My dear friend Carol who I met through the National Marfan Foundation and who is the survivor of the dissection of an undiagnosed aortic aneurysm, now is having little bleeds in her brain--mini strokes. Her whole life, lived carefully to prevent repeats of aortic aneurysms, is now unravelling. A decade younger than others with this situation, she may now have to live in assisted living for the rest of her life. I am so sad! Connective tissue problems (as Ross tells us) can never be counted out for some of us.(By the way, Carol is another one of the "borderline" Marfan cases, like me--narrow jaw, longish fingers, but otherwise not Marfan-looking at all.)
