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WDelesline

Hi Everyone!
I am a 50 year old female scheduled to have my mitral valve replaced with a ONYX valve, along with a cardiac ablation on 2/28/05 at Sentara/Norfolk General Hospital, Norfolk, Virgina. My surgeon is Hormoz Azar. I am past worrying about if I will survive,becuase I am confident I will, however, now I am anxious about the breathing tube! Any word of encouragement will be much appreicated!

Wendy :)
 
Hi Wendy and welcome

I probably have the most experience with the tube of anyone here. If you should find yourself awake with it still in, do not panic and try to breath with the flow of the ventilator. If you fight against it, it makes things so much worse. Chances are, you won't have it in when you wake up and even if you do, they are going to keep you well sedated, so your not going to remember much, if any, of it.
 
Ross said:
Hi Wendy and welcome

I probably have the most experience with the tube of anyone here. If you should find yourself awake with it still in, do not panic and try to breath with the flow of the ventilator. If you fight against it, it makes things so much worse. Chances are, you won't have it in when you wake up and even if you do, they are going to keep you well sedated, so your not going to remember much, if any, of it.

Thanks! It helps to know that from someone who has experienced it!
 
What I did before my surgery was to picture myself waking up with the tube still there. I rehearsed being calm, allowing the machine to control my breathing, not being afraid. When I came to after surgery, while I was still foggy, I did have a moment of trying to breath against the machine, but then all the mental practice from before kicked in and I relaxed and was fine. All it takes for the nurse to take the thing out is for you to fight it once, and they are there. You will be fine.
 
Welcome

Welcome

Hi Wendy
Welcome to the forum. I did exactly what Tom did, I prepared myself mentally prior to the surgery with the expectation of the tube still being in when I awoke. I am glad that I followed the advice of everyone here at the board because breathing with the machine works. Talk yourself through it in your head, remember remain calm, breath in with the machine and out with the machine, in sync. I think we all have panicked about the tube prior to surgery. Like Ross said, you will be heavily sedated so even if you notice that it is there you won't realize the length of time it was there. After I awoke from surgery my tube was in for about 4 hours post-op, to me it felt like 10 minutes because I was in and out of conciousness. Even though you may hate the thought of the tube, remember it is there to help you breath. When the doc believes you can breath on your own, they will remove it ASAP. Best of luck to you. I will keep you in my prayers.
Dawn
 
Hi Wendy

Hi Wendy

I was one of the lucky ones..awoke in a private room..no tubes, ect...Never remember anything from my good-feel shot..telling my family not to worry, ect...until I awoke in a private room..Nothing I remember of CCU.. :) Family told me, I looked like I was in a deep sleep..for the time I was in there. CCU...(24 hours).....I did great..Let someone post for you so we will know how you do..I'm sure you will be fine. :) Bonnie
 
Welcome Wendy!
I woke with the tube in. The scary part for me was being paralyzed. They forgot to mention that they would give me a drug to paralyze me so that I wouldn't have any involuntary movement during the surgery. I thought something had gone horribly wrong.

Breathing with the tube is a good thing. Suctioning the tube is not a fun thing, if you experience that, but it is very quick.

I did LOVE the morphine I had while in CICU, but as soon as I was moved - out came Tylenol, not even the #3 w/ codiene.
 
Thanks for the advise

Thanks for the advise

Thank you all so much for advise and kind words. It really helps to talk to people who have "been there"

Wendy
 
The Tube seems to be the most feared part of the operation. Even more than the carving of the heart.

One way to view The Tube is this:

If you awaken with it still in, as many do, it will already have kept you alive for several hours by keeping you fully oxygenated.

It will not stop oxygenating you just because you have awakened. You are in no danger of suffocating. There is no excuse for panicking about not getting enough air. The concern that the staff will have is not whether The Tube will provide you with enough oxygen, but whether you will be able to provide yourself with enough oxygen when they let you try to breathe on your own without it. They've all had lots of experience with people on The Tube, and they know that it works reliably.

You may not be able to hear the machine and time your breathing to it. You will find that if you are not in synch with it, it will be very difficult or impossible to breathe for yourself against it.

But that's all right. The plain fact is that, while it's in you don't need to breathe at all. Yup. Not required. Laziest thing you've ever done in your life. Can't even get that kind of service on a cruise ship.

If you can bend your mind around it, it's kind of neat.

I am claustophobic and have a Dentist's Nightmare gag reflex. The tube is past your gag reflex, and once you realize that your oxygen is being supplied by it, and your oxygen saturation is being measured by other machines, you can relax with it until they take it out. After all, if you weren't already getting enough oxygen, you wouldn't have awakened, would you?

Have a loved one bring a pad and pen, so you can communicate, which is more than half the angst that people go through with it. And relax. Having a tube means you're out of surgery...

If you look up "breathing tube" in search, you will find a number of threads that discuss it. It's not that bad.

Best wishes,
 
Welcome Wendy,

Everyone has given good advise about THE TUBE. It is hard to believe but it truly is your temporary friend even though summing up any affection for it is very difficult. I did ask my surgeon to please keep me sedated as I did not want to remember the tube unless I absolutely had to. He complied and I have mostly vague recollections about the whole experience. I guess I was quite wild and tried to pull my tubes out and such but I don't remember any of that. I kind of wish I could remember that since it is a little out of character for me. One of my first post-op memories is of my ICU nurse, sounding quite irritated, telling me that if I wanted the breathing tube out I had to quit fighting them. Anyway, it is all in the past now and just makes for story telling.

Good luck with your surgery, Wendy, and I will keep you in my thoughts and prayers.
 
Wendy, I too had a fear about the breathing tube especially after trying twice to "rip" the tube out of my mouth on prior unrelated surgey. When it came time last year to have my AVR I told everyone in the hospital that I would go for the tube when I woke up. Boy was I wrong, I was so heavily sedated I never even noticed until they went to take it out.
My suggestion is to let as many people in the hospital know about your fear. By the way I have an ON-X value in the aortic position for almost a year now and have had absolutely no problems with it.
Good luck with your surgey.

Tom.
 
tom h said:
Wendy, I too had a fear about the breathing tube especially after trying twice to "rip" the tube out of my mouth on prior unrelated surgey. When it came time last year to have my AVR I told everyone in the hospital that I would go for the tube when I woke up. Boy was I wrong, I was so heavily sedated I never even noticed until they went to take it out.
My suggestion is to let as many people in the hospital know about your fear. By the way I have an ON-X value in the aortic position for almost a year now and have had absolutely no problems with it.
Good luck with your surgey.

Tom.

Thanks Tom- yikes!! guess I spelled the valve wrong. What do I know? I ask the surgeon what he was going to use because I was concerned about the noise and when he said "ON-X, I had never heard of it until I checked this site and everyone was talking about it. It seems to be a good one! I have decied to worry about the noise another day!

Wendy
 
It's not as bad!

It's not as bad!

Dear Wendy, I'm a nearly 40 year old Brazilian who has been there three times already and will be facing yet another mitral valve replacement in a while. I only remember having woken up with the tube the last time I had the operation and believe me, it's not that bad! I just remember this quite good looking doctor asking me if I was ok and as I tried to smile, I realized I still had the tube in. I then touched it and he told me it would be removed in a few minutes. I only tried to tell the staff that I wanted some water and a nurse squeezed some around my mouth. Honestly, I was so happy to have made it that at that moments I couldn't care less what they did to me. By the way, your surgery will be on the same day as my daughter's birthday (Bruna's turning 8)and I'm sure I'll have one more reason to celebrate. Your successful operation, you'll be just fine!!
Débora from Brazil :)
 

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