a niggling concern grown bigger with the early hours

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A preface is that I realize now that my intubation had been vital for my survival and I am grateful that particular piece of hardware was available to breathe for me when I was too close to death to do it for myself anymore. What I describe next is simply what happened to me.
I think I am a bit different from the others in my experience due to the severity of my lung involvement with my very precipitous fall from fairly good health to very critical condition in less than three days. There was no time to prepare myself for what was going to happen. I didn't have the luxury to get counseling or any other sort of preparation. I just started to feel "odd" the morning of Dec 9th, ER visit suggested pulmonary fibrosis--of all things--turned out to be wrong--thank God for at least this not-so-small favor! Then December 10th second ER visit--"atypical pneumonia" which went from ability to breathe room air (about 60 breaths per minute to keep O2 saturation in mid 90s) to 10 liters per minute O2 by morning Dec 11th. Then ICU, where they finally figured out it was my heart. Meanwhile my lungs were distended with fluid and my ability to breathe without help was fast diminishing.
I never really minded masks, and was reasonably comfortable snorkeling with my wife in American Samoa on our honeymoon in 1996 (btw--12th anniversary today 4/27). I actually found great relief even to the point I was able to eat a decent meal by using a BiPAP mask. The pressure enabled me to breathe well enough that I could pause to chew and eat adequately, though I was on almost pure oxygen at that point. Of course I moved the mask away during the actual eating and swallowing.http://valvereplacement.com/forums/images/smilies/biggrin.gif
It became clear by the 12th that despite aggressive diuresis I was dying and my descent into cardiogenic shock continued, plus heart failure had begun. The BiPAP, though exceptionally helpful, had reached its limits. It was becoming increasingly difficult for me to exhale against the pressure, and air leaked around my mask while I inhaled. I needed to be Life-Flighted to Boise, and could not wait any longer.

I was told I had to be intubated. http://valvereplacement.com/forums/images/smilies/eek.gif Ironically, the idea of something going down my trachea was a very phobic thing, sort of like terror of drowning despite my being an excellent swimmer. I asked for my old "milk of amnesia" friend Versed. It had saved me many traumatic memories over several operations including arthroscopic surgery on my left knee, a spermatic vein ligation, endoscopy, and colonoscopy. I requested it again when I found out I could not have BiPAP for my helicopter ride to Boise. I was going to "miss" my first helicopter ride. http://valvereplacement.com/forums/images/smilies/frown.gif However, I would also get to miss my intubation experience. http://valvereplacement.com/forums/images/smilies/smile.gif There was even a bit of retrograde amnesia, so I don't recall my fight with the football player build EMT that had to pin me down like a pro wrestler to get the thing into me. My wife said I was given a bit of Diprovan and a bit of Versed before intubation, but my condition was so fragile that they didn't dare give me any more until I was fully intubated and stable.

Next (images of cannibals in South America, poison darts, very pretty frogs...so pretty they make YOU croak) I was given a curare derivative Vercuronium, and *immediately* a, as my wife described it, very full syringe of Versed. Wrapped up in my thermal cocoon, I was then driven the 300 yards to the helipad, then loaded into the helicopter.

I was briefly allowed to awaken at the hospital, tube in place, so I could pray with my wife and the on call pastor at St. Luke's Boise hospital. The Versed had more or less worn off, but the Diprovan remained until I was extubated. I didn't fight the tube; I accepted it was there, though I didn't like it. I felt it with my tongue, a hard plastic roundness. It turned out I *did* fight the tube a lot after surgery--next paragraph. I was then brought back under. Fifteen minutes after arrival, TEE--convenient that I already had been intubated... Forty minutes after arrival, first incision. 62 minutes cardio-pulomnary bypass, mitral valve repaired, closed up, then back on the ventilator.

