This Is My Story

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
J

jayaresq

Hello again. I?m Jim. I'm having AVR surgery on July 18, 2005, by Dr. Alfredo Trento at Cedars-Sinai Medical Center in Los Angeles. I found out I needed AVR about six weeks ago and this website has been incredibly inspirational and a fountain of information. Thank you all again.

I have read just about everything and made a few posts and was asked to post "my story." Here goes. I am a 47-year-old trial attorney and the father of my precious five-year-old daughter, Amanda. I share custody of Amanda with her mother (and soon-to-be ex-wife), who lives only a few miles away. We separated in 2002. Bad marriage, but so far good co-parents and our daughter Amanda is amazing.

As life would have it, my divorce will, at long last, probably become final this week, only days before my OHS. Nevertheless, I am truly blessed, because since my girlfriend Nathalie has come into my life, I have never been happier. Now, as ever, she is very supportive.

Ten years ago, I left a big law firm and started my solo practice. I take pride in my work and work very hard (too hard for the ex-wife). My practice has flourished and has now grown to five attorneys, plus more staff. I am grateful, but more than anything, I love to be in trial.

I have always been relatively healthy. Sure, I could lose a few pounds. I have known I have a heart murmur for more than twenty years. However, after a routine annual physical a couple of years ago, I was referred to my present cardiologist. He diagnosed a congenitally bicuspid aortic valve and predicted that AVR was most likely 15 years out.

So, life, with its ups and downs, was moving right along and going pretty well. I was preparing to start trial in one of the most significant cases I have ever handled. Despite that, I had found the time to devote to Amanda that didn?t exist during my marriage. (This kind of tangent would require a much longer story.)

In February, 2005, jury selection began in trial. My client is a well-known fitness celebrity who became wealthy through the infomercial industry. Unfortunately, his newfound riches attracted a lot of unsavory characters. His accountant, pretending to be an agent, convinced my client to hand over more than ten million dollars of illegal fees. My client had hired a prominent 600-lawyer national law firm to get his money back. Instead, the law firm, also smelling a big wallet, charged my client almost a half-million dollars in attorney?s fees and still blew the statute of limitations! My client?s right to recover the money was lost. The big law firm, which had promised in writing to file my client?s claim, but didn?t, still asked for payment of more fees. The trial I was about to begin was for fraud and malpractice against the big law firm to recover the lost $10 million agent?s fee, plus the wasted attorney?s fees. The big firm counter-sued for $46,000 of remaining unpaid fees.

One night, during the jury selection phase, I began experiencing unusual symptoms. Granted, I was under a lot of stress. Still, something felt different than just regular jury trial stress. Not being a doctor, I associated my symptoms with medical issues relating to my head. I didn?t suspect critical stenosis of my aortic valve and a probable embolic event, conditions about which I am now aware. Nathalie and I agreed that I had to focus on the trial first, but get myself examined after the trial was over.

Symptoms aside, the trial was brutal. I have always wondered why high-stakes business disputes are referred to as ?civil? litigation. It is anything but civil. We were seeking punitive damages. Still, on the eve of opening arguments, Defendants offered just fifty cents (!) to settle the case.

Cutting to the chase, the jury saw it our way. They awarded my client $14 million in compensatory damages, including interest, and another $15 million in punitive damages against the law firm! I can?t even begin to describe that moment. Almost immediately, the defendants filed an appeal. The same week I saw my neurologist.

My neurologist referred me to my cardiologist and an echocardiogram, plus other tests, confirmed my present diagnosis and critical stenosis (0.6 cm.) My cardiologist and both surgeons I interviewed recommended surgery in 60 days. So, July 18 is about the end of that 60-day period.

When I initially found out, I was frightened and angry and even overwhelmed by the significance of the decisions I needed to make. Through a link on the On-x website, I found valvereplacement.com, which has proved to be my most practical and informative resource (Have I said thank you recently?). After weighing my options and all the obvious and personal factors, I have settled upon a Carpentier-Edwards 3000fx valve. I am not looking forward to the scar, or the tube, or being away from my practice as long as it takes. Nevertheless, I have come to think of my sudden symptoms during trial and now, AVR, as a blessing in disguise and a real chance to save and prolong my life.

