Trinityheart8891
Well-known member
Hey guys!
I just wanted to update you all and let you know I've been lurking alot, but not really posting. . .
its been a crazy start to the year. I've been very busy and most of it is non heart related! Everything has been going pretty well, I am very happy that I continue to have no new heart related issues to report (yeah yeah the same old stuff applies, but I continue to learn to deal with it and work around it, I learned last fall that I was pretty anemic which was exacerbating my symptoms big time and has somewhat resolved with oral iron replacement, still an issue though that is being followed)
I am also happy to report I am in my first major (VERY major) long term relationship! This is very new to me, we had alot of stuff to work through in the beginning related alot to my fear of/not expecting a guy to want to commit/deal with the CHD issues, but he's a keeper! He's totally been there, and wants to be there for me. He's into learning about my heart and what implications it has on us, and is planning on going to my appt in Boston in April. We're going to have the "can we have kids" talk with them. I dont expect us to be having kids right off, but this is his big question/concern related to my heart issues. I fully expect a yes, but also sort (maybe) of expect a possible big workup and maybe them saying "we need to plan this well, may need to fix some things first" kind of response as far as my valve issues go, but that depends on how things are progressing. I am having my first cardiac MRI this time, so I am kind of nervous, but excited that they will get an awesome picture and be able to delineate some things (esp the ?VSD patch leak and ?aortic aneurysm risk) which will put us in a better place to answer the "kids" question ultimately. . . does anyone have any ideas related to this? (see below for my diagnoses)
We've been working on figuring out Birth Control, so far the last pack of pills I was on (was on my 2nd round, its a 90 day pack, seasonale) was causing lots of issues with irregular bleeding/spotting/VERY heavy periods, so recently I've switched to Ortho Tri-Cyclen by my GP's Nurse Practitioner, and I'm hoping this is a better choice. . . My Boyfriend wants to use a condom till we go to boston, to make sure pregnancy isnt an issue in the meantime, so I dont have to worry anyways, but I'm still concerned. My cardio had no reservations on what birth control method I use. My other option given to me by my GP's NP was Mirena, especially in light of the heavy periods on seasonale and my anemia. If this pill doesnt work I think I am going to try Mirena, does anyone here have any experience here with seasonale/ortho tri-cyclen/Mirena or any other ideas? I havent heard much on Mirena in ACHD patients, but ultimately if it will decrease my periods the way it does many peoples I hopefully will be able to increase my blood counts more than I already have. I'm guessing there's an infection risk, right? did you have to take pre-antibiotics before if you've gotten one? Any other advice related to this?
Thanks in advance!
I just wanted to update you all and let you know I've been lurking alot, but not really posting. . .
its been a crazy start to the year. I've been very busy and most of it is non heart related! Everything has been going pretty well, I am very happy that I continue to have no new heart related issues to report (yeah yeah the same old stuff applies, but I continue to learn to deal with it and work around it, I learned last fall that I was pretty anemic which was exacerbating my symptoms big time and has somewhat resolved with oral iron replacement, still an issue though that is being followed)
I am also happy to report I am in my first major (VERY major) long term relationship! This is very new to me, we had alot of stuff to work through in the beginning related alot to my fear of/not expecting a guy to want to commit/deal with the CHD issues, but he's a keeper! He's totally been there, and wants to be there for me. He's into learning about my heart and what implications it has on us, and is planning on going to my appt in Boston in April. We're going to have the "can we have kids" talk with them. I dont expect us to be having kids right off, but this is his big question/concern related to my heart issues. I fully expect a yes, but also sort (maybe) of expect a possible big workup and maybe them saying "we need to plan this well, may need to fix some things first" kind of response as far as my valve issues go, but that depends on how things are progressing. I am having my first cardiac MRI this time, so I am kind of nervous, but excited that they will get an awesome picture and be able to delineate some things (esp the ?VSD patch leak and ?aortic aneurysm risk) which will put us in a better place to answer the "kids" question ultimately. . . does anyone have any ideas related to this? (see below for my diagnoses)
We've been working on figuring out Birth Control, so far the last pack of pills I was on (was on my 2nd round, its a 90 day pack, seasonale) was causing lots of issues with irregular bleeding/spotting/VERY heavy periods, so recently I've switched to Ortho Tri-Cyclen by my GP's Nurse Practitioner, and I'm hoping this is a better choice. . . My Boyfriend wants to use a condom till we go to boston, to make sure pregnancy isnt an issue in the meantime, so I dont have to worry anyways, but I'm still concerned. My cardio had no reservations on what birth control method I use. My other option given to me by my GP's NP was Mirena, especially in light of the heavy periods on seasonale and my anemia. If this pill doesnt work I think I am going to try Mirena, does anyone here have any experience here with seasonale/ortho tri-cyclen/Mirena or any other ideas? I havent heard much on Mirena in ACHD patients, but ultimately if it will decrease my periods the way it does many peoples I hopefully will be able to increase my blood counts more than I already have. I'm guessing there's an infection risk, right? did you have to take pre-antibiotics before if you've gotten one? Any other advice related to this?
Thanks in advance!
