Goodevening all and thanks for the continuing warm welcome...
I have definately found my new web-home !
What about me...well I am 41 , a mum of 3 boys 10,13,14...My dad died of suspected BAVD in 1972 and his father also "went" early....
As for symptoms I am only just beginnng to figure out what this is causing for the past few years I had thought it was skeletal/muscular as did all the docs...
Mum said I had this murmur when I was born but they didnt know what it was and it wasnt hurting/causing any problems...I then ignored it until about 5 years ago when my doc decided to see what this click was she could hear,,,i had moved and had a new doctor...
well lo and behold as clear as can be on the echo screen was a bicuspid valve...the cardio then said i should quit the smokes and live a healthy life with reiviews every five years...
so 4 years later I havent quit the smokes ( I know BAD GIRL !)...and am now having anxiety attacks because I have just found out the gravity of this condition,.,,,
i thought it was just another boring diagnoses that didnt mean much,,,when in actual fact i now find its rather important...the fact i have ignored it forever scares me a little...and all my pains are now scaring me...
I had been seeing a neurosurgeon for hand and arm problems and bad lower back...but now i worry it may be heart-related...so there is the beginning of me...
i am rather worried but looking forward to learning and conquering this
I havent done all the gentic stuff yet,,that is soon...
i am very Marfan-like and this scares me as well ,,,my aorta only measures 3.7 at the moment and I am waiting on the results from fridays angio. to see if there's anything else there!...my dad was soo young when he died I am scared to wait till the 5.0 my cardio says is normal...everytime i get those angina pains i freak.
Okies...time for more reading and learning.....
ask away I know the best way for me to learn is questions , so anything I have forgotten...gimme a nudge and I shall kindly fill in the gaps...