I am also not looking forward to telling Amanda. As of this writing, I still haven?t. She is five and sensitive and I wonder what temporary impact, if any, my AVR will have on our relationship. I think I?ll try to make it like no big deal over a pizza on Saturday. God forbid I get an unexpectedly bad result, that?s not what she?ll remember.

For all of you who are still reading after all of this rambling, thank you for your sharing of openness and your welcome. Nathalie is helping me type this. I?ll continue to log on til next Monday, but next week, I?ll ask her to post an update if I can?t.
 
Welcome Jim! :) Glad you found this website. I am pretty new myself. I found out in March about my bicuspid aortic valve, and today I am almost 2 weeks post-op!

So many great members here, and a lof of support.

Good luck on your upcoming surgery! :)

Shannon
 
Hi there Jim!!

Hi there Jim!!

Well you have found the very best site !!
Keep us posted on how things are going, wishing you all the very best
Ernie & Wendy
 
Hey, Jim. Good to see you again. Sounds like you have been under a whole bunch of stress - not good for the heart a'tall. Stress and anger - no-no's.

Amanda will no doubt take it all in stride as 5 year olds tend to do. If she sees you in the hospital, it will impact her then but she will accept that daddy is sick but that's about it. Please don't let her in til you are back in your room and tube-free. My son was in his 30s and I vaguely recall seeing his tears through my fogged mind (in ICU) - so don't let her see you will you look good again.

Your time is close so I will thank Nathalie ahead of time for letting us know how you fare on your trek up and over the mountain - watch out for the famous Mack Truck and don't sneeze after you wake up. It's really evil. O/W, you will be fine. GODSPEED!

Somebody please enter Jim in our calendar?
 
Jim,
You're getting the same valve CoryP and I received a month ago. I'm sure we all are hoping for a long period of time before resurgery!

I have a 2 and a half year old granddaughter that we babysit a great deal due to her dad's job as a restaurant manager (he has to close most nights). I would echo Hensylee's comments about not letting Amanda visit until you look more like yourself. My five almost grown children were allowed in ICU, and it was very hard on my daughter.

You will be forced to take a less active parenting role for 4-6 weeks, so I would suggest accepting that reality and direct your energies towards recovery so you can resume being Amanda's "dad" as soon as possible.

Cedars-Sinai is a top-notch facility, so you are in good hands. :)
We'll look forward to seeing you on the other side of this.
Mary
 
Thank you for sharing your story. I'm sure Amanda will take the news in stride. You may want to let her know that when you get home from the hospital it will take you a little while to feel better. She can be The Little Nurse when she is with you during this period by getting you water or snacks, pillows, holding your hand when you walk, helping you do your "breathing game" (the incentive spirometer they'll probably send you home with). Children feel better when they can help a little (as do we all) and would prefer that to sitting and watching Daddy not feel well.

Best wishes Jim!
 
Welcome aboard. Glad to have you as a member of Da Family. Good luck on your climb/swim/initiation July 18th. We will send prayers and good thoughts your way. Please have someone post updates because we worry so. We'll have Ross SUE you if you don't :D :D . Don't make us turn the yard dawg loose :D :D .

May God Bless,

Danny
 
Thanks for sharing your story and congrats on the huge legal win - hope the appeal goes your way.

As others have said, Amanda will take it in stride. She may even think it is "exciting" or interesting. Children adapt so well. I am sure she will want to take care of you so make sure she has as much access as she wants.

I am happy you have your Nathalie to help you through this. It is important to have a S/O to be by your side. Make sure your loved ones take care of themselves through this too as it will be hard on them emotionally (sometimes worse than the physical).

