longest 3 or 4 weeks in my life

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jax! welcome.. we're gonna be souls sisters for sure as my surgery is onthe same day so im with you on all the freaking out. the difference is that i have been onthis web site for a month now and with all the advice -and a few pils-xanax and another anti anxiety-im sleeping pretty well and im feeling 100% more optimisitc to charge up the mountain. I was just vacuuming and gt a chest pain and little short of breath and thought- in a few months- i will be vacuum drag racer! i also just started thinking about papers- which makesit tough- but my trick is to try to forget- read books- watchmovies- anything to take your mind off it! feel free to email me directly, [email protected].

best,meg
 
Jax....welcome .......I was scheduled for MV reapir at CC on 4/16....came to Ohio from FL on 4/1....there was a scheduling mix up and I was changed to 4/28......I came down with bronchitis..... I agree the waiting is the absolute worst. I see everyone going for surgery and then heading home to recover and I am still waiting. God is teaching me patience.....my latest comment is that I feel like I am at Cedar Point waiting in line for the Blue Streak and everyone is line jumping ahead of me. But I know the postponement was for the best....I want to be 100% for the day of surgery!! Best of luck here in the waiting room with all of us who are learning patience!!
 
Welcome to VR, Jax. Sorry for the circumstances but glad you found us. There's lots of info and support here. My OHS adventure started with my doc noticing a heart murmur, too. Fear is normal, but now that I've been through it, I can honestly say the experience wasn't as bad as I had feared it would be. Keep busy the next 3 weeks to keep your mind off of the surgery. Prepare your home for your recovery. Do some fun stuff with friends or family if you can as post-op you'll be busy with recovery for awhile. Best wishes and good luck.
 
Hi Jax. My situation was very similar to yours. I'm 37 and just had Aortic Valve and Aortic Artery replacement. I was scared too, but I can honestely say this was a piece of cake. I'm happy to speak with you if you want by phone, I just had my surgery less than 3 weeks ago. There is no denying how scary the days leading up to surgery can be, but you have found a wealth of experience and information. Its easy for me to say 'don't worry', but it really will be OK. I'll be rooting for you.
Phil
 
Welcome Jax, I am right there with you. I am having my mitral valve repaired June 8th at CCF. Just curious, why can your valve not be repaired instead of replaced? Will you be going in for pre-surgery testing, or have you had it already? After awhile you just get used to the idea of surgery and accept it, at least that's how it worked for me.

Steve
 
Be thankful you have a few weeks to plan and "get your house in order." You'll need/ want 24/7 care for at least the first 2 weeks I'd say, so line up inlaws, family & friends to care for you during the day.

I'm a single mom w/ 2 teenagers. They held ME while I cried & grieved pre-surgery. It's good life lessons for them too. I would tell them, "I'm gonna cry & have my pity party tonight. I'll be brave tomorrow."

I'll be honest with you--this is going to knock you on your ass. I thought I'd have a speedy recovery too because I'm young & positive about life, but you will find that this is the universe's way of teaching you to slow down and BE CARED FOR instead of being the care giver. It's humbling and beautiful. ENjoy the journey. Sounds like you're already discovering the blessings that come from this.

And remember...this is just another 'day in the office' for these surgeons. SUrgery is the easy part. Being a good patient is what you'll need to focus on for recovery..and you will do fabulously---I can tell!

Susie
 
i think that at this point my valve is so badly damaged they can't repair it. i asked the doctor when i went to ccf if repair was an option and he said it wasn't. I do still have to go in for pre-surgery testing. I have to get a heart catheter, bloodwork and another chest xray. Not sure of the date of those tests yet but i am thinking it is going to be sometime the week before surgery. The doctor already told me that i have to get it replaced quickly. i definitely would have preferred that they repair it but if it would mean that i would still end up having to have it replaced later on i would just as soon get it replaced now.
 
thanks susie. what's it like to have someone take care of you. i don't remember. been so busy trying to take care of everyone else i think i forgot about myself. But sometimes it is just easier to be that way than to try your hardest to get other's to help. you know what i mean. are you still recovering? or have you been able to return to work yet? I am not ready to be knocked on my ass but i know it is coming and in a way i will welcome it because it will mean that i will eventually feel so much better than i do now and have for quite some time now.
 
Just to give a somewhat different perspective of 'after care needs'. I've had two OHS within four years. Both times (the last being 14 months ago), I was able to walk up full flight of stairs immediately home from the five days I was in the hospital the second time. (I was in longer the first time as it was emergent and I was on a balloon pump for 4 days before I was well enough to undergo surgery.)

I showered, washed my hair, dressed, made light lunches and prepared/warmed easy dinners for me and my husband. I was able to load the dishwasher. I certainly tired easily and required afternoon naps, but took daily walks outside in March weather in New England. My DH was wonderfully supportive and ready to help me in all ways needed but for the most part, I was okay on my own. Sure, he changed sheets on the bed, took me grocery shopping the first few weeks and carried the bags etc My second surgery, my cardio gave me the okay to drive at just about 3 weeks post op. That's quite early.

My only point is that it is good to keep in mind we are all different. Some are able to be far more independent faster than others. It is not always a correlation between age or even physical fitness going into the surgery though most of us agree the most fit you can be Usually it will lead to an easier recovery but no guarantee.

I was diligent in following the 'do not lift more than 10 pound' rule. It can do you harm for the rest of your life if you do not allow your sternum the best possible healing.

