Tissue valves for double valve replacement?

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Mb said:
Hello:

My husband has two mechanical valves. He was told that they do not put tissue valves as replacement valves in the mitral position, if they have to replace both valves. We had been hoping then, for a repaired mitral valve, and a tissue aortic valve. It did not work out that way. Unfortunately, the leakage of these two valves masked the severity of his leaking tricuspid valve, and that remained unrepaired. It has now progressed to severe regurgitatioin. Now, perhaps your surgeon will think differently, but I thought I might add this information. - Marybeth

PS - He also said the Ross was a No Go.

Mb, I do not understand your statement about not putting tissue valves as replacement valves in the mitral position? I had both the aorta and mitral valves replaced last November with Bovine valves.

Patrick Haley
 
I'm a few days behind but wanted to say hi to Jean and Nate. My name is Wendy and my son had his tricuspid valve replaced last June and he was 15 as well. This was his second replacement. He had a mechanical valve for 9 years and now has a bovine valve.

Valve choice is so individual. The bad thing about tissue is they won't last as long but since Andrew had been on Coumadin all those years I was looking forward to giving him some unrestricted time for a while. Coumadin itself did not keep him from doing too many things but the doctors did not want him playing varsity basketball which is something he loves and wanted to do.

His surgeon was agreeable to the change in type of valve. He is a bit complex with his heart defect and his surgery had some complications. He now sports an ICD and takes more meds than he use to becuse of arrhythmia issues and post MI. He is much more restricted now than he was on Coumadin- near total exercize restriction.

He is about to start cardiac rehab and we are excited about that- It has been a long time coming.

I pray that the valves you receive will last a long time if not your whole life! It is simply amazing what can be done for these hearts. A true blessing to be living here and now.
 
Yahoo!!!

Yahoo!!!

Hey, this is nate, thank you all so much for the information and the encouragement! I'm hoping to go to a Youth Camp in Chicago after the surgery. The surgery might be June 5 and the conference is the second week in July. One of those days we are supposed to go to Six Flags, and I thought I would spend the time on the ground, watching my friends ride the roller coaster. This news made my day, thanks a ton!!
Nate
 
Probably a wise choice, Nate.............

Probably a wise choice, Nate.............

Remember, roller coasters may not always be out for you, but five weeks out from open heart surgery would definitely be too soon. Kids are pretty resilient, but try to remember not to overdo it at youth camp and make sure your cardiologist knows what you are doing. Sorry, the mom keeps coming out in me. YOu sound great. Please keep us posted as the plan develops. Hugs to you and your mom. Janet
 
Nate,Sorry to say this but, i agree w/ Janet, be sure to talk to your doctors, but they probably will say that is too soon for rollercoasters, the sternum takes longer than 6 weeks to heal. Also ask about rides w/ high G forces. Justin has different Heart defects, and the only thing he is not allowed to do is the rides w/ high G forces. All doctors are different tho and depending on the different CHd some don't want the kids to do anything that has a sign about people not being allowed to ride w/ Heart problems posted, and some like Justin are restricted just for g forces and some have no restriction. BUT that is after your body is healed (for some reason I am thinking it is after a few months post op.
BTW did you ever get Justin AIM screenname? Lyn
 
Oops on the roller coaster thing. I should have put in the caveat, "after you're properly healed." Normal healing time for the sternum is 8-12 weeks. It might be less for you, but five would be pushing it. You can ask the doctor, but prepare to end up like the Titanic on this one. ;)

However, after healing, unless there are other issues with your heart that the replacement of the valves won't fix, or you have a connective tissue disorder (which the surgeon would discover), your heart shouldn't go into arrhythmias from it, nor will the stitches in your valve loosen or come out. The plumbing is good after the fix. The only concern I would see in the future would be intracranial (brain) bleeds. However, if people were getting those from the rides, the insurance companies would shut them down, even if the states, counties, and townships didn't.

I also have to agree with Patrick Haley, inthat a double replacement with tissue valves is less common, but hardly something that isn't done. There can be many good reasons to replace both valves with tissue, particuarly reasons that have to do with other conditions the person may have that would make anticoagulants a hardship.

For Nate, the use of tissue valves would almost surely lead to too many reoperations over his lifetime. That's not true for everyone. The surgeon who said "they" don't do that was simply stating the policy he and his group may have, certainly not that of thoracic surgeons everywhere (Mr. Haley being part of the proof of that pudding).

Best wishes,
 
Lynlw said:
Nate,Sorry to say this but, i agree w/ Janet, be sure to talk to your doctors, but they probably will say that is too soon for rollercoasters, the sternum takes longer than 6 weeks to heal. Also ask about rides w/ high G forces. Justin has different Heart defects, and the only thing he is not allowed to do is the rides w/ high G forces. All doctors are different tho and depending on the different CHd some don't want the kids to do anything that has a sign about people not being allowed to ride w/ Heart problems posted, and some like Justin are restricted just for g forces and some have no restriction. BUT that is after your body is healed (for some reason I am thinking it is after a few months post op.
BTW did you ever get Justin AIM screenname? Lyn

I didn't say Justin IS allowed to ride roller coaster, he just can ride the rides were the pressure actually keep you in place like that big wheel that spins fast and holds you standing agains the wall, I can't think of the name of it tho sorry
 
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