Make sure you have a "space" set up for yourself when you get home. An area, near the bathroom, with a recliner, TV and your music is ideal. Stock up on lots of easy to prepare meals as cooking for anyone is time consuming and all the time will be spent recovering or helping you to recover.

Take care and stay in touch. Even tho you are on the West Coast, there are a lot of night owls here and someone will be around to help. I used to live in LA so I think I am still (and forever) on CA time. Be sure and get to the ocean as soon as you can after recovery (unless you already live there). Simply watching the ocean can speed things along.

Best wishes and Godspeed.
 
Hello Jim,
My boyfriend, also a Jim, had his AVR in December 2003, a few months before his 27th birthday. He doesn't really remember the tube and in fact didn't even remember I was there when it was still in, so try not to worry about that - most times they keep you "out of it" enough that you won't really recall it after the fact.

I think everyone has pretty much already covered the advice you'll need, but I just wanted to add that if Nathalie would like to PM me about anything, tell her to feel free. Personally I think it's a little harder being a girlfriend rather than wife, as I had this fear at the back of my mind I wouldn't be kept up to speed on what was happening as I'm not Jim's next of kin. Turned out I was wrong but it's something that may be on her mind also. So I'm here if she needs me :) .

Other than that, enjoy your last week in the "waiting room" and good luck with your mountain climb or big swim!

Gemma.
 
I'm sorry your valve had to act up on you during such a pivotal point in your career! That's quite a case to be on the right side of! Fortunately, it seems you've built your business to the point where others can fill-in for a bit, but I would guess letting them do so is going to be difficult.... Allowing yourself the time your body needs to recover fully is going to be crucial to both your life and your livlihood.

May your surgery and recovery be smooth and swift. Take care!

P. J.
 
Best wishes to you Jim and we hope that you make it over the mountain with ease. That was quite a win and I hope the appeal goes well. Dick, as a small town lawyer with a general practice, has never seen one like that, but our son as a patent atty. in DC has and I know how thrilling it is! You need to take the time to recover and then you will be right back at it again including fun with your daughter and feeling 100% better!
Best Wishes,
Phyllis
 
Best of luck!

Best of luck!

Hi there Jim, I'm Débora from Brazil! I've now been a member of this great website for over a year, and thanks to its members, I've finally come to terms with the fact that my fourth mitral valve replacement's on its way. I hope it gets stuck in the traffic for a while somewhere though!! LOL!! Anyway, I'm happy to se that you seem to have overcome the shocking news and are now quite ready for the big event. My eight year-old daughter Bruna has always known the truth about my condition and is well aware of most things involved. I've never been very good at dealing with children and I think that since I've had to deal with all this since childhood myself, I find it difficult to beat about the bush when it comes to talking to her about my health issues. I'll sure be thinking of you on the 18th. Take care.
Débora :)
 
jayaresq said:
Hello again. I?m Jim. I'm having AVR surgery on July 18, 2005, by Dr. Alfredo Trento at Cedars-Sinai Medical Center in Los Angeles. I found out I needed AVR about six weeks ago and this website has been incredibly inspirational and a fountain of information. Thank you all again.

I have read just about everything and made a few posts and was asked to post "my story." Here goes. I am a 47-year-old trial attorney and the father of my precious five-year-old daughter, Amanda. I share custody of Amanda with her mother (and soon-to-be ex-wife), who lives only a few miles away. We separated in 2002. Bad marriage, but so far good co-parents and our daughter Amanda is amazing.

As life would have it, my divorce will, at long last, probably become final this week, only days before my OHS. Nevertheless, I am truly blessed, because since my girlfriend Nathalie has come into my life, I have never been happier. Now, as ever, she is very supportive.

Ten years ago, I left a big law firm and started my solo practice. I take pride in my work and work very hard (too hard for the ex-wife). My practice has flourished and has now grown to five attorneys, plus more staff. I am grateful, but more than anything, I love to be in trial.

I have always been relatively healthy. Sure, I could lose a few pounds. I have known I have a heart murmur for more than twenty years. However, after a routine annual physical a couple of years ago, I was referred to my present cardiologist. He diagnosed a congenitally bicuspid aortic valve and predicted that AVR was most likely 15 years out.

