Hi and welcome
It appears the comoumdin is manageable for you? BC of course that why I chose a tissue valve and know that has been the subject of numerous posts on VR.
Basically there are only a few corner cases where warfarin (coumadin is but one trade name, rather like saying "Ford" for cars) and in the greater majority of situations its quite managable. Indeed as you age you may find that its preferable to be on some sort of anti-coagulant to prevent strokes ...
The reality of warfarin management is reasonably simple:
- you have an INR range to remain within (lets leave aside that acronym for now) and you simply keep it in range with small *(usually no) adjustments in dose as needed.
- the INR numbers you're assigned are reasonably gracious and falling out side of those for a short time is not as critical as it once was (with older valves back in the 70's and before)
- you need to ensure that you do maintain your dose and don't skip taking your pills (much) and put in place systems (like a pill box and some alarms) to make sure you don't forget
Point 1 implies monitoring your INR levels which is done simply at home with a machine such as a Roche Coaguchek, or as a last resort going to a lab (I have been monitoring at home for nearly 10 years now, and some here on this forum even longer.
There is a lot of myth around things like foods and drinking a few beers, but they just don't bear rational scrutiny.
I have a blog post written to the managing INR here:
http://cjeastwd.blogspot.com/2014/09/managing-my-inr.html
its not specifically intended as a quick introduction but as a resource. However it begins like this:
Firstly - the good news
I wanted to say that
managing my INR myself is incredibly simple and
takes me about 5 minutes per week. Learning to use an INR monitoring machine is dead simple (a quick video provided) and (almost) any idiot can do it. If you buy strips online they cost so little that if you are an able bodied person you just couldn't consider doing it any other way.
By using the Coaguchek XS I have been essentially
free to travel as I wish (moved from Australia for a year in Finland, traveled to the UK and other places) and
more or less unbound in any way by being on anticoagulants.
As a bonus its
been really cheap, with tests costing me less than $6 per test.
In this post my main focus is on those of us who are on anti-coagulants for the fact that we have a mechanical heart valve. As I understand it there are quite a few out there who simply do not monitor their INR after their heart valve replacement, and perhaps bumble along with a fixed dose and no idea if its good or bad.
So my Valve Brothers and Sisters if you are still reading its all good news. I encourage you to go to eBay and buy a Coaguchek XS (
or simmilar) get online for strips and look after your health, for your self by yourself!
In a nut shell what I do is:
- sample my blood to determine my INR
- write that down (spread sheet, but book works)
- determine if its been over time falling or rising (a graph on a SS really helps)
- make a small adjustment to my dose if needed to correct for my INR falling or rising (usually adjustment isn't needed and its better to leave it alone, more later)
That's it ...
compared to a diabetic, life on warfarin is really simple.
some posts from here you should consider fishing through
https://www.valvereplacement.org/threads/how-long-can-you-go-without-it.887951/
https://www.valvereplacement.org/threads/can-i-drink-a-damn-beer.856271/
feel free to hit back with questions.
Whatever you decide you want when you actually have a truthful view of the facts is exactly what you should do.
Best Wishes