Marty
Well-known member
Thank you, Billy
Thank you, Billy
Thank you , Billy for divulging private and very hurtful information about the cause of death of your beloved wife. There is a lot I don't know about this whole silzone business. Now I have been told by St. Jude people that over 32,000 silzone valves have been implanted and that to their knowledge there has been 7,8, or 9 (?) explants. I read that the explants were for "paravalvular leaks". Not specifically clots. They maintain that the the problem was in the silzone impregnated sewing ring. Now all mechanical valves have a finite % of clotting problems. One of the reasons St. Jude is popular at Inova Fairfax is the 20 year old bileaflet is made of pyrolytic carbon and they have reduced but not zero clotting complication. Other companies such as Medtronic, Carbomedics, et. al. also make good mechanical valves but they also have clotting complications , paravalvular leaks, etc. The science is not perfect. The most disturbing thing to me in your well phrased message was the profound lack of interest St Jude showed in checking the clotted valve. This angers me and I intend to speak to some one about it . I don't like corporate "cover ups". Billy I don't think you are on an unreasonable quest. I support you and hope that you prevail.
Thank you, Billy
Thank you , Billy for divulging private and very hurtful information about the cause of death of your beloved wife. There is a lot I don't know about this whole silzone business. Now I have been told by St. Jude people that over 32,000 silzone valves have been implanted and that to their knowledge there has been 7,8, or 9 (?) explants. I read that the explants were for "paravalvular leaks". Not specifically clots. They maintain that the the problem was in the silzone impregnated sewing ring. Now all mechanical valves have a finite % of clotting problems. One of the reasons St. Jude is popular at Inova Fairfax is the 20 year old bileaflet is made of pyrolytic carbon and they have reduced but not zero clotting complication. Other companies such as Medtronic, Carbomedics, et. al. also make good mechanical valves but they also have clotting complications , paravalvular leaks, etc. The science is not perfect. The most disturbing thing to me in your well phrased message was the profound lack of interest St Jude showed in checking the clotted valve. This angers me and I intend to speak to some one about it . I don't like corporate "cover ups". Billy I don't think you are on an unreasonable quest. I support you and hope that you prevail.
