News of Peter's surgery

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Best Wishes

Best Wishes

Dear Naseemeh ~ Please tell your dad that I have been checking in on him and am SO HAPPY he is on the "other side of the mountain" now.... Tell him my dad (Charles) also made is through today (Wednesday) here at the Cleveland Clinic. We have much to be thankful for.... our dads have been given such a gift !!
Thanks for keeping us informed. Prayers for your entire family...
Cindy
 
Hi Naseemeh - so happy to meet you. Thanks for stopping by to take a few minutes to update us about your father. He's a really good guy and has been so helpful and supportive to all of us who have had or will have surgery. It has come his time now and it is such great relief to us to know that he has climbed the mountain and is now over on this side and safe again. We are privileged to have him among us. I know you are proud of him as he is of you and your brother.

Peter, you just take it easy and recuperate in your own time - don't do nothin we didn't do!! You are on the right road again and we wait anxiously to hear from you. God bless
 
Yet another wish of good will....

Yet another wish of good will....

Peter,

You have an amazing support group here- Family and friends!

This is just one more wish to your hasty recovery. We expect to be hearing from you in a week or so........

Take care, and hope all is going as planned....

Deb ARkoosh
 
AWESOME

AWESOME

Thank you Naseemeh.
It is great of you to take the time to let strangers know the good news of how your father is doing.
Great to hear Peter's surgery went so well.

God Bless,

Ben
 
Peter's doing great!

Peter's doing great!

Was at work yesterday afternoon in ICU and
saw Peter being moved up to Shands heart floor. I
knew it was him because on his bed were the copies
of these posts that I had given to a nurse to
give to him in the morning. He looked very
relaxed yesterday, and I did'nt want to disturb
him so I waited till today to pay a visit to my
newest heart buddy. He looked great and had his
big red heart pillow by his side, along with his
very nice wife. Talked to Peter for a while and
he is ready to get out and get on back home. He
and his wife are really nice people.
Also talked briefly with Steve in Florida at
Shands and he was going to pay Peter a visit
today also. Peter says we could start a N. Florida
chapter of VR.com! Steve was looking real healthy
today also. Take care, Mike in Florida
 
Home again

Home again

Hi folks --

I'm home from the hospital in pretty doggone good shape, all things considered, though I am still on my hospital bio-rhythms, I guess: daylong catnaps, but not many long stretches of sleep, given the regularlity with which the (very friendly) medical personnel come around to get something from you or give something to you, if only data. We drove back to Tallahassee from Gainesville yestereday afternoon, so overall I ended up spending about 5 and one-half days hospitalized from operation through release. It was a day longer than we originally anticipated, because I had some atrial fibrillation -- or at least a seance of heightened pulse rate -- late on the third and fourth days, so they wanted to make sure that the condition had ironed itself out. Then also there is a leetle bit of the flip side of the "day for surgery" issues raised a few weeks ago in this forum. People remarked there that, other things being equal, one might want to avoid weekends, due to prevalence of intern, fellow and second-team personnel at those times -- good folks all, I am sure, but probably less experienced on the average. The flip side, I discovered, is that if you go in early in the week and envisage relatively rapid release in a 4-6 day time, then that decision also falls on a weekend...!

Will add some notes about the experience later, as my bio-rhythms straighten themselves out, but I felt blessed with the staff and service at Shands. The surgeon said I pretty much took the cake for stenosis -- there just waren't much space left in the ol' valve for blood to sneak through, it appears, this despite the fact that I continued to have relatively mild symptoms, no extremely pronounched breathlessness or weakness, etc. In any case, the valve replacement seems to have been a success, the operation maybe four hours in length, and I got a number of complements on the artistry of the scar. (I couldn't see myself without craning my neck in impossible ways or going for a full frontal view in the washroom, which I tended not to do.)

It was wonderful to have Mike and Steve W. drop by for a a visit a couple of days after the operation -- thanks to you both! And thanks, Mike, for bringing by a copy of the thread. Whether because of a slipped communication or general pumpheadedness, we couldn't figure out later who had brought it, since Naseemeh (and Naveed) ended up not visiting before my release. But it was much appreaciated. One feels part of a company of saints or at least a cloud of witnesses going though this thing, and that is definitely comforting. Hope things go as well or better for those like MaryBeth with loved ones presently undergoing a procedure.

More as time and energy permits,

Peter
 
Great to hear from you Peter

Great to hear from you Peter

It is wonderfull to hear you are feeling well.

