LUVMyBirman
Well-known member
We have a number of members with Marfan's. Friend of the family has a child with Marfan's. (He may join VR.com). Seeking information and support, etc.
Anyone aware of a group similar to VR.com for general Marfan's support/info? I am not certain if there is heart or valve issues at this point. In which case...VR.com would be a great resource. I will be forwarding this thread via email to the family. Hoping it will be chock full of useful links!
Thax.
Anyone aware of a group similar to VR.com for general Marfan's support/info? I am not certain if there is heart or valve issues at this point. In which case...VR.com would be a great resource. I will be forwarding this thread via email to the family. Hoping it will be chock full of useful links!
Thax.