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First off Hi, John I'm srry to hear you needed surgery now, On the plus side you go to one of the very best centers for heart surgeries. also At least you have had a year to consider your choices, I personally would go with whatever your "gut" feeling is telling you. If the thought of a tissue...

Matty heart is a good book. This one is more like a textbook with chapters on the various CHD w/ very good diagrams of each CHD or group of CHD that ofen go together compared to a "normal" heart and most of the different surgeries for CHD as well as all other kinds of info. I have the origonal...

If you like to do alot of research, have you checked the webast available from the different annual surgical societies meetings? Each session runs about 1/2 hour and they have all kinds of topics every year, that usually have the best up to date info on surgeries, trials etc. That is often where...

First. sorry about my post, my "T" is dying on my keyboard and sometimes I forget to go back and put them in :) I know how you feel about travel, . We are lucky in living 15 min from CHOP which is usually ranked 1 or 2 in the Counry for CHD, but I've gotten opinions from all over and traveled...

Thats good he has a surgeon you have faith in, it helps to have peace with the decisions. Is it a far travel? I hear you about research, even when Justin seems to be doing well, Im always reading, incase we get blind sided and need to make choices sooner than we hoped so i try to stay up to date...

Hi Eln, Sorry to hear the repair didn last as long a you hoped, my 25 year old son has had quite a few surgeries since his first when he was 10 days old. I know how guting it can feel when more intervenions are needed MUCH sooner than hoped. Justin did not have a Ross, but there are a few...

Are you asking about in the hospital or once home? Everyone is different of course, but Justin was usually just on pain meds and sometimes some stool softner as long as he needed the pain meds. then because of getting a tissue valve depending on the docs or hospitals maybe aspirin or coumadin...

I was so sorry to hear about Sarah's passing. What a sweet caring person she was. And so strong, no matter what complication she ran into, she met each challenge head on and rarely complained. She really worked to learn as much as she could about all aspects of her heart and medical care. She...

Sorry I missed this. They measure get at least ballpark size from echos and did you are or are going to have a cath? that is a very good way to find out size. some people dont have perop cath but CTscan and MRI also will give them measurements of your valves, not perfectly, but close enough they...

Hi Udeze! My son is the one that has had heart surgeries, he is 25 now and was born with a different cHD than you, but his main repair was like many TOF so had a pulmonary conduit and valve surgeries a few times. his last surgery was when he was 19. There arent that many member here who had...

Deb, I'm sorry that it is time for your valve to be replaced. I remember when we had the threads about the Mosaic and I was hoping you were one of the luckier ones that things remained relatively stable after the first couple years. As you said the good thing is you are in better shape now than...

Mike, I know this is a little lae and hopefully things are better or you can tune it out a least. I was wonderring beside the Mech valve did you also get a dacron graft/ section of aorta? I looked at your earlier post, but for some reasons the info was deleted

I'm wondering which details and specifics you have read or watched or was it discussions with doctors that makes you think "the less invasive procedure looks less likely"? I would like to read it since i'm quite interested in following the various min invasive and percutaneous interventions...

Hi Erik, It sounds like you did alot of research and asked alot of good questions to come to the right decision, for you- that you are the most at peace with. That is the best anyone can do. I also believe having a good attitude like you are helps alot. I'm glad you are enjoying having you Mom...

Eric, Glad to hear otherwise things are going well so far. I agree with mary i would put in a call to your cardio or Surgeon. Thats usually good advice whenever things suddenly change during recovery from OHS. My thought like Mary was it MAY be some kind of fluid. and it is always good to...

Hey EMU good to see you One problem is that different manufacturers measure/lable their valves differently, meaning it isnt necessarily true that you got a smaller valve the 2nd surgery, I think per lable the Perimount valve of one number has a larger opening than that same "size' of a...

I agree, I just put humidifiers around the house the other day, since everything is so dry w/ the cold outside ad heat on

Hi It's good to hear from you again, sorry you dont feel well. I was wondering have you had your INR since your nose bleeds? I'm guessing with everything you have going on and antibiotics it might be off.

Thank you everyone, it's nice to feel I was missed. I'm doing ok, my back is still the same, so at least it isnt worse. I've spent the last couple days reading alot of the post since ive been here and remembered thinking how much more time I had when I first cut down so much online things. :)...

Most of Justin's heart surgeries have been like yours as far as waking shortly after surgery, sometimes he woke in the recovery room before the took him to CICU and others very shortly after getting in CICU. He usually didnt stay awake much the first evening, but when he was awake, both on and...