Don't push recovery to fast. Get yourself up and walking and slowly work towards the Phase II Cardiac Rehab, I enjoyed it. It gave me confidence back after the surgery and a couple arrythmia's.

Godd Bless,

Ben;)
 
Hi Peter

Congratulations on getting to the other side of the mountain. You have really managed to mobilise a huge amount of interest and support here and that's really what this support group is all about.

Also, great to see the involvement of your family - you are obviously a close-knit family.

Well done and I look forward to seeing the movie when it's released.

Your Aussie mate

Gerry......and......

GUESS WHO WON THE US OPEN TENNIS?????

AN AUSTRALIAN, no less !!!!!
 
Welcome back Peter!

Welcome back Peter!

Hello Peter,
Glad to see you made it back home and on the
road to recovery! It was a pleasure to meet you
and your wife at Shands. Sorry I did'nt mention
bringing the thread copies to the ICU,(kinda
sneaked in and handed them to a nurse). Take it
nice and slow and enjoy your time off, keep in
touch.
Mike in Florida :)
 
So glad to hear from you!

So glad to hear from you!

Hi Peter!
What a nice surprise it was to see your posting and to hear that you are home. I'm so glad wverything went smoothly. Wow! A Hancock Medtronic porcine! Joey will be going in this wed,9/12 for a RP with DR. Stelzer. We are both very comfortable with this decision and feel Joey will be in good hands. His cath showed no coronary disease whatsoever, which all other things being as they should, makes him a perfect ross candidate according to Stelzer. Now we need the next 2 days to pass quickly. (Knowing we will nedd a back-up plan, incase, Dr. Stelzer likes the Medtronic Freestyle).

How did your kids do throughout this whole thing? How old are they?
I _being the worry wart that I am_ am concerned about how our girls (14, 17 and very close to Joey & I)will fare.
I guess I'll just try and keep their lives as normal as possible.

I'm sure I speak for everyone here, it's good to have you back. Please take it easy and rest up.
Wishing you all the best and a speedy recovery.

-Sylvia
 
Hi Peter!

As I suspected, you would be gone from here when I got in today.

I truly enjoyed visiting with you and your good wife last Friday. You looked great--definitely a champ at this on your first outing!

I think you definitely made the best choice for yourself on the valve. It's amazing how your choice unfolded so dialectically there at the end. Whenever you have a hard choice between two options, why not find a third option that's better than both!

Don't worry about the sleep patterns. It took me weeks to get back to a regular rhythm. I was 3 hours awake/3 hours resting for a long time. It's not just from being in the hospital with so many interruptions, I don't think. Rather, I think a few hours is about all your body let's you be alert and active before it poops out, and then on the other side your body's too uncomfortable to rest for very long beyond relief of your fatigue.

In any case, don't push it as Ben said, cause your body will just readjust when it's ready.

Take care and my congrats again to you and your family for so ably conquering the mountain and joining us on the other side.
 
WELCOME HOME PETER

WELCOME HOME PETER

Peter..its so great that you are back home again and feeling reasonably well :)
Each time I read that someone is on the otherside of the Mountain and home again..It gives me more and more confidence that I can do it too :)
We still haven't decided if my surgery will be at Duke on the 21st or if we will go to Cleveland..We MUST make a decisin in the next two days.to commit to one or the other..this is the toughest dicision I've ever had to make!! It will be such a relief when I finally decide!
I'm sure that your sleep patterns will return to normal in a while..all in all..it sounds like you are doing very well. I'm so glad that you are back home and on the computer again..the kids did a great job for you while you were in the hospital..but its good to hear your "voice" again.
Don't overdue!!
Joan
 
Muchissimas gracias

Muchissimas gracias

Many thanks to one and all. I'm sure the sleep rhythms will work out. Matter of fact, I have kind of cultivated the sleep-anywhere for any length of time pattern I developed when the kids were young, because it turned out to be most helpful when traveling a lot by air -- so I feel quite at easy with the catnap solution.

Best of luck with your choices, Joan. The good news, as I see it, is that are nearly no bad choices out there that I can see nowadays. Sure, in ten years other strides will have been made, but we have come a long way, baby, and a rising tide of medical technology and artistry has really lifted all boats. So we just use the best counsel we have and make the choice our own.

Sylvia, we've got no patented formula for the kids. In fact, the computer correspondent gambit was in part a way of keeping our budding teenager, Naseemeh, involved at a level to which she could relate (and she does such things very well). But after the first phone call home from the hospital and my wife's first responses to questions about checking out the Mall or going to the FSU football game, it was evident that her mind was well occupied!

