My broom has run out of gas!

[bvdr]

Nancy,

I sure hope Joe realizes how fortunate he is to have you in his corner managing his care. Even though it gets discouraging don't ever give up. I hope the rest of this week is completely smooth for you. Take care and have a good day.

 

[Nancy]

His medication did arrive today at noon. Good thing, I told them if it didn't arrive I would come right through the phone at them, or possibly make a trip to their office.

Plus I told them, this would NEVER, NEVER, NEVER happen to my husband or me again, and that I would be on their case on everything from now on.

We did have a little false alarm and got another FedEx overnight shipment in the AM and it wasn't his medications. I was furious because I thought it had not made the truck. I did have the tracking number so looked it up. There was a second truck that covers the afternoon, But I did make a phone call to the distributor when the first delivery did not have the medications.

I think I can relax now.

 

[Ross]

That's the nice thing about Fed Ex, they run more then one run and route. UPS on the other hand........grrrrrrrr.

 

[Gisele]

Nancy

Nancy

Good for you for staying ontop of it even though it is frustrating. Joe is such a lucky guy to have you on his side making sure that everything is done properly. I have a girlfriend like you. When her husband was ill and needed bypass surgery she was right on top of everything just like you.

Ross, I loved those witch pictures! LOL

 

[Nancy]

Just can't let Joe pass on to the great beyond because there was a group of lazy, clueless people distributing his life-saving medications. That doesn't seem right. He's fought too long and too hard to live.

It's not going to happen on my watch, not something stupid like that.

I hope everyone who is not feeling well enough to duke it out with these kinds of people, has someone who can help them out. It's tough enough for me, and I'm much healthier than Joe is. I can't imagine what it would be like when you have to do something like that when ill.

So all you spouses and loved ones out there, God Bless you all. Sometimes it can be a real fight to help your loved ones over the rough spots. These kinds of things always happen when you least expect them.

 

[ALCapshaw2]

Sounds like your broom has PLENTY of gas Nancy...

You must have found a filling station

Keep up the good work!

'AL'

 

[hensylee]

I want Nancy on MY side. You for hire, Nancy?

 

[Gisele]

I agree with Hensylee...........

I agree with Hensylee...........

Nancy I could use you with my little problem getting rid of my Bjork Shiley..........you really are incredible. Keep up the good work!

Gisele

 

[Kevin M]

Glad to hear the meds came.
The fact that this caused so much stress for your family is inexcusable.

If this happens again, I wonder how they would like to get emails from 500 angry VR.com'ers all in the span of a couple of hours.

Nobody messes with one of ours; especially you, Nancy.
Kev

 

[Susan BAV]

Great, tenacious spunk, Nancy! I have often wondered how many more people would survive drastic circumstances if only they had a "cheerleader," or more specifically, in your husband's case, a personal patient advocate! It's a dreadful thing, doing battle with some of the inept "powers that be," especially when one battles for oneself while dealing with a medical issue. One of my sons had a terrible accident several years ago and it quickly brought the dragon out in me... fighting the insurance bull-roar, medical incompetencies, etc. My mother-in-law recently saw a funny bumper sticker that she shared with me: "Do not meddle with the dragon. For you are crunchy with ketchup!" Funny, huh?!?! Best wishes, ~Susan

 

[Nancy]

The thing that is so scary about Tracleer (the medication in question) is that it is a tightly controlled medication. You cannot get it from doctors outside of the pulmonary hypertension field, and you cannot get it at the local pharmacy and there are no samples to get. It has its own distribution network with about 3 distributors in the whole country. Who distributes to you is dictated by your insurance company. It is so highly controlled that they call you (in a perfect world) before they refill and ask you to count your pills, then they tailor the shipment to what you have told them. In addition to that the patient has to have monthly liver tests, and if they are not up to snuff, you will not be allowed to refill or will be stepped down in dosage.

So when this distributor messes up, there is absolutely no cushion for the patient. Pretty scary stuff. The patient is totally helpless and dependent on the service of the distributor. All it takes is a few incompetent people working there and the patient's life is in jeopardy.

Please everyone, this is a medication that only pulmonary hypertension patients have to take, so I wouldn't want any of the newbies to think that this is something that would ever come your way.

It's just something to keep in the back of your mind. You must advocate for yourself, or have someone who is willing to do it for you. There will be many times and many circumstances in which you will confronted with total incompetence and you might really have to fight to maintain your health. Not everyone is good at what they do, and not everyone cares about the results of their incompetence.

 

[Sherry]

Way to go, Nancy. You're such an incredible lady. Witch? No way, you're just taking care of business. Joe is so blessed to have you in his corner.