J
JohnMc
Hi All,
Haven't posted for over a year but regularly visit the site to see how people are getting on and to get information..
Finally after a year of many tests, 5 echo's, TEE, MRI scan,and last but not least an angiogram my cardio has recommedned that surgery is required sooner rather than later and a date has been set for the 20th June.
The choice of mechanical valve was made for me as I have been diagnosed with possible Left Ventricular Non Compaction (LVNC) aswell as regurgitating bicuspid aortic valve.One of the treatments for LVNC this is warfarin so it doesn't make sense to have a tissue valve. They are not sure what is causing my left ventrical to dilate but th cardio and myself is hoping that it is the leaking valve as this can be fixed. The LVNC cannot and the only option is a heart transplant if this begins to take hold. The chances of a bicuspid aotic valve is 1 in 100 which is unlucky in itself but the chances of having LVNC is 1 in 100,000 !!! I calculated that makes the odds of having both 10,000,000 to 1. Lucky me.
Having said that I am where I am and there is no point in felling sorry for myself.
The surgeon uses the Sorin Bicarbon valves which I have researched and am comfortable with. It's a third generation bileaflet valve so should so the job.
Athough it all seems doom amd gloom I am still have no major symptoms with the occasional palpitation being the only time I notice something is wrong. I am very healthy and still playing squash, football, swimming etc so the surgeon has said to continue this as my fitness level will very beneficial to my recovery afterwards.
Anyway, no real questions but I would be interested to hear from anybody who has the Sorin Bicarbon althouh I know that this is not used in the US as it is CarboMedics there and they have there own range.
Roll on the 21st June when the recovery starts.
Thanks for listening.
John Mc
Haven't posted for over a year but regularly visit the site to see how people are getting on and to get information..
Finally after a year of many tests, 5 echo's, TEE, MRI scan,and last but not least an angiogram my cardio has recommedned that surgery is required sooner rather than later and a date has been set for the 20th June.
The choice of mechanical valve was made for me as I have been diagnosed with possible Left Ventricular Non Compaction (LVNC) aswell as regurgitating bicuspid aortic valve.One of the treatments for LVNC this is warfarin so it doesn't make sense to have a tissue valve. They are not sure what is causing my left ventrical to dilate but th cardio and myself is hoping that it is the leaking valve as this can be fixed. The LVNC cannot and the only option is a heart transplant if this begins to take hold. The chances of a bicuspid aotic valve is 1 in 100 which is unlucky in itself but the chances of having LVNC is 1 in 100,000 !!! I calculated that makes the odds of having both 10,000,000 to 1. Lucky me.
Having said that I am where I am and there is no point in felling sorry for myself.
The surgeon uses the Sorin Bicarbon valves which I have researched and am comfortable with. It's a third generation bileaflet valve so should so the job.
Athough it all seems doom amd gloom I am still have no major symptoms with the occasional palpitation being the only time I notice something is wrong. I am very healthy and still playing squash, football, swimming etc so the surgeon has said to continue this as my fitness level will very beneficial to my recovery afterwards.
Anyway, no real questions but I would be interested to hear from anybody who has the Sorin Bicarbon althouh I know that this is not used in the US as it is CarboMedics there and they have there own range.
Roll on the 21st June when the recovery starts.
Thanks for listening.
John Mc