Am going to resurrect the "Making the choice" thread one last time to sort of close the story out.

Best (and most gratefully) to all,

Peter
 
Peter,
so glad to hear you are home and resting.I am wishing you a speedy recovery. think of it as extra time w/ your kids!

you have help me a greaa deal as i have not had surgery yet and am researching all my options for when the days comes. I am lucky to have the oppurtunity.

best wishes to you and your fam.
 
Bravo Peter!

Congrats on having such a successful surgery and outcome. Everyone is relieved to see that you are home so soon and back to visiting on the Forum.

Take care and keep in touch.
Deb ARkoosh
 
Welcome Home Peter

Welcome Home Peter

Hi Peter:

Congratulations & welcome home!

I am delighted to hear such good news from you. Glad to see you made it through in good shape. Take care of yourself, rest up and enjoy the pampering from your family ..

Good luck with your continued recovery.

Ken
 
Welcome Home From Hank

Welcome Home From Hank

Hey Peter - So glad to hear you are home. Each time I hear of someone going through one of lifes most trying experiences and having it be a better thing because of our site, I feel all fuzzy inside.

Your experiences will be of much value to many visitors here. I hope you can jot down the pertinent things while they happen. These can be added to your story which would be a great addition to the site.

Recovery is a wonderful time. A time for diminishing pain, a time for reflection, a time when we are glad to be alive. A time to find out who your true friends and loved ones really are.

Once again - Welcome home and I'm sure everyone told you - DON'T SNEEZE!!
 
Cardia rehab

Cardia rehab

Thanks, Janie. Good counsel, too. I want to get started on cardiac rehab right away. Advice on how to go about it? (It's probably back there in a previous thread -- will look.)

More catnapping last night, but quite comfortable. Odd sensations. I really have no pain, other than what might be caused by movement and flexing of the scar. At rest I have no need of pain medication and in general am not taking any right now, except to control low-grade fever. I do feel more aware of heartbeat, however, and have the sensation, particularly at rest, of running on ethyl. It's not unpleasant and is generally accompanied by a warm feeling and -- when I close my eyes -- brightly colored tapestriesi in my mind's eye. I imagine there is one whale of a lot more blood going through that valve and out to the body now than there was a short while ago or has been for some years, when you factor in both the elimination of the stenosis and the fact that the heart got pretty muscular with all those isometrics working against blockage. I'd call it "richheadedness" (though not necessarily "clearheadedness") more than I would "pumpheadedness". Do others have similar symptoms?

I wasn't long in the ICU -- only about a day and a half. Steve W said he felt loathe to leave, he got such good service there, and I see what he means. On the other hand, I think they transferred me out a bit early, due to "traffic" pressures. In any case, once on the cardiac floor it turned out that I was having some fever and arrythmia and required more careful monitoring, so I was moved back to an intermediary type room with heavier equipment and a better bed. The bed in the ICU was a true shiny Cadillac, the one on the cardiac floor more of a reasonable vintage Chevy, and the one in the intermediary facility a pretty nice new Buick. Happily the latter accompanied me thereafter.

Takes a while to master the intricacies of a good hospital bed -- what combination of buttons to push in order to get optimal support and inclination. That is no minor question after this kind of heart surgery, because you're hooked up to so many tubes and IVs and wires that movement has to be handled carefully and there aren't infinite numbers of body positions open to you. At first, it didn't make much difference, when I was so groggy that any position would do. Happily as well I was "extubated" (breathing tube removed from throat) during that first groggy period and so experienced none of the gagging sensation or need for ice chips to alleviate thirst that others have sometimes known. But as awareness and movement perk up, the body seeks some rights and there has to be some solution for all parts and portions. (I remember a wonderful Peanuts poster with Snoopy lying on top of his dog house exhorting his body to get ready for jogging: "All right, listen here: if the feet don't go, none of us goes!")

As a matter of fact, my only mishap in the hospital was one truly exotic sports injury -- straining a muscle I didn't even know I had between the rear of my right ear and the back of my neck, all while trying to leverage myself up into a better position by skull motion without forbidden pulling or pushing of the arms. Of course there are very friendly hospital staff to help, particularly in ICU where the nurse-nursee ratio is the highest, but who's going to ask for a hand every 30 seconds?

