Bicuspid aneurysm size guideline

[dixitworld]

I thought I tried pretty seriously above where I said:

have you actually tried reflecting on that in a serious way or are you just "seeking some magic injection" like morphine where you don't have to do anything yourself?

That's not how life actually works.

Best Wishes

I did very well but kind of my anxiety is top of the roof where at one time I was about to go to emergency. My mind keep saying why the surgery is risk is 1 percent per year now when the surgery risk is 2-3 percent. However I wanted to do surgery max till 5.8-5?9 to avoid 6cm threshold. And for me the size of aorta itself is messed up as cardiologist saying 5.7 and surgeon measuring 3 D model as 5.5

 

[dixitworld]

I did very well but kind of my anxiety is top of the roof where at one time I was about to go to emergency. My mind keep saying why the surgery is risk is 1 percent per year now when the surgery risk is 2-3 percent. However I wanted to do surgery max till 5.8-5?9 to avoid 6cm threshold. And for me the size of aorta itself is messed up as cardiologist saying 5.7 and surgeon measuring 3 D model as 5.5

Got this one bicuspid aneurysm study at https://www.jacc.org/doi/10.1016/j.jacadv.2023.100626 where though sample size is modest shows risks from 5.1-5.5, 5.5-5?9 and 6 as 0.4,0.7 and 3 respectively annually
So still not able to understand why such intrusive surgery is recommended

 

[dixitworld]

Got this one bicuspid aneurysm study at https://www.jacc.org/doi/10.1016/j.jacadv.2023.100626 where though sample size is modest shows risks from 5.1-5.5, 5.5-5?9 and 6 as 0.4,0.7 and 3 respectively annually
So still not able to understand why such intrusive surgery is recommended

Pellicle can you please review above study and provide your expert feedback on this also

 

[Gail in Ca]

My story might help you make your decision. At 34 my aneurysm was discovered and it was at 6. I needed surgery and waited 6 weeks for that surgery. My aorta fell apart in the surgeon’s hands. I later read the surgical summary and it was really at 7.
I always felt good about each of my surgeries because my surgeons were so confident that they made me confident that I would survive.
It seems they still can’t see the actual shape the aortic tissue is in and so only go by how big they think it is.
All the best for you in making your decision. If you choose a great, highly recommended surgeon at a top hospital, I think you will come through your surgery just fine!

 

[dixitworld]

How long back you had surgery? And any issues post surgery since then?
My biggest fear is that after this surgery any comorbidities like renal failure, brain dysfunction etc (mortality is kind of out of hand) and probability of third surgery sooner than later.

I see even in bentall procedure there are many reasons for surgeries down the road again and person like me who is highly nervous and anxious , keep debating my mind to buy more time here from god till 5.9 cm or so before my second surgery

My story might help you make your decision. At 34 my aneurysm was discovered and it was at 6. I needed surgery and waited 6 weeks for that surgery. My aorta fell apart in the surgeon’s hands. I later read the surgical summary and it was really at 7.
I always felt good about each of my surgeries because my surgeons were so confident that they made me confident that I would survive.
It seems they still can’t see the actual shape the aortic tissue is in and so only go by how big they think it is.
All the best for you in making your decision. If you choose a great, highly recommended surgeon at a top hospital, I think you will come through your surgery just fine!