Results from my Surgeon appt.

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Hi runner-

I was really just kidding about the hangover thing. Most surgeons don't drink at all, and if they do, I'm pretty sure they don't go overboard and are off duty with someone else covering. They have to be ready for emergencies.

They seem like a pretty tightly controlled bunch, with little time to spare.
 
scar,what scar??

scar,what scar??

Hi Runner,

I only had my surgery last november and you can hardly see my scar now. I know my surgeon was great at needlework, but also I have been using rosehip oil on it since it has healed up (not before). I was recommended to use this by the GUCH (Grown Up Congenital Heart, here in UK) newsletter. I certainly would not worry about wearing revealing tops. All I think is that the scar, such as it is, it has enhanced my cleavage!!

Good luck with your decision about the surgery.
 
Oh Jane, now that's good to hear. :) You made my day..

I definently need more cleavage !! My ICD is pocketed so that I got alittle extra cleavage on my left **** - but my right is not equal. Perhaps I can ask the surgeon to make them balance.. I'm really not kidding either - my left is slightly larger than my right. When I got inplanted - I was running two weeks later and it just went and settled right down in there instead of up alittle - probably cause of all the pounding on the pavements. I was quite happy - you have to actually feel my **** to feel my ICD.. but the scar is up higher. I wear a bathing suit and it shows - but the most aggrevating part is wearing a seat belt - it just hits the scar and the wire leads and that's an annoying feeling. Kind of hurts. But the bra doesn't bother it. Or most bras don't. I named my ICD - **** - cause **** is what got me into all this trouble. It's a long story. I'll have to give my new valve a name. It makes it seem alittle more personal. If I get much more metal in this body - I'll be going to the junk yard when I die for extra parts..

That roseship oil sounds good. Maybe I can try it on my ICD scar - that might make it look alittle better. :)

Thanks Jane

Runner
 
Runner

Runner

Guess you have the informtion you need for the moment. I had my bypass almost 2 years ago and had to go with the St. Jude's Aortic valve. Being on the coumadin is not so bad. At least, you have time to research all your options. And to take care of yourself in the meantime. Make sure you make it to the dental checkups. Having healthy gums will prevent unnecessary infection when surgery does come up. Ask as many questions as you can think to feel good about bypass. You will be fine and have found friends here. I come when I am not too busy working or walking. Take care and welcome.

Caroline
09-13-01
Aortic valve replacement
St. Jude's valve
 
Hi Runner, I too was fairly young (44) when I had my surgery. It was a little over a year ago. I have two teenage daughters and was terrified at the thought of surgery and the dreaded scar. SURPRISE....the scar is not bad at all!! It is flush to my skin and only looks like a scratch. It is hardly even noticeable. Since the surgery I have lost 40lbs so my Victoria Secrets look even better! My husband was extremely supportive and took care of me through the thick and thin of it, as I am sure yours will. I am back to running (I have run for many years) but slowly now. I do walk up to 5 miles per day. The whole experience is scary but you will do fine. I have a St. Jude valve. If you want a buddy or just a good listener, I have been there. Now, post-op, I thank my lucky stars for my husband, two daughters and the 50 elementary school students who depend on me everyday!!!!:)
 
Hi Runner,
When I was first diagnosed with the beginning stages of an enlarged heart, due to a bicuspid aortic heart valve, one of the first things I found in reference to cardiologists and surgeons; cardiologists (in my case) tended to lean on the 'wait and see' side of the fence, where as my surgeon said, "Look, your heart is only going to increase in size with time, and if you wait much longer, we may have a hard time fitting a valve. The technology is their, and with proper INR checks, you can, live a more complete life, or do nothing and be miserable with fatigue, that is not going to get any better by waiting." The fact is, if I would have waited for my heart to enlarge even more, Lord only knows the complications I would have faced later. He (the surgeon) wanted my surgery done within 4 to 6 months, or damaged muscle tissue from the enlargment could possibly not be repairable. I had my surgery two months after that conversation. One year later I felt so good, right at the point where the surgeon said I would really notice the difference. I had been living with fatigue for so long. 8 months after my surgery my heart had already dropped back within the high normal size range of normal heart. Is it still somewhat enlarged? Sure, but I am in the normal high range. Imagine where I would have been if I would have waited. January 2000 I had my surgery, (St. Jude Mechanical Aortic Valve) January 2002 I started running, and 9 months later ran a marathon.
Mark's opinion ... cardiologists need to look at the results. Mine were in good faith, too cautious. No good would have come from waiting, but further deterioration with time. Again, as I said above, in 8 months my heart was reducing in size.
Time and again on this web site, I have seen that sentiment echoed. In my finite mind; and I am certainly no doctor; I don't understand the wait and see approach doctors, and my cardiologists, initially took when they first determined what the problem was. It may be the coumadin thing, and being the fact I was only 40 years young? In my case the surgery was the best thing that ever happened, and allows me to have a full quality filled life with my wife and children. This is your heart where talking about ... feel no shame in second or third opinions.
Think of this as a race. Your surgery is the training ground. With a kick butt attitude, and the great support you have here and at home with your husband and family, in time you will be back racing all the more sooner. My surgeon said with technology their is no reason not to take care of this. Is their risk? You bet, but the question is do you want quality versus say retiring to the sofa?
In any case, your in my prayers. It is a tough decision, and your the only one that can make it. For me it was the best decision of my life, and in a positive way, life changing. This year alone I have run roughly 8 races, from 5ks to 12ks. I say this not to pat my own back, but that you may know it is not over, and their will be lots of pavement to pound in the future!
Good luck and feel free to write anytime. ... Mark :cool:

PS About the scar. It is amazing how good they are now. Sure you see it, but not the scars from surgery 20 years ago. I have a hunch your husband will think your sexy with that scar. My wife has a scar because last year they had to take an overy and a fallopian tube. I look at that scar and as Ross said, for me I am thankful I have that too look at. ;)
 
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