My lungs were in such terrible condition I had to be left on the ventilator for a whole additional day after surgery. There was so much fluid, blood, and mucus--my double chordae rupture had so flooded my lungs with fluid, there was no way I'd be extubated only 6 hours after surgery--it would kill me. Then Laura told me that whenever they let up on the Diprovan I would express a very strong desire to be extubated and tried to sign, write, or pantomime requests and demands that it be removed. I also tried to do it myself, but Laura watched me like a hawk as well as a very vigilant nurse named Sandra ("In my 25 years of nursing, I have never had a patient extubate himself.") They used light gauze restraints, and allowed me to suction myself at times--it seemed to calm me down to give me that level of control. I have one true memory from during this time--them bathing me with some sort of system involving a large warm wet towel and two blurry forms doing the washing, and moving my body around. I also recalled I could barely do more than open my eyes to quivering slits to see even this. The rest for me was blank.

(Gross out warning--skip this paragraph if you have a weak stomach). Then the wondrous moment occurred--I was extubated. Seemed I had some last minute cold feet--suddenly my tube was my buddy and I didn't want it out--maybe I knew what was coming...http://valvereplacement.com/forums/images/smilies/tongue.gif
They let up the Diprovan as the process took place. I was instructed to cough hard. Laura told them I could cough pretty hard. I could "PEEP" (positive end expiratory pressure) myself adequately--meaning I could get whatever was in there out. Boy did I get it out.
(Final warning--gross part next). When I coughed, I did a very deep one. The tube came up and so did several strings and globs of clear, yellow, blood clots (some light some dark), in all over a foot long came out with the tube. Suffice it to say, the respiratory therapist, me, and Laura were agog with astonishment at how much stuff there was. Over the next ten minutes or so, I directly coughed up at least the same amount, then I finally became connected to reality. Until this point, the Diprovan had kept my amnesia going--most of what I wrote here was from descriptions my wife and the ICU people including Sandra told me when I could record long term memories.

(Gross part over...http://valvereplacement.com/forums/images/smilies/wink.gif)
My wife said I was talking a mile a minute, starting with "Did I have my surgery?" I have a true memory of this question, as well as my total bewilderment when she said "You have a zipper on your chest." What? Metal? Nylon? Why? http://valvereplacement.com/forums/images/smilies/confused.gif Did they have to get to my heart very quickly in case something was wrong? Unzip! In again.... Was my condition that precarious??? If I had a macabre sense of curiosity could I take a look inside my own chest? I sure hoped they locked or protected the zipper pull so it wouldn't undergo some sort of fatal "gaposis" allowing pathogens to get inside me....http://valvereplacement.com/forums/images/smilies/eek.gif
Laura then explained that this was what medical people called large scars--and since I didn't have large scars, nor had known anybody with one, I had never heard that 'zipper' euphemism for a scar before that moment. With that behind me, I relaxed and had my first post surgical laugh--followed by some more coughing.
From that point on, the coughs, while productive of what I termed "blood sausage" for a short time afterward, were much less often and my recovery was rapid after that. My vocal cords were not damaged despite my size 8 tube--I guess there was room, and I made ample use of their undamaged condition. Weaned in 3 days post extubation to room air, I was released 8 days post surgery.

In summary, my fear of drowning along with real experiences with being rolled in a breaker at the beach while a kid, and a bad flip-turn during a free-style race at a swim meet, made me panicky at the feel of something foreign going where stuff isn't supposed to normally go. I can't stand the feeling of helplessness of not being able to cough up stuff, and the tube was, frankly, in the way of my properly doing so. My wife--God bless her always--convinced the respiratory therapist to extubate me even when my O2 saturation was still a bit low--and let me take out my own garbage--as it were--for a change. She was right--I was VERY motivated to prove her right even though I hugged my coughing pillow (Sir Koff-a-Lot teddy bear)until my arms shook from the effort. I didn't want to see the tube again. However, when I needed it the most, it was literally a lifesaver and for that reason I was glad to have it for every single moment I needed it.

