Possible Surgery ??

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Hi Runner:

I, too, am a 47 yr. old "runner" - really a jogger, but I've done a half marathon, many 10ks, was really into jogging, doing 50 mile weeks, and using jogging as my weight control since I was 20. In '84 shortly after I had my 1st child [I was 29 at the time], the OBGYN's assistant asked me if I had ever been told I had a murmur. No way, I am fit, I run all the time. She dismissed it as a common murmur, often seen in pregnant and breastfeeding women. 5 years later I thought I was overdosing on coffee because I drank a lot of it and began to find it hard to sleep because my heart felt like it was doing sommersaults and backflips in my chest when I would lay down at night. That cardio. doc took a chest x-ray and that was the 1st time I found out the right side of my heart was enlarged. He thought I might have mitral valve prolapse and possibly a hole in my heart. Off to have an echo and a heart catheterization. No hole, so the diagnosis was mitral valve prolapse. The enlargement he said was due to my exercise. I had another 2 pregnancies and continued to jog, but slowly over the years I couldn't go as far as I used to. In my good years, I'd jump out of bed and hit the treadmill and feel invigorated after 8 miles, would think, yes today I'll go 10 miles. But I was finding it very hard to go the distance, chalked it up to age, weight gain because of decreased distance, 3 kids, working full-time. In 2001, at a routine physical, my GP suggested we do another echo just to make sure the enlargement hadn't changed. And the lab tech. said to me, have you ever been told you were a blue baby? Have you ever been told you have Ebsteins? No cardio. docs in Alaska who deal with ACHD, so referred to the Mayo. Tricuspid valve replacement is inevitable in my future, and pig valves only last so long. Am going to be 48 in November so could be facing 2 of these surgeries, maybe 3 in my lifetime. I expect to live a long time.

To make a long story short. The enlargement is not due your level of physical activity, it is from the valve. And, yes, you feel great now, but that can be deceptive.

I am still fairly new to this site. And as a warning, you will read some scary stuff. But I feel there is a lot to be learned here and the support you find will be helpful.

Welcome.

Peg
 
Hi Peggy, thank you so much for your welcome post.

Part of me wants to think its my exercise and even before my echo - right after my catherization - he thought my enlargement was my exericse - but now with the echo - he says no its from my heart attack as that's approx where I had the damage. So I'll go with his expertise.

It sounds like you've got quite a history with valves over the years. You've done very well - gosh I can't imagine having 3 kids working full time and doing this heart stuff as well. I know its scary - unfortunately I've been down this 'scary' road many times. I tend to 'laugh' when I'm scared. This all hit me about 2 weeks ago and I cried for a full week and then once again decided not to feel 'sorry' for myself - but pick myself up - study on it and get informed and try to remain 'focused' - I'm sure as a runner - you know how 'focus' helps us to deal with 'thing's. I can't imagine myself getting sawed in the chest. I don't know if I would qualify for the 3" surgery - I'm afraid to go to someone other than my hospital - but my hospital only does open heart and does not offer the keyhole. So, I'll have a big decision to make if I should qualify for the keyhole. Trust is a very big issue for me.. But the 3" surgery is much less invasive and a much faster recovery - if I qualify. I don't know - I still need to study this area more. I wonder if anyone can shed some light on that. On one web site that offered it - it said: "for patients without coronary disease" so I wouldn't qualify under their guidelines. But that's just one hospital. I wonder if there are hospitals that would do the keyhole with coronary disease. Even if they did I'm not sure I would feel 'safe' letting some hospital other than the one I go to do it. This is still so relatively 'new' to me - its only been two weeks since I was told all this. I never received my results in February for that echo - only after my July echo - did I find out all this. I know I'm lucky that it was even diagnosed - if I hadn't gone recently to this new doctor - I doubt it would have been diagnosed for many more years. My old cardiologist never monitored me. But my new one is thats for sure and I'm glad he is. I feel 'safer'.. I'm so glad I found this site and I've been reading the posts for several days and felt 'safe' to post myself. I can't believe how many 'exercise' people there are and so many young ones. There are a few young ones with ICD's. I even saw one person on this board has a pacemaker - I wonder if there are any with ICD's?? What a small world and thank god for internet. I'm so glad to have the 'support'.

Thanks Peg

Runner :)
 
If you haven't done so already, check the links out from our links page. There is a wealth or information there alone. I would also recommend that you take a look at www.warfarinfo.com the site is run by Al Lodwick who is also a member here and is a certified anticoagulation specialist. He has his own Coumadin Clinic. His site will blow you away with information about Coumadin/Warfarin.

http://www.valvereplacement.com/links.htm
 
There is no pain at all when the nurse pricks my fingertip to take a drop of blood.

Last summer my cardiologist and his wife, who is also a cardiologist, gave a lecture to a hall full of heart patients, almost all of them CABG patients. One of the subjects that came up was sex after OHS. He made it quite clear that there was no prohibition at all, that the increase in heart rate was minimal, nothing like being on a treadmill.
 
Runner:

This keyhole surgery sounds pretty good.

Does anyone out there have information on this? Can it be used on the tricuspid valve?

Peg
 
Oh Thank YOU Ross and Jim. I've marked the warfin web site and will check it out on Monday morning. I only have internet at work and not at home - and its almost quitting time. I've been very lucky that today was slow so I could post and read all your comments. I can't wait to get home and tell my husband - he will be so happy for me. Jim - thanks for the sex information - I could never go without that. My husband and I will be married 31 yeaars next Tuesday - August 12th.. :) I love him dearly and he's been so supportive through all this.

But I have to tell you on one interrogation of my ICD - my electrician saw all the 'event activity' I had for vt's and just smiled - you know he can go right into the 'event' and see everything. I was so embarassed.. One event was a Friday night at 8:30 - I told him it was the 'wine' and he just smiled and said well lets go into it and see for sure. He smiled and said - wine doesn't do that !!! He's a nice doc and makes me feel comfortable - he has a sense of humor - thank god. Of course I teased him first - on my programming I told him I wanted 8:00 minute miles !! He just got flustered and said - I can't do that !!! I said: Sure you can.. :) Technology - don't you just love it - I probably wouldn't be alive without it and it gives me so much hope for the future. :)

See ya on Monday and thanks everyone
Runner
 
The enlarged heart tells the docs that your leaky valve is effecting the heart. I also have a mod to severe leaking mitral valve and have an echo every 2 years. When it starts to enlarge, I'm sure surgery will be recommended. When I had my 1st AVR, my heart was enlarged, valve regurgitation and aneurism as well. The enlarged heart told my docs that the heart was being effected and I had surgery. My heart size went back to normal.
I now take a type of ace inhibitor, Cozaar, which has been shown to take the stress off the leaky valve and to prolong the time before surgery is needed.
 
I'm still waiting

I'm still waiting

Hi Runner,
I just found out that my mitral regurgitation went from moderate to severe to just "severe" or +4. In my case my left ventricle and ejection fraction is still in the normal range. My ejection fraction is 65%. My left atrium is slightly dialated. I was told to return in 6 months. Unless I should feel short of breath. I've been having seeing a cardiogist for on a regular basis since 2000. I take antenonl 50mg 1x a day and Accupril 20 mg 1 x a day.
I'm hoping for a repair when the time comes. I'm 43. Actually I've known since I was about 10 years old that I had a heart murrmur.

They say its best to have the surgery before symptoms begin. Its good you know now about your condition. Often people find out in the emergency room.

Nice meeting you and you'll find this is a great place to learn from others that have been there. ;)
 
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