sarahsunshine
Well-known member
Well, the prayers seem to have worked.
Yesterday, I took Skyler's 2.5yo sister to the hospital to visit for the entire afternoon/evening. Skyler has been begging to see her, and it was about time that they could both deal with it energy-wise (and me too). It's really funny the effect that the 2yo has on Skyler. If she tells him to eat something, he will. If she tells him to drink, he will. If she wants to run down the hallway full speed, he will too.... Not so wise.
Skyler got put on a 3rd antibiotic (oral). I don't know the name of it but it turns his pee and tears red. Weird. He got a broviac put in (permanent IV). Then he had his chest tube and all previous IVs pulled. He's now got one hook up, and it's not permanent, and he's much more comfortable. The first thing he did was go for a long walk (OK, about 5 minutes) to the beautiful hospital "Healing Gardens". There he rested and looked out the window for about 20 minutes and decided that he had to head back because one of his teachers was planning to come visit. The teacher was late (and Skyler was stressing about it at 4:01 because he said he would be there at 4pm!), but stayed for a nice long visit. Brought him his favourite kind of Gatorade. The teacher also brought him an envelope - an envelope from a school contest for selling magazines, and Skyler won $50! We stashed this in a pocket of his jacket so he could use it to do some Christmas shopping.
The other good news is that Skyler MAY be able to get some "Pass" time to get out of the hospital during the times when he doesn't have to take meds. We'd start slowly, of course. First, we would just like to take him for a drive to see Christmas Lights. Then maybe to get some specific Christmas gifts for people (Mom, Dad).
The other day Home Depot came and brought a bunch of their little kids kits, and Skyler's Mom absconded with a whole bunch of them. Now Skyler is going to make a couple for his younger siblings for Christmas (Helicopter, boat). Yesterday Santa came to the hospital and gave Skyler a remote control car and helicopter. Now Skyler doesn't need us to get him anything for Christmas!
Lastly, the infectious diseases doctors believe that since the infection left his bloodstream so quickly that it's very likely that that the infection is out of his system. They aren't taking any chances, though.
Thanks again for all the prayers and vibes. I think it has helped a lot.
Yesterday, I took Skyler's 2.5yo sister to the hospital to visit for the entire afternoon/evening. Skyler has been begging to see her, and it was about time that they could both deal with it energy-wise (and me too). It's really funny the effect that the 2yo has on Skyler. If she tells him to eat something, he will. If she tells him to drink, he will. If she wants to run down the hallway full speed, he will too.... Not so wise.
Skyler got put on a 3rd antibiotic (oral). I don't know the name of it but it turns his pee and tears red. Weird. He got a broviac put in (permanent IV). Then he had his chest tube and all previous IVs pulled. He's now got one hook up, and it's not permanent, and he's much more comfortable. The first thing he did was go for a long walk (OK, about 5 minutes) to the beautiful hospital "Healing Gardens". There he rested and looked out the window for about 20 minutes and decided that he had to head back because one of his teachers was planning to come visit. The teacher was late (and Skyler was stressing about it at 4:01 because he said he would be there at 4pm!), but stayed for a nice long visit. Brought him his favourite kind of Gatorade. The teacher also brought him an envelope - an envelope from a school contest for selling magazines, and Skyler won $50! We stashed this in a pocket of his jacket so he could use it to do some Christmas shopping.
The other good news is that Skyler MAY be able to get some "Pass" time to get out of the hospital during the times when he doesn't have to take meds. We'd start slowly, of course. First, we would just like to take him for a drive to see Christmas Lights. Then maybe to get some specific Christmas gifts for people (Mom, Dad).
The other day Home Depot came and brought a bunch of their little kids kits, and Skyler's Mom absconded with a whole bunch of them. Now Skyler is going to make a couple for his younger siblings for Christmas (Helicopter, boat). Yesterday Santa came to the hospital and gave Skyler a remote control car and helicopter. Now Skyler doesn't need us to get him anything for Christmas!
Lastly, the infectious diseases doctors believe that since the infection left his bloodstream so quickly that it's very likely that that the infection is out of his system. They aren't taking any chances, though.
Thanks again for all the prayers and vibes. I think it has helped a lot.