If you need it, you need it. Just consider it something to be endured like a painful dental procedure that resulted in being able to use your teeth again to eat normally for the next ten years or so. It will pass, it will come to an end. Most likely it will be over in less than a day, and you may not even remember any of it. These respiratory people are competent and have had millions of people before you survive intubation worldwide--that probably would have died without having it done. They publish hints and improvements--and each generation gets that much better at it. Just pray that God be with you through it all--I know--He was with me.
 
I am clostrophobic too the only thing you really need to remember is to just try to relax and breathe with the ventilator. When you feel like you want to panic just keep this in mind. Also, you are less likely to have your hands restrained if you don't pull at any of your tubes.

Lettitia
 
Lynn,
I've been in the OR twice in the last 3 months, and was not even aware of the breathing tube either time. The first time I sort of came to, was dimly aware that I couldn't speak, and was gesturing to my husband. The second time, no memory at all.
I'm sorry you have this fear, the tube is such a small part of the whole experience, hope you get the reassurance you need from your medical team.
 
I was totally scared of the vent as I gag even when brushing my teeth and was so sure I wouldnt be able to cope with this tube. My family tell me I was struggling with the vent and did so quite a few times. Luckily I do not remember a single moment of this struggle as I was totally doped-up. I do remember getting the tube taken out and it felt weird, it only took a few seconds to remove. My mouth was drier than the Sahara desert and I was craving orange icy-poles (something I normally would hate).
 
The dry mouth part I remember from this surgery but not the first one. Thankfully I had no nausea from the anesthesia so they gave me lots of ice chips on request. They were SO good! I have never felt such thirst before.
My wonderful ICU nurse must have had a bucket full brought in for me. :)
Those Mass General Nurses are incredible!
 
What drug was used to sedate you ...................

What drug was used to sedate you ...................

Hi Lynn,

Your TEE/TOE experience sounds very similar to mine.

After I swallowed the pills I had a physical battle with the doctor because he needed to spray my throat. Not a big deal but I couldn't tell myself that nor abandon pushing him away. Actually he came very close to being kneed in the groin but I caught myself in time.

When the procedure was finished I was yelling to get me out of here followed by an extremely upsetting bout of body racking sobs for what seemed like hours.

The drug they used was valium.

Much later I discovered that reactions to valium are not uncommon. Nurses frequently are hit about the head.

Do you know which drug they used?

By the way, following that experience I wasn't enthusiastic about tubes during surgery either. However everything went like a charm, no problems with anything in my mouth nor anywhere else.

The evening prior to surgery they offered me a "sleeping pill" which I accepted. They told me it was something else, another name for valium, and again gave me valium.

Just a heads up. You have to be careful with that drug.
 
Hi Lynn,

My biggest fear alos was the TEE and the breathing tube. My TEE went on longer than expected and I "woke up" half way through it, but it wasn't as bad as I thought it would be.

My OHS is in two weeks (May 12th) and I guess I am more scared of the breathing tube than the actual operation. I keep reminding myself everyday that I will be heavily sedated and to just "go back to sleep" when I wake up.

Looks like many people here experienced the same type of anxiety. Its good to read these stories. I know they are helping to put me at ease before the operation. I sometimes read and re-read the same stories!

Scott
 
Dear Lynn,

I think the one important thing you have to keep thinking when you wake up with the ventilator is that it is not in there forever! Having been there 3 times myself & I was one of the ones that woke up with my hands "restrained"; (I guess I just turn into a wild cat & start fighting everything around me!:D :eek: ) so I had to be restrained for my own good!

This last OHS however, even though I woke up knowing my hands were bound, I was not as desperate & tried to calm myself down by thinking just that, "it won't be in there forever" & of course praying in my head helped calm me down considerably. I think I was more disappointed when my husband told me that the surgeon had ONLY replaced the Aortic & NOT the mitral valve as well, because I knew at that moment, that that was going to be a problem!

So please, don't frighten or worry yourself to death about it; it is all survivable; you will be just fine! :) Best of luck to you; my prayers are with you!
 
lance said:
<snip>The drug they used was valium.

