Wendy's son Andrew needs prayers

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Andrew is in my thoughts and prayers...

Andrew is in my thoughts and prayers...

Andrew will be in my thoughts and prayers as he goes through this bump in the road. I pray that he will be back to his normal self as soon as possible. Harrybaby666
 
ALCapshaw2 said:
I'm sorry to hear that they are considering Amiodarone.

That is the SLEDGE HAMMER of anti-arrhythmatic medications and has several SERIOUS side effects if taken over a long period of time. I have told my cardiologist that I want to exhaust ALL other options before going on amiodarone. Get and read a copy of the Information Sheet on Amiodarone and then discuss this with his doctors.

It sounds like he needs another Electrophysiology study and IF the results justify, a pacemaker and/or defibrilator to act as a safety net. This would be a GOOD thing.

Hope they are able to get some clear answers soon.

'AL Capshaw'

Dr Rich of about.com, an EP, says there are lots of treatments that can be used before amiodarone is brought in. It's way overused. Please check it out. It can cause heave bigtime side effects.
 
Thinking of you

Thinking of you

Hi Wendy,
Hope that Andrew is very much better very soon and that everything settles down.
We are sending you all our very best wishes
Ernie Wendy & Sebastian.
 
care page update

care page update

49 August 23, 2005 at 10:19 AM CDT
Andrew is in cath now. They took him first thing thios morning at 7:30. There have been no updates. I know you all are keeping him in your prayers and I think you. He had a stable night with no major problems. He is totally sedated for this.

Randy and I are doing fine. My heart is a little fluttery but that is understandable. Thank you so much for your messages and encouragement it means alot.

I am alternating my prayers for Andrew with my prayers for Hailey (HaileyFrank) She is having her Fontan today as well. I know many of you are already praying for her and her sweet mom Amy.

I am filled with gratitude for the way God has provided for Andrew to have what he has needed when he needed it. There are no circumstances. I remember a message about God never says oops. And a thought never occurs to Him. He already knows and has had a plan long before ai came on the scene. He also is always good.

Keep praying specifically that they can actually find something this time at the EP study. His heart has been consistantly stubborn about not doing anything funky during past tests. Just when we are not looking.

will let you know more as I am able.

heart hugs,
Wendy
 
Newest Update- We Are All Praying

Newest Update- We Are All Praying

August 23, 2005 at 04:44 PM CDT
Sorry it has taken so long to update. It is hard to get away and hard to get an open computer here. He was finished with his cath around 1. They were able to easily induce the arrythmias this time. They were able to pace him out of the first one but had to shock him out of the second. He will not be leaving Children's with out a defibulator implanted in him. That much we do know.

Things are some what complicated because they also found some problem with his coronary by his tricuspid valve that was just replaced. It seems to have some congenital abnormality as well. He will be having a nuclear scan test myocardial of course ;-D to further let them evaluate what they want top do. Plus Dr. Mavroudis is doing surgery at another hospital today so he is not here to look at the cath. he is very good with coranaries as he has some adult cardiology experience as well. He is also andrew's main surgeon.

So we wait for more tests and results tomorrow. i am hoping he will not require another open heart at this point but want what is best for Andrew to be done. Pray for him still.

I have not yet told him much except about the test tomorrow and I believe he has heard us talking about the defibrulator. He is still laid up from the cath and at this point we are staying in PICU room 208 for the time being. If surgery will be postponed for more than a couple days he may be allowed to wait on the floor depending on how he does tonight and maybe tomorrow.

Then he can be more mobile and be in the Brown family life center and do more stuff. The ICU is nice though. Quieter of sorts and has new tv's and DVD players since they are such new rooms.

Well I need to head back to the room. Randy went to get some stuff for us since we came straight from work to here yesterday.

I gave permission to the Lake Zurich Fire Department to use Andrew's story to help promote more AED use. I hope it can save another person's life.

heart hugs,
Wendy, Randy and boys

PS Hailey came through her surgery wonderfully! Praise God!!! Keep praying!
 
Just wanted to push this post up to new posts- sounds like Andrew could use our prayers and good wishes!
 
Andrew has thoughts and positive vibes coming from over here! Been checking in lots to check on him. Can't say I know much about defibs, but if it sorts out his heart rhythm and stops these 'episodes' it can only be a good thing surely? Hope it all gets sorted out for him quickly and he's back home with mum in good health, in no time!

Lots of Love
Emma
xxx
 
Wendy,
I hope Andrew had a good night. It's hard to imagine what he must be thinking throughout all of this.
My prayers continue to be with you all.
Mary
 
I will be keeping Andrew in my thoughts and prayers. I'm glad they will be implanting a defibrillator. I have Ventricular Tachycardia and had a defib. implanted and it gives me great peace of mind knowing it's there if needed. Linda
 
carepage update

carepage update

51 August 24, 2005 at 11:16 AM CDT
Hello all,
Things are stable here. The nuclear scan will not be done until tomorrow due to sevral different factors. This is not done here too often. Ususally they would do a MRI but he is not able to have that done due to his pacemaker wires.

Andrew is bored but feeling fine. We don't get to leave the PICU and it is not the funest place to be but like I said before it is quieter and roomier. I am bringing a couple games up and Dad will bring his gameboy from home today. He is getting a new game to go with it.

Nathan and Joel are coming today as well. We have Grant his cousin and Paul his uncle and Grandpa and also Uncle Brian coming for a short visit as well. They were already coming this way for a Cubs game. They have two extra tickets so we are letting Nate and Joel go with their Uncles.

Poor Nathan probably thinks we have forgotten his birthday. Mom and Dad here are behind the eight ball on his gift. But we haven't forgotten really!

Dr Gotteiner just came in and we are still working hard on getting this test done in house. Something else to pray about. He possibly may end up being transported to another hospital just for this nueclear imaging if it can't be worked out. We are still planning on doing it here.

Just saw Hailey's page (I think I keep spelling her name wrong sorry) She is doing pretty well but it is hard for mom and there are things to be tweeked. Keep holding her up in your prayers as well.

Thank you each one for your messages. They mean alot and your prayers mean even more. I have not made many calls as I wasn't ready and didn't think Andrew was ready to hear too much of all that is being concidered. I have shared more today. Pray for him I can only imagine having to face surgery again so soon. He has only been feeling well for a few weeks. I want what is best for him though it may not be what is easiest now.

heart hugs,
Wendy, Randy, Nathan and Joel
 
Prayers and best wishes coming your way . . . don't know how you parents do it.
 
Andrew is in all my prayers. I know this is so far different than what you were hoping. I pray that whatever decisions are made about his care are exactly the right ones for him. I pray for all of you to be able to go through these discouraging times with strength and courage and come out stronger and victorious.
 
Andrew will be in my prayers......I have an age 13 year old Grandson.............and I know how bored they get at that age..Just cannot keep them still...Maybe you can get him an early Xmas present..I bought Kameron a PPS..Portable Playstation..He loves it..and the games....I pray all tests come out good..and he will be back at school soon..Bonnie
 

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