I hope things have improved for you and your husband. I might have missed this, but do you have somebody else in the family/friend who is supporting you through all this? It must be incredibly stressful and I know that people can get a bit dismissive after a while (in Australia it's called 'oh, she's just carrying on about it'). Do you have a work colleague/manager or if you're religious, a minister etc who could come along for support and emphasise to the drs/nurses/patient advocate how stressed and worried you are?
Please keep us informed.
Love, Allison