So, life, with its ups and downs, was moving right along and going pretty well. I was preparing to start trial in one of the most significant cases I have ever handled. Despite that, I had found the time to devote to Amanda that didn?t exist during my marriage. (This kind of tangent would require a much longer story.)

In February, 2005, jury selection began in trial. My client is a well-known fitness celebrity who became wealthy through the infomercial industry. Unfortunately, his newfound riches attracted a lot of unsavory characters. His accountant, pretending to be an agent, convinced my client to hand over more than ten million dollars of illegal fees. My client had hired a prominent 600-lawyer national law firm to get his money back. Instead, the law firm, also smelling a big wallet, charged my client almost a half-million dollars in attorney?s fees and still blew the statute of limitations! My client?s right to recover the money was lost. The big law firm, which had promised in writing to file my client?s claim, but didn?t, still asked for payment of more fees. The trial I was about to begin was for fraud and malpractice against the big law firm to recover the lost $10 million agent?s fee, plus the wasted attorney?s fees. The big firm counter-sued for $46,000 of remaining unpaid fees.

One night, during the jury selection phase, I began experiencing unusual symptoms. Granted, I was under a lot of stress. Still, something felt different than just regular jury trial stress. Not being a doctor, I associated my symptoms with medical issues relating to my head. I didn?t suspect critical stenosis of my aortic valve and a probable embolic event, conditions about which I am now aware. Nathalie and I agreed that I had to focus on the trial first, but get myself examined after the trial was over.

Symptoms aside, the trial was brutal. I have always wondered why high-stakes business disputes are referred to as ?civil? litigation. It is anything but civil. We were seeking punitive damages. Still, on the eve of opening arguments, Defendants offered just fifty cents (!) to settle the case.

Cutting to the chase, the jury saw it our way. They awarded my client $14 million in compensatory damages, including interest, and another $15 million in punitive damages against the law firm! I can?t even begin to describe that moment. Almost immediately, the defendants filed an appeal. The same week I saw my neurologist.

My neurologist referred me to my cardiologist and an echocardiogram, plus other tests, confirmed my present diagnosis and critical stenosis (0.6 cm.) My cardiologist and both surgeons I interviewed recommended surgery in 60 days. So, July 18 is about the end of that 60-day period.

When I initially found out, I was frightened and angry and even overwhelmed by the significance of the decisions I needed to make. Through a link on the On-x website, I found valvereplacement.com, which has proved to be my most practical and informative resource (Have I said thank you recently?). After weighing my options and all the obvious and personal factors, I have settled upon a Carpentier-Edwards 3000fx valve. I am not looking forward to the scar, or the tube, or being away from my practice as long as it takes. Nevertheless, I have come to think of my sudden symptoms during trial and now, AVR, as a blessing in disguise and a real chance to save and prolong my life.

I am also not looking forward to telling Amanda. As of this writing, I still haven?t. She is five and sensitive and I wonder what temporary impact, if any, my AVR will have on our relationship. I think I?ll try to make it like no big deal over a pizza on Saturday. God forbid I get an unexpectedly bad result, that?s not what she?ll remember.

For all of you who are still reading after all of this rambling, thank you for your sharing of openness and your welcome. Nathalie is helping me type this. I?ll continue to log on til next Monday, but next week, I?ll ask her to post an update if I can?t.


Hi, Jim:

My name is Joe ... I am very new to this site as well. (You'll see my response to Michaelena concerns about Warfarin just in the last few days, which will give you some idea of my background.)

I was immediately intrigued by your posting ... I am an IT Director for a NYC law firm (Morrison Cohen), and have worked non-stop for lawyers since my return from Vietnam in 1968 ... Wachtell, Lipton, White & Case and the infamous Singer Hutner Levine & Seeman (predecessor to my current employer of almost 30 years now). So ... we do have something in common at any rate.

