potential New Member Seeking info on Marfans

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LUVMyBirman

Well-known member
Joined
Jun 16, 2001
Messages
3,340
Location
Chicago, IL
We have a number of members with Marfan's. Friend of the family has a child with Marfan's. (He may join VR.com). Seeking information and support, etc.

Anyone aware of a group similar to VR.com for general Marfan's support/info? I am not certain if there is heart or valve issues at this point. In which case...VR.com would be a great resource. I will be forwarding this thread via email to the family. Hoping it will be chock full of useful links!;)

Thax.:)
 
The marfan site is very good and they also can direct them to a local chapter that would have support groups, etc.
 
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