Please Help get CHD Awarensss Bill passed

[Lynlw]

Hi, Since many of you are here because of Congenital heart defects and know many others affected by CHD I hope you will help me get this bill passed. Here is a copy of the email about it and in the next post I'll post the HR incase anyone wants to read it, Thanks Lyn

Hi, We are once again trying to get Congress to pass a National CHD Awareness week resolution.
My Congressman, Representative Robert Andrews (NJ) has introduced House Resolution 858,
"Supporting the goals and ideals of the National Congenital Heart Defect
Awareness Week". You can read the resolution here:

http://www.govtrack.us/congress/billtext.xpd?bill=hr110-858


Please contact your representatives and ask them to sign on to H.Res 858 as
co-sponsors and we'll get this resolution passed this year!

To contact your representatives, start here:

http://www.house.gov

Enter your zipcode into "Find your Representative" at the top left. Once
you've done that, go to their official website (a link will be on the page)
and send them an email message asking them to support H.Res 858.

Feel free to pass this on and ask your friends and family to help. The more
the better.

Thanks, Lyn
Justin 19 TGA,VSD,PS www.caringbridge.org/nj/justinw

 

[Lynlw]

Mr. ANDREWS (for himself, Mrs. MCCARTHY of New York, Mr. BISHOP of Georgia, and Ms. SUTTON) submitted the following resolution; which was referred to the Committee on Energy and Commerce


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RESOLUTION
Supporting the goals and ideals of the National Congenital Heart Defect Awareness Week.

Whereas congenital heart defects and diseases (`CHDs') are the most common of all birth defects, affecting 40,000 newborns in the United States each year;

Whereas CHDs are the number one cause of birth defect-related deaths, and many children and adults die of congenital heart defect complications due to the severity of the defect, failure of early diagnosis, lack of heart transplant donors, and insufficient knowledge of medical intervention options;

Whereas there is still no known cause of CHDs and, therefore, no identifiable way to recommend preventive measures during pregnancy;

Whereas there are more than 35 recognized heart defects and diseases that may present as congenital cardiovascular malformations, a disorder of the myocardial function, or a disorder of electrical conduction;

Whereas the causes of and most of the treatments for CHDs are distinctly different from acquired heart disease, necessitating specialized research and medical treatment that reach beyond the scope of acquired heart disease;

Whereas despite the strides that have been made in understanding and treating this disorder, more resources are needed for education and research to meet the needs of patients and their families;

Whereas not addressing the care of adults with CHDs and the lack of research and physicians specializing in this area will eventually create a medical crisis for these adults as their medical needs grow;

Whereas raising public awareness will alert parents and physicians to the symptoms of CHDs, thereby prompting them to seek specialized medical care in a timely manner and saving lives;

Whereas those who have lost their battles with CHDs, and those who continue to face the medical and financial constraints placed on CHDs survivors and their loved ones, deserve to be recognized and commemorated;

Whereas each year the Congenital Heart Information Network recognizes February 7 through February 14 as National Congenital Heart Defect Awareness Week; and

Whereas medical professionals and researchers who seek to learn more about the development of the heart to find innovative methods of treating CHDs, and to improve the quality of life for survivors, should be recognized and honored by our thanks and increased funding: Now, therefore, be it

Resolved, That the House of Representatives--

(1) supports the goals and ideals of the National Congenital Heart Defect Awareness Week sponsored by the Congenital Heart Information Network;

(2) supports efforts to reinvigorate research on congenital heart defects and diseases (`CHDs') through increasing funding for such research, thereby attracting the best and the brightest researchers and physicians to the field;

(3) supports the education of parents and the medical community on CHDs symptoms and on the importance of newborn screenings for such symptoms, which may potentially save and improve the lives of countless newborns, children, and adults;

(4) encourages awareness of the often life-long medical, financial, and emotional toll faced by CHDs victims, survivors, and their loved ones; and

(5) requests that the President issue a proclamation for all Americans to acknowledge, celebrate and honor CHDs survivors, families, medical professionals, and researchers.