Hi Suzanne, unfortunately what you say is true. I was in the life/health insurance business for many years and was not able to get insurance without paying an additional "risk" premium, especially for long term disability insurance. There are a couple of ways to "skin this cat".....continue, or convert, group life insurance when you leave an employer. Take advantage of voluntary programs offered thru your employer that are "portable".....this is how I was able to aquire my personal life insurance. However, disability insurance can be a "tuff nut" because of the potential dollar outlay and can prove to be more difficult than life insurance......group disability insurance is normally not "portable", but be sure to check when you leave an employer. Individual "accident disability plans can be found, sometimes, thru organization such as AARP, AAA, etc. While there is not sickness benefit, it will pay a benefit for accidental disability. Good luck.
PS: I retired from the business 15 years ago and if there are any "insurance people" on the forum, they may know of new ways to handle this problem.