health, I could keep my heart healthy. I kept my cholesterol low, kept the weight off, did my best to stay fit, kept my BP down, avoided fat and salt and caffeine. Only problem--valve disease doesn't have to "play by the rules"! So last year, I was a lean, reasonably fit, healthy eating, low cholesterol, low BP 50yo OHS patient, with clear arteries and a valve that was quickly failing!
I may be wrong, and if I am, I apologize, but all this "work out, lose weight, get fit" mindset sounds new for you, and kind of sounds like denial. Honey, valve disease is what it is, and following all the heart-healthy tips in the world won't make it go away. In fact, pushing yourself to shape up could speed up the deterioration.
Take a deep breath and tell yourself what you told your little guy--you've got great doctors and a God who can! So follow the doctor's orders and "Pile all your cares on HIM, because HE cares about you." (The Marcia58 Translation)
My prayers are with you,
Marcia