23 Y/O male needing surgery

[AmyR]

Hello People, it is so nice to find so many people to share. I am a student 23 year old. I am doing my engineering. i was diagnosed with a BAV in 2009 and docs said i wouldnt need a surgery till my 40's but i have been an athlete playing a lot of basketball and volleyball. I have also been a weight room trainer. Not a beefed up body but yeah fit. I used to have spells of palpitations while getting super aggressive in my sports and weight room but i used to relax and it settled. Of-late the palpitations started running longer and i started of with panic attacks as well. Got it check with the doc and got to know i would need surgery in a year. i then went to one doc here in india (oops by the way i am from india) and he told me to go for the surgery soon as the leak is severe and the LV is a little dilated. i am planning to get it done once and for all as this is taking a toll on my education. what do you guys suggest. i am planning a mech valve and would be needing blood thinners. your suggestions and comments would be appreciated. Good health and a good heart to you amazing people. Thanks

Amy

 

[youngmom]

welcome! personally im going to have a mechanical valve because i dont want to repeat the surgery. The blood thinners dont scare me but ohs does. good luck at whatever choice you make and may Gods healing hand follow you all the days of your life!

 

[dick0236]

Hi AmyR, welcome to the BEST site for info and support from folks who have been where you are. When I was 23 I knew that I had a "bad heart murmur" but valve replacement was still "on the drawing board". I had the surgery at 31, three months after graduating college(I was a late bloomer) and received a mechanical valve.....which I still have. Warfarin "blood thinner" is no problem in my life regarding lifestyle or activity. Testing is a little nuisance but it has kept me off the operating table since my initial surgery....and that has been a good trade off. This surgery has come a long way and, while serious, has now become a relatively simple(?) surgery. The internet has become a blessing for finding support and INFORMATION, but as with most things, it also has a lot of misinformation. Continue to read all you can and ask questions of those who have had this done. There are lots of people who have "been there, done that".

 

[njean]

Hello and welcome!

Glad that you found us and hopefully we can help dispell some of the fears you might have on "blood thinners", mechanical valves, and OHS in general.

I have been on coumadin (anticoagulant or blood thinner, term used by many medical professionals) for 38 years. I had a double-valve mechanical implants in 1975 when I was 24 years old. I've led a pretty active life, never allowing my "condition" get in the way of what I wanted to do. I've had several other surgeries during my life, plus two more OHS and have survived that too, thank God.

You sound physically fit which is a BIG plus and have a great attitude of "having it done and overwith" so you can get on with the rest of your life. I have no doubt that you will do just fine.

Do you plan to have your surgery there in India? I will try to remember another member of this forum that had his done in India and was doing just fine. If I can remember who it was or if someone else does, we'll pass the information on to you.

Take care!

 

[njean]

Hello and welcome!

Glad that you found us and hopefully we can help dispell some of the fears you might have on "blood thinners", mechanical valves, and OHS in general.

I have been on coumadin (anticoagulant or blood thinner, term used by many medical professionals) for 38 years. I had a double-valve mechanical implants in 1975 when I was 24 years old. I've led a pretty active life, never allowing my "condition" get in the way of what I wanted to do. I've had several other surgeries during my life, plus two more OHS and have survived that too, thank God.

You sound physically fit which is a BIG plus and have a great attitude of "having it done and overwith" so you can get on with the rest of your life. I have no doubt that you will do just fine.

Do you plan to have your surgery there in India? I will try to remember another member of this forum that had his done in India and was doing just fine. If I can remember who it was or if someone else does, we'll pass the information on to you.

Take care!

Note: The two forum members I was thinking of are: Kumar (Bangalore, India) and Manipreet04 (Locknow, India). You may want to click on community find their user name and read up on their posts or send them a PM if you have questions.

 

[AmyR]

Thank you so much youngmom dick and njean. trust me you people are the ones i look up to. i was so freaked out when i first got to know that i would need a surgery but yeah trust me you guys have been the inspiration. I was trying to run away from the situation but now i am in that " Hell yeah lets get this done" attitude. I know that attitude is just that funny young blood in me but i guess i like it that way. the issue now is just that my docs say i am not a candidate for immediate surgery but i may need it soon. Like they say u need a 3 month monitoring and i dont know which screening would call for a surgery. But most docs say a year or a year and a half max. The issue is i dont want to waste a year behind this fear of "something going wrong in me" feeling. What do you all suggest. I am attaching in my report details below to just FYI.
Oh and yeah thank you for the names of the indian members, i am planning to get it done in india itself


Bicuspid aortic valve with raphe annulus 27mm
AO- 39mm
LVID 57
LVEF 56%
Dilated LV
Ascending aorta 30mm
moderately severe Aortic insufficiency (eccentric jet)
Aortic peak gradient 12mmHg
Good LV systolic function