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O

Old Hippie

Sorry, been really, really depressed and the holidays didn't help.

Update for those that remember me:

Doc said I needed a mitrial valve replacement or repair. Referred me to the thorasic surgeon. Ran a bunch of the usual test, heart cath, nuclear stress test, xrays, echo, etc.

Went to check into the hospital at 2pm for surgery the next morning. They immediately called me into the back with the surgeon and he said he was reviewing my test and pictures for the following morning surgery and one of the test results, the injection fraction said 20%. He gave me a 50/50 chance of getting off the operating table and he said he wouldn't do it anyway. He didn't think the 20% was correct anyway.

But, to be safe, they canceled the surgery and about a week later I had another cath. done just to recheck the injection fraction. Came back at 32%. Surgeon bumped the mortality up to only 75/25 or 3 out of 4 change to get off the surgery table but he said he would do it. I said no, the odds were better but not that good.

He said "let's wait". He said that because I am non-symptomatic and ambulatory, no need to shoot the horse before he's laying down. I'm to start seeing him on a regular basis.

Non-symptomatic meaning I don't have any fluid building up in my lungs or feet. I don't have any chest pain (angina), etc. Ambulatory meaning I take care of myself, cook, even cut the grass (electric start riding mower).

I have no plans to get another opinion. I paid a company that does doctor background checks and his came back as stellar. rated 9 out of 10 (above average) in his field. Duke Medical education. Even was a professor at a medical collage before coming to the VA a couple years ago.

Also, he does not know if repair or replacement until he is "in there".
 
Sorry to hear of the troubles. Problem is, it's only going to get worse until it does kill you. The ball is yours and it's your call. Sorry I don't have more to offer.
 
If you wait until things get worse, then your odds may never go up and could worsen, and if you survive the surgery, you might have a much more difficult recovery and perhaps not as good a recovery as you would have if done prior to very poor health. You may have a better chance at a good quality of life if you get it taken care of before the "horse keels over" Why take that chance?

My guess is that your symptoms have deteriorated so slowly that you have become accustomed to feeling that way, and may have unrecognized symptoms.

There is a real need to have a heart to heart talk with yourself about what this excellent surgeon has told you and try to get in tune with how you are really feeling in comparison to others around you.

An ejection fraction of 20 or 32% has got to feel pretty bad.
 
I'm GLAD to see that your Surgeon had the WISDOM to cancel your scheduled surgery until YOU and HE had a Better Understanding of your condition and the prognosis.

For COMPLEX situations, I have come to be a BIG BELIEVER in Multiple Opinions. I have learned something new from every Cardiologist and Surgeon I have interviewed in the course of my Heart History.

Most of the time, I favor the "Sooner is Better" approach BUT that also goes along with an 'INFORMED CONCENT".

MY definition of Informed Concent is where the patient
1 - Understands His Condition
2 - Knows the Options
3 - Understands the Risks of Each Option
4 - Understands the Prognosis of Each Option

I wish this were the case for one of our newest members who is rushing into surgery without fully appreciating her situation and options (IMHO).

I encourage you to explore your options, seeking someone experienced with High Risk Surgeries. Perhaps someone at Duke or Emory, or UAB (Dr. McGiffin comes to mind).

Think of this as adding on to the sage advice already offered and not denegrating the first surgeon in any way. His caution and thoroughness is a credit to his record.

'AL Capshaw'
 
OH,

I don't have any advice for you, but I do send thoughts/prayers your way.....



Cort:34swm."Mr Monte Carlo.Mr Road Trip".pig valve&pacemaker
WRMNshowcase.legos.HO.models.MCs.RTs.CHD = http://www.chevyasylum.com/cort
"I'll be with you" ... Cheap Trick ... 'The Flame'
 
Hippie, thanks for the update, its good to hear from you.
You must realize that the longer you wait for surgery, the more you will deteriorate. I agree that you have probably gotten used to your symptoms and are just coping well enough for now. I was in total denial before my surgery and justified my symptoms as "just getting older stuff". When I ended up seeing a second cardio for a stress echo, she let me have it: "if we do this stress test there is a good chance that you will die."
So, I cried and called back my surgeon to book the OHS.
I'm not back to "normal", but I'm alive and can finally breathe freely.
Hippie, you may just feel better after a discussion with a second surgeon, you have nothing to lose,
only something to gain.
 
Hello.

I am sorry for your frustration and emotional let down caused by your medical evaluation.

If it were me, I wouldn't care if the first surgeon was a Nobel Prize winner...... I'd get a second opinion. Please consult with another surgeon. I think you will feel better (even though the answers may be a duplicate of what you've heard) knowing that your situation is what it is. Doctors network and have varying skills and varying experiences...you just never know.

Please take care.

Best wishes.

Marguerite
 
What meds do they have you on? My son is on a lot of meds to help his EF. Most notably Coreg. There is a lot of life with an EF below 45. Please don't give up!!

I second the 2nd opinion. I am a big believer in more info.
 
Try looking at this from a different angle, you were in hospital about to have surgery and he called it off.

Had he not been so thorough you could have had the surgery already.

I read your profile and you certainly seem to have been through the ringer with 5 previous heart attacks so i can understand a surgeon saying you have a 75% chance of survival, they are only covering themselves.

As you say, you think he is a good doctor so perhaps if you went searching around for another doctor to get an 80% or 85% would that mean you'd found a better doctor or one who perhaps does not understand the risks as well as the first.

You are in a tough spot so my thoughts go out to you while you are making your decision.....but remember the mantra that most of us roll out from time to time when discussion the relative merits of mechanical/tissue...."the only poor decision is no decision at all".

Regards
 
yes, of course we remember you. I am sorry to hear you are having a really bad time. I have no advice; I support and wish you the very best in times ahead. Blessins...........
 
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