Hello,
I was recently diagnosed with severe aortic stenosis and regurgitation (actually a month ago).
The funny thing that I am quite an active guy, am 33 and have never ever felt any symptomps. I used to do ski racing when I was in college and my wife and I regularly Ski/ DO long hikes, etc.
I have never ever felt any symnptomps (apart from over 4000 meter in the mountains, but a lot of people get short breath then).
So I went to the cardio because my doctor wanted me to see him to complete some medical forms and they told me that I will need an aortic valve replacement operation.
Ever since I have been trying to do research on my options.
To be clear I am optimising with respect to only two parameters ==> maximising longevity and avoiding another OHS (first one is already sort of freaking me out).
So, I am 33, and I understand that there are three options:
1) Mechanical heart valve
==> I.e. This seems like the most durable option. ==> But the possibility for stroke/bloodclot and the high perceived risk for that scares me a bit.
I do not mind adjusting my behaviour/diet accordingly, though I am very much a creature of habit: I tend to keep my diet pretty constant over time and happy to give up alcohol and skiing completely if necessary.
But the stroke/ bloodclot risk is non-trivial to me. They say that there is 1% risk per patient year, and at my age (if one plans living into their 90s (my grandparents lived that long so I am planning too)), there is a 50% chance of an event (stroke/major bleed) with mechanical valve.
But I heard that the ON-X valve may somehow generate less bloodclots/ strokes? is that right?
And would anyone mind commenting on here, whehter they experienced Bloodclots, TIAs or strokes and whether they were alright afterwards?
[I.e. are these events really as frequent as the data suggest?].
2) Ross Procedure
I understand that Ross is quite a complex operation because it involves a switch in heart valves.
Some of the surgeons I met with said that it could possibly be a life long solution?
But is that claim correct?
Does anyone know of any statistics on how durable that procedure is?
[Ie. could I expect to live with this for 40+ years?]?
3) Homograft.
Any ideas on how durable Human Tissue valves are would be really appreciated?
[IS there any information on durable Human Tissue valves are?]?
[or any statistics on that?]?
Sorry for so many questions all at once, but I feel like there is a lot of misinformation out there and I would really appreciate if the community/forum members could share their views.
Thanks
Tommyboy
I was recently diagnosed with severe aortic stenosis and regurgitation (actually a month ago).
The funny thing that I am quite an active guy, am 33 and have never ever felt any symptomps. I used to do ski racing when I was in college and my wife and I regularly Ski/ DO long hikes, etc.
I have never ever felt any symnptomps (apart from over 4000 meter in the mountains, but a lot of people get short breath then).
So I went to the cardio because my doctor wanted me to see him to complete some medical forms and they told me that I will need an aortic valve replacement operation.
Ever since I have been trying to do research on my options.
To be clear I am optimising with respect to only two parameters ==> maximising longevity and avoiding another OHS (first one is already sort of freaking me out).
So, I am 33, and I understand that there are three options:
1) Mechanical heart valve
==> I.e. This seems like the most durable option. ==> But the possibility for stroke/bloodclot and the high perceived risk for that scares me a bit.
I do not mind adjusting my behaviour/diet accordingly, though I am very much a creature of habit: I tend to keep my diet pretty constant over time and happy to give up alcohol and skiing completely if necessary.
But the stroke/ bloodclot risk is non-trivial to me. They say that there is 1% risk per patient year, and at my age (if one plans living into their 90s (my grandparents lived that long so I am planning too)), there is a 50% chance of an event (stroke/major bleed) with mechanical valve.
But I heard that the ON-X valve may somehow generate less bloodclots/ strokes? is that right?
And would anyone mind commenting on here, whehter they experienced Bloodclots, TIAs or strokes and whether they were alright afterwards?
[I.e. are these events really as frequent as the data suggest?].
2) Ross Procedure
I understand that Ross is quite a complex operation because it involves a switch in heart valves.
Some of the surgeons I met with said that it could possibly be a life long solution?
But is that claim correct?
Does anyone know of any statistics on how durable that procedure is?
[Ie. could I expect to live with this for 40+ years?]?
3) Homograft.
Any ideas on how durable Human Tissue valves are would be really appreciated?
[IS there any information on durable Human Tissue valves are?]?
[or any statistics on that?]?
Sorry for so many questions all at once, but I feel like there is a lot of misinformation out there and I would really appreciate if the community/forum members could share their views.
Thanks
Tommyboy