Much later I discovered that reactions to valium are not uncommon. Nurses frequently are hit about the head.

Just a heads up. You have to be careful with that drug.
I was given valium during my first heart cath. So, on top of an inattentive IC doing the procedure and then yelling at me for not telling him about something clearly marked on my chart, the drug put me in tears through the entire procedure.

It turns out they'd prepped me for the cath on my right when I'd had a pelvic DVT in the past. Well, the doctor allowed himself to get into a snit and I'm pretty sure we shouted at each other. He'd already opened my blood vessel and attempted to take the catheter to my LV and hence, I was feeling especially vulnerable, to say the least.

During the immediately subsequent attempt on the left I was in obvious distress and the nurse was keeping a very close eye on me. I told her I suspected it was the valium that had wound me up (not to mention the confrontation with the doctor).

Next time, six years later, I was given Demerol and floated through the procedure; it helped that the doctors at that time, performed it well-knowing that they were never going to get a cath to my aorta from the previous attempts and contented themselves with what a simple angiogram could tell them.

This isn't meant to frighten anyone out of having this relatively safe procedure, it's just a warning that valium can make for a very nasty experience if you don't metabolize it without that particular side effect on your emotions. The drug of choice is absolutely a must have discussion with the anesthesiologists and doctors.
 
Hi Lynn

I am sorry you had a bad experience with the TOE, all I remember is having my throat sprayed and being told to swallow, then nothing at all.

As for waking up in ICU, I have no recollection of any ventilator or restraints. The first I remember is waking and thinking to myself "Oh I woke up then" and hearing a male voice saying "Why is she still here?" as presumably he expected me to be in the HDU instead of ICU by that time.
 
I just had OHS. Here is my experience

I just had OHS. Here is my experience

Lynn:

I just had Aortic Valve surgery on 4/15/08 and vividly remember waking up on the ventilator. I was very worried like you but was pleasantly suprised to realize it was not that bad. It was kind of nice not having to breath and it was amazing to me that this machine was doing it for me. I was able to take a breath while I was on the machine and started, but it was not needed so I just laid back and relaxed, let the machine do it for me and went back to sleep a while. I was on so many medications and was very calm. One thing with the TEE is that you are not on as many meds so are not relaxed.

Don't worry, just remember that when you wake up you will have a nurse in the room with you and the ventilator will be going...truly not a big deal. And also they DO NOT tie your hands down. In fact, I was able to write a little note while I was on the ventilator because I couldn't talk. The nurse then calmed my concern.

I was mad at the second nurse because she wouldn't let me write anything out and that made me frustrated. She was afraid I was going to work myself up over trying to coummunicate so told me to relax.

I hope this helps you not to worry. I think you will be pleasantly suprised about the ventilator thing and it is really nothing to worry about.

Sean L
 
Hello everyone and I can't thank you all enough for your replies and advice. It's helped a great deal. For those of you who asked what sedative it was that didn't work during my TOE, it was midazolam which is marketed as Versed in America.

Your stories and honesty have truly been very helpful and I'm very grateful to you. I've picked up lots of ideas on how ot deal with it when the time comes so I feel much more confident about it all now :)

Thanks again
Lynn
 
I cant believe they allowed you to remain awake. If this ever happens again , it sometimes helps to complain about pain or discomfort and be a general nuisance- make it difficult for them to do the test if you are really un-comfortable , because some doctors are so unsympathetic that this type of thing is called for. Or maybe Im just a big baby:eek:
Wishing you well,
 
Dina said:
I cant believe they allowed you to remain awake. If this ever happens again , it sometimes helps to complain about pain or discomfort and be a general nuisance- make it difficult for them to do the test if you are really un-comfortable , because some doctors are so unsympathetic that this type of thing is called for. Or maybe Im just a big baby:eek:
Wishing you well,

I'm sure you aren't a big baby :) and he apologised afterwards that it had been so traumatic but he said it had to be done so he thought it best to just plough on and get it over with.

I'd never have it again though, not without general anaesthetic :)
 

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