L
Lisa45
I haven't written for a while but really need some opinions. So I thank you in advance for your thoughts.
Thank you so much for your thoughts on the subject. This is so out of the blue. I am sure most of you remember that I am on the national database for 9 months now awaiting to climb the ladder for a double lung transplant. Still don't need oxygen and seem to be holding my own.
I am not getting better and have gone a little in 6 min. walk test, stayed lateral in others and down a tad in some areas.
So this new development is out of the blue. I mean I new about the Aortic Valve reg. but did not know about the the blocked artery. My last right and left heart cath. Oct. 2002 showed 10-20% stenos is of the coronary artery but now as of 3 days ago my last right and left heart cath shows a little over 80% blockage of that artery. If this was in a different place and I wasn't so small they would automatically do a stint or angioplasty. My Cardiologist called in the the Heart/Lung transplant Surgeon and they both agreed that it is much to dangerous to do this on me so the only way to go would be bypass surgery. Obviously they would go ahead since I have mod. Aortic reg. To do that surgery at the same time.
Because they feel this is a complicated high risk case because of my valve reg. And my Pulmonary Fibrosis the surgeon wanted to talk to my lung transplant team, Cardiologist, my main primary care physician and everyone else under the sun.
So we now have an appt. to meet with the surgeon Tues. morning at 10:30 CST. To hear what the options are. This impending surgery which is scary.
I am scared that they may have me between a rock and and hard place. If I were to wait I get older and weaker and take the chance that later they might not be able to do the heart surgery because of my lungs. The other issue is with Valve being only moderate the lung transplant people are okay with that as long as I have my test every 6 months but now with coronary artery diseases it would very likely make me ineligible for the transplant at all, meaning they would say fix the heart and she can stay on the list, don't and she is off. So I may not have a choice.
From those of you that know please tell me what your opinion is of what they will decide based on the 2 years you have known me and this new information. I know that none of you know for sure but waiting is driving me nuts. They have me on Nitro pills and a Nitro patch for now till Tuesday.
If they do have to do the bypass which the surgeon (who is both and heart and lung transplant doctor) said if we go into do the bypass having moderate valve damage and just doing a Phen Phen woman a little older than me he would do both at once, no use cutting me twice when we can kill two birds with one stone.
We were supposed to go to Prague and Vienna and Austria (my husbands cousin just got promoted through 3M) leaving March 5th returning March 19th. The surgeon said that is out of the question he is not at all comfortable waiting that long and if something happens in another country it is bad, not like going to Florida. So it sounds like if they do it, they are going to do it right away.
Ok that is all the pity me for one night. Thank you all and if you learn anything else please please email me. I appreciate your friendship. I just want to hear thoughts please.
Again thank you very much
Lisa
Thank you so much for your thoughts on the subject. This is so out of the blue. I am sure most of you remember that I am on the national database for 9 months now awaiting to climb the ladder for a double lung transplant. Still don't need oxygen and seem to be holding my own.
I am not getting better and have gone a little in 6 min. walk test, stayed lateral in others and down a tad in some areas.
So this new development is out of the blue. I mean I new about the Aortic Valve reg. but did not know about the the blocked artery. My last right and left heart cath. Oct. 2002 showed 10-20% stenos is of the coronary artery but now as of 3 days ago my last right and left heart cath shows a little over 80% blockage of that artery. If this was in a different place and I wasn't so small they would automatically do a stint or angioplasty. My Cardiologist called in the the Heart/Lung transplant Surgeon and they both agreed that it is much to dangerous to do this on me so the only way to go would be bypass surgery. Obviously they would go ahead since I have mod. Aortic reg. To do that surgery at the same time.
Because they feel this is a complicated high risk case because of my valve reg. And my Pulmonary Fibrosis the surgeon wanted to talk to my lung transplant team, Cardiologist, my main primary care physician and everyone else under the sun.
So we now have an appt. to meet with the surgeon Tues. morning at 10:30 CST. To hear what the options are. This impending surgery which is scary.
I am scared that they may have me between a rock and and hard place. If I were to wait I get older and weaker and take the chance that later they might not be able to do the heart surgery because of my lungs. The other issue is with Valve being only moderate the lung transplant people are okay with that as long as I have my test every 6 months but now with coronary artery diseases it would very likely make me ineligible for the transplant at all, meaning they would say fix the heart and she can stay on the list, don't and she is off. So I may not have a choice.
From those of you that know please tell me what your opinion is of what they will decide based on the 2 years you have known me and this new information. I know that none of you know for sure but waiting is driving me nuts. They have me on Nitro pills and a Nitro patch for now till Tuesday.
If they do have to do the bypass which the surgeon (who is both and heart and lung transplant doctor) said if we go into do the bypass having moderate valve damage and just doing a Phen Phen woman a little older than me he would do both at once, no use cutting me twice when we can kill two birds with one stone.
We were supposed to go to Prague and Vienna and Austria (my husbands cousin just got promoted through 3M) leaving March 5th returning March 19th. The surgeon said that is out of the question he is not at all comfortable waiting that long and if something happens in another country it is bad, not like going to Florida. So it sounds like if they do it, they are going to do it right away.
Ok that is all the pity me for one night. Thank you all and if you learn anything else please please email me. I appreciate your friendship. I just want to hear thoughts please.
Again thank you very much
Lisa