My advice to you ... as difficult as it may seem, don't worry ... you're still young (48) and strong ... I was 54 (and strong) when I experienced the first of two, in rapid succession, acute ascending aortic dissections (12/2000), ultimately resulting in, among other things, a St. Jude's valve.

You will be surprised how fast the scar recedes into just a thin line ... as for the tube, I don't remember it ... I was unconscious for 14 days after the second dissection two days after the first (two 8-hour heart surgeries). You will be fairly dopey for awhile after the surgery, and the staff will no doubt keep you dopey. From what I've gathered, the "tube" doesn't stay in one's throat any longer than it takes to indicate that you can breathe on your own.

You will, of course, be quite exhausted for a while after the surgery ... recovery times vary according to the individual ... some very quick, some longer.

The main thing to concentrate on is that you will be "fixed", and you can go on and enjoy your beloved Amanda and your life.

I hope this provides more support for you ... hang in there, guy ... go get 'em "Perry Mason"!
 
I am continually amazed and grateful for this website and all of you. Thanx for the "heartfelt" support, especially as concerns my little Amanda, and for all your encouragement. Nathalie, too, was moved by many of your concerns for her. She says thanx as well.

As far as my last trial goes, the defendants' last gasp post-trial motions were all denied today. So, the original verdict will stand in its entirety as we gear up for a long appellate process.

I'm going to home and uncork the best bottle of wine I have, say a prayer for Katie, Chuck and PJ and toast all of my new-found friends here for calming and reassuring me during a most challenging time. -- Jim
 
Jim you sound like you got a lot going for you and a precious little angel to be a nursemaid to her daddy. You will make it over the mountain just fine. Be sure and have someone post for you for your new found family will be worried about you. God speed and you will be in my prayers daily.
 
Hello

Hello

Jim...

It sounds like you have done your homework and are welll prepared for this adventure. I had AVR 15 weeks ago and it seems like I have a new life. I think you really don't realize how bad you feel til things are fixed.
I (unfortunately) had 3 years to worry and I can tell you that the wait and the worry is by far the worst part. No one here could convince me of that but now I know they were right.
I was lucky to have minimally invasive surgery and I think it helps for a speedier recovery. Did you ask about that possibility. I would only do it with someone that does alot of them.
I just returned from LA last night (visiting my daughter in Santa Barbara). You have a beautiful place to recover!
My best wishes to you....for a speedy and non eventful recovery!
Karen
 
Nice to see how positive you are about the surgery. That's a big step towards the recovery process, you can be sure! Take care!
Débora
 
Hi Jim and welcome to the site-

My husband, Joe had his first surgery at about your age. He's 74 years old now, and still has that old valve in place in the aortic position. You're going to do just fine. Remember to tell your little daughter that daddy is going to get all fixed up so he can feel so much better. You remember that too. This is a medical problem with a good fix.

My dad was a trial lawyer. Boy, did he ever love getting people on the stand and making mincemeat out of them. He loved his job and I don't believe he ever lost a case (at least I never knew about it). My grandson, who's 12 has the lawyer gift I think. He's a great debater, doesn't matter what the subject, it's the journey he enjoys.
 
Nancy said:
My grandson, who's 12 has the lawyer gift I think. He's a great debater, doesn't matter what the subject, it's the journey he enjoys.

Nancy, I have one of those kids too! It can become quite infuriating when they're teenagers. :rolleyes: But at least it leads to an interesting occupation. She's begun her quest to find a law school that has a good International Law emphasis and will be taking the LSATs this school year. I find myself being relieved that she'll have others to hone her skills on and give her Dad and I a rest.
 
Karlynn said:
Nancy, I have one of those kids too! It can become quite infuriating when they're teenagers. :rolleyes: But at least it leads to an interesting occupation. She's begun her quest to find a law school that has a good International Law emphasis and will be taking the LSATs this school year. I find myself being relieved that she'll have others to hone her skills on and give her Dad and I a rest.
Lawyers or filibusterers?
 
Back
Top