Plan to have some help when you are first home but you may be pleasantly surprised to find after a day or two you will be fine on your own during the day.

All that being said, IMO it is a full year to completely heal and for some, they say it has taken longer.
 
Hey Well My Cardiac cath is May 29 th. And yeah it can freak you out. But you know what the thing to remember you can't be anymore tired than you are right now right! So it can only go up hill from here. That's the way I look at it. This is a good resource and the people are VERY supportive so don't be afraid to ask questions, vent etc. GOOD LUCK!
 
Jax, you have found the right people to support you. I also have mitral stenosis and have surgery scheduled for June 17 for a mechanical valve replacement. I was diagnosed with this when I was 38, I was able to have a valvularplasty done which has lasted for 12 years. But I remember how frightened I was, I think when you have younger children as a mother there is that fear of how can I be sick and take care of them. Sounds like you have family support, it will go well, you are young and will most
likely recover very rapidly. So thankful to have the posts to read and know that
I am not alone with my apprehension. Laura
 
well i got a call from ccf last night. my pre-surgery testing is going to begin on may 26th and the 27th. i am trying to figure out whether we can afford to stay the night before the 26th in cleveland as my first appointment is at 7:15 and if we drive we have to be out of here by about 4:45 to make it on time. and with knowing how long that day is going to be i don't know if i want to drive all that far. 7:15 is my chest xray then after that is my blood work. my heart catheter is in the afternoon. and then on the 27th i don't have to be there until 10:30 which isn't so bad. Have to do my breathing and pulmonary tests and meet the surgical team that day. then they have me down for two days for surgery in case there is an emergency.
 
Jax -

Have you given any thought to what Valve you want?

FYI, there are 5 Mechanical Valve manufacturers in the USA.

The On-X valve has the Lowest Morbity Rate, especially in the Mitral Position (and is my personal first choice for that postion).

The St. Jude (Master's Series) Valves have the longest track record (and is by 'Backup' choice).

There is a lot of information in the Valve Selection Forum.
You may want to look at the new thread "ATS vs On-x or St. Jude" for commentary and the opinions of 2 top surgeons.

Out of curiosity, which surgeon have you chosen at CC?

'AL Capshaw'
 
well i got a call from ccf last night. my pre-surgery testing is going to begin on may 26th and the 27th. i am trying to figure out whether we can afford to stay the night before the 26th in cleveland as my first appointment is at 7:15 and if we drive we have to be out of here by about 4:45 to make it on time. and with knowing how long that day is going to be i don't know if i want to drive all that far. 7:15 is my chest xray then after that is my blood work. my heart catheter is in the afternoon. and then on the 27th i don't have to be there until 10:30 which isn't so bad. Have to do my breathing and pulmonary tests and meet the surgical team that day. then they have me down for two days for surgery in case there is an emergency.

When I was contacted by CCF they gave me a list of hotels that have CCF patient rates. Double Tree was the least expensive, $89/night for CCF patients.
The number is 216-241-5100. Hope this helps.
 
my surgeon is tomislav Mihaljevic. He does specialize in minimally invasive surgery. Not sure whether i will be a candidate for this but i do hope so.

haven't really looked at the valves too much yet. I got offline yesterday and forced myself to do some little things around the house since lately i've been too tired to do anything.
 
Sounds like you are starting to calm down and there have been good responses in here so far but I just wanted to second or third or . . . that the most important thing is for you to trust your surgeon and his staff. If you do, it will make the whole process much easier to deal with. And you are going to the Cleveland Clinic, which is known for being the best heart hospital in the US, so hopefully you have started to calm down a bit, but if not know that it is common to freak out. I wish you the best.
 
yes i am calming down thankfully. Yesterday wasn't a bad day i made myself do stuff. it just all became too real when they called to tell me when surgery was. up to that point even though i had already been to cleveland clinic and all that it really hadn't sunk in. even though i knew i was going to need surgery. It was either that or i just didn't want to believe it since all of this has happened so quickly.
 
You asked about how to get through the waiting time. I recorded lots of therapeutic music and guided meditations on an ipod (purchased just for the occasion) and I listened daily to these to calm myself and give me confidence. Then on the day of the surgery, I kept the earphones in my ears from the moment I worke up til they put me to sleep. In recovery, my daughter put them back in my ears and I continued this "audio therapy" that was so familiar to me. It soothed me and I believe it also enhanced my healing process.

I particularly recommend two CDs by Belleruth Naparstek, published by www.healthjourneys.com. One is "A Meditation to promote a Healthy Heart" and the other is "A Meditation to Promote Successful Surgery." I have no financial connection to these at all. I just discovered them and used them to my advantage and hope you will as well.

a Friend
 
Hi Jax i am going thru the same process you are my surgery is 5/21 and have known about it for more than a month. My Cardiologist put me on Xanax it has helped but work and reading everything i can get my hands on about my AVR and MV repair has helped more. This site has given me friends who understand what we are going thru.
God Bless You
 
it certainly has. thankfuklly i have managed to calm down and stay calm and really can't wait until there comes a day that i don't want to sleep all day. i know probably the week before the pre-surgery testing and surgery i will probably get nervous but i am ready to get it over with. at first reading all the medical stuff helped but after a little while when i started reading about the surgery all it managed to do was scare me more. so i have stopped reading that and just started coming in here. which helps so much more.
 
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