Staff were unfailingly friendly and helpful, though not always equipped for cross-cultural contingencies. My third roommate was an immigrant farmworker from Mexico with an adorable young family, but there didn't seem to be any systematic way -- at least on the weekend -- to deal with the dual language problem, and my own Spanish is only basic. Happily my sister-in-law (Puerto Rican) stopped by and was able to lend a hand, and then -- when I wandered afield asking questions -- it turned out there were two Spanish speakers on staff within a reasonable radius (though in unrelated capacities) and they did some critical double duty. But there didn't seem to be any system in place.

Nor was there any very systematic debriefing about post-hospital home care, again perhaps because it was the weekend -- much less, in any case, in the way of preparation than at admissions. Perhaps I will get more of this at my two-week post operative appointment (next Monday) with Dr. Martin.

I am doubly admiring of the exploits of those who handle coordination and "air traffic control" in a facility like Shands and it would be fascinating for them to share a few stories and secrets of the trade sometime. It must be a monumental challenge with multiple fallback formula in place. But the cake might seem to me to go to plumbers like Mike. Can you imagine plumbing challenges in a place like Shands? Holy Moly! A brochure I picked up on some table documented the level of water usage in the facility and it is the biggest industrail consumer in all of north Florida by a country mile -- hundreds of millions of gallons of water per whatever time unit as oppposed to tens of a few paltry million elsewhere. And it's not like that's a resource you can do without. Try having the water go off during an operation. That would restore persepctive prettty quick. Being a plumber at Shands must be a bit like being an electrician at NASA in Houston or an audio technician at CNN International. Mike's war stories would have to be fascinating, but do we want to hear them?* "Houston, we've got a problem..."

Post-operative musings in any case.

Peter

* Actually I would like to hear them, having worked as a plumber's assistant for three years in my salad days!
 
Congratulations...

Congratulations...

Hi Nameesah,

So happy to hear that your dad came thru just fine...he has been a real help to so many on this site. we pray that he has a speedy recovery too!!

dorie
 
Two week post-op

Two week post-op

Thought I would add a final posting here relating the upshot of my meeting with the surgeon today at Shands Hospital in Gainesville two weeks (minus a slivver) after the operation.

I was able to drop in on Steve W down there -- who continues to look great except for a banged knee incurred in his resumption of some real active sports! -- but unfortunately missed Mike (yo buddy!).

My wife and I met for about 20 minutes with Dr. Martin. I'm basically doing fine and he discontinued a good part of my medication and transferred me back to the care of my Cardio here in Tallahassee. I have had little or no pain, other than that involved in flexing the incision by certain kinds of movement. The incision did begin to get a little discolored and broadened by the torque down at the bottom and around the exclamation point (so to speak) these last few days -- but a bit of antibiotic cream seems to have brought that under control, and I sleep bareback at night to air it out.

He confirmed that my (congenital, hereditary) problem turned out to be a bicuspid valve -- and that he had scarcely ever seen a aortic valve so thoroughly calficied. Everyone was wondering how I was still ambulatory. The thing is -- as those who have read earlier segments on this and other threads may remember -- I really had pretty mild symptoms up to the end. That leads me to ask some questions about the classic strategy that my Cardiologist was following. From the time when my condition was first diagnosed (about ten years ago after my sister underwent her operation for aortic stenosis), he said that the rule of thumb is don't do anything till symptoms appear, then act fast. Well, in my case, it would seem that symptoms weren't necessarily a good guide to the degree of stenosis.

In addition, since advanced stenosis causes bulking up of the heart muscle to push blood through the tiny opening, the consequence seems to be that I have come by a pretty muscular heart. (Something we could use for other reasons at this time of national tragedy, but not quite so literally.) He says that it should shrink back to size in a few years time. Any other experience out there with this dimension of things?

I asked about physical thearpy and cardiac rehab, and his take was "if you want." He feels cardiac rehab is mostly aeorbics and walking, and if you can follow a progressive regime on your own, that should do it. Physical rehab, he felt, should follow from increasing movement. He did say to stay off any lifting for six weeks, and driving till at least the fourth week (though the doctors who checked me out of Shands -- on a weekend -- wrote in only two weeks' hiatus from driving).

Overall, I'd say the appointment went very well, and I look forward to progressive recuperation, which I'll relate (and learn about!) over on the post-surgery forum.

I've finally managed to attach a (somewhat outdated) photo on the left. Naseemeh, your faithful e-mail correspondent during my hospital stay, is the getting-tall young lady on the right. Her brother Naveed is on the life, my wife Zohre is in back -- and we're missing Grandma, who lives with us.

Peter
 
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