New to site, surgery coming 7/30

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Snoviper

Well-known member
Joined
Jul 26, 2008
Messages
69
Location
Syracuse NY
Hi all, I was recently diagnosed with a failing tricuspid valve due to endocarditis, I was previously in the hospital back in march of this year for 34 days with sepsis and renal failure. I recovered from that but have a vegetation on my valve and it looks too damaged to fix. I may have lots of questions post op. mostly just nervous now. :(
 
Welcome:) You have come to the right place. Sorry you are having so much trouble. I am wishing you a sucessful surgery and speedy recovery.
 
Hi and welcome to the family of lots of answers and help
for you. Glad you joined and hope to see you round here lots.
ASK AWAY!!!! wishing you all the best with your surgery

zipper2
 
Hey there Snoviper, Welcome to this amazing family. Sorry to hear why you found us, but you have found the best support group on the market.

Don't be shy....ask us what ever is on your mind.
 
Welcome, snoviper. I added you to our calendar for the 30th so now it is "official" and I hope we can help you on your journey.
 
Thanks All

Thanks All

Thanks all for the well wishes, I am glad I found this site. As you all know you kinda almost feel alone before having the surgery and this helps a lot. I have two things or issues that bother me a little. One is waking up with the vent tube, that might be the hardest for me. The other is I just got out of the hospital 2 months ago and I was in there for 34 days so not looking forward to going back.
I have had knee surgery and of course my tonsils out when I was younger so it is probably not as bad for me as someone who has never had surgery. They have to go with a pig valve because they said the blood flow across the tricuspid is a lot slower and more prone to clotting. Kinda hope they could fix it but then again if the fix doesn't last long it wouldn't be any different.

Thanks again, Gary
 
Welcome!

Welcome!

Also glad you found us and I may be able to help with your questions. I am almost 3 weeks Post-Op and I had a BIG fear of waking up with the VENT Tube in. Here's the thing. They have you SOOOOO doped up that you will hardly know who you are, let alone that there is a tube in your throat. I remember them saying "DON"T CHEW ON THE TUBE" and intentionally inhaling to show anyone that may be paying attention I was able to breath on my own.(Sounded kinda weird to hear the vent playing catch-up with my breathing) Then I remember someone telling me to blow out when they pulled it out. That was NOT a big deal either! I was in recovery for about 17 hrs. They had me up and in a chair, TWICE, my family came in to see me, my doc and his PA came in, lots of other stuff happened AND I DON'T REMEMBER BUT 30-40 MIN OF IT! I don't even remember being moved to a regular room. I was TOTALLY sure I had been moved to a regular room in the wee hours of the morning. My wife says it was about 10 am and she was there. Basically, you will loose almost 2 days and come out with a fixed heart!
I know this doesn't help NOW but I bet you will find things aren't so bad once it's over.
good luck and see you over the mountain.
 
Welcome aboard. Endocardinitis you are singing our song. My husband was diognosed with that in June, after 3 months of just plain sick and no explanations, chills, sweats, fever. He to resulted in sever damage to his valve unfortunately it is his aortic valve. We are vamping to the surgery room tommorrow. I can totally understand your worriness and the best words of advice I can give you is to "talk, ask questions and read this sight". I have found a lot of usefull information and gained a few friend along the way. Now I too don't feel so alone. Good luck and again, ask, ask, ask there is a lot of knowledgable people who have been through it all. :)
 
Snoviper, forgot to ask how you got endocardinitis, or do the doctors even know?
 
Thanks so much for the info. on the vent tube. I also have worried about that part of it. I figured that eventually I would forget about it but I was afraid for a few hours it would be sheer terror.
 
Snoviper, forgot to ask how you got endocardinitis, or do the doctors even know?

They weren't sure, I had an infectious disease doctor and they went over my history and couldn't conclude anything. I had sepsis after thinking it was the flu for two weeks and my blood turned toxic and shutdown my kidneys, I had to do temporary dialysis, I was diagnosed with Acute Tubular Necrosis which is what was wrong with my kidneys. They took about 4 weeks to recover. I was on IV antibiotics for 12 weeks. I am not sure if the blood infection caused the endocarditis or the endocarditis caused the blood infection. I am a computer tech for a city school district so I am around a lot of germs. I am just not sure how they made it in to my blood.:confused:
 
My valve replacement sounds a lot easier than what you've already been through.

Best wishes for an uneventful surgery, a speedy discharge, and easy recovery!
 
Before surgery, I found out that a lot of people either didn't remember the vent tube, or just remember the extubation (taking-out) part. That made me feel better, because, like you, I found the whole tube thing creepy.

I have a waking-up memory that is probably not entirely accurate. I say this because I have a few other post-surgery memories that are a little skewed. For example, I remember telling my husband to take my father home in person, but in reality I talked to him over the phone.

Anyway, what I remember is waking up intubated and having a nurse ask how I was feeling. I made a "writing" motion with my hand and she got me a pen and paper. A male voice said, "She won't be able to write clearly," but I wrote in big letters, "Harder to breathe with tube." A few minutes later a man extubated me.

Did that actually happen? Maybe I was thinking I'd like to write them a note just a moment before I was extubated. Or maybe I did write one, but it was illegible. Or maybe that's what really happened. After being extubated I fell back asleep and when I woke up again there were different nurses.

Apparently no one thought I would be so awake and alert the first night after surgery. They didn't realize that some of the meds they were giving me were hyping me up. They had told my family that I would be "out of it" through the night, so my husband was leaving the hospital with my Dad when my husband gave one final call to the ICU and discovered that I was awake. The nurse put me on the phone with him, and that's when I told him to take my Dad home -- the conversation I remember in person!

I simply could not sleep, so the nurses and I did all kinds of things -- changed sheets, had a sponge bath, brushed hair -- (okay, I didn't say they were interesting things!) I made up for it a day or so later, when I went to a regular room and did LOTS of sleeping!
 
Welcome to the site, Gary; glad you found it. I vividly recall the relief I felt when I stumbled across this site also and found others who faced similar issues.

You asked about waking on the vent? I thought I was ready for it this time, remembering waking on it from my first heart surgery, but it was worse for me the second time, pretty traumatic. So, if and when I have to do this again, I will probably ask for Versed (or is it Verced?), a medication that can disallow you to remember the experience.

Also a side point, my cardio told me that keeping my gums and teeth as healthy as possible was important in regard to keeping my tissue valve for as long as possible.

Glad your kidneys are working again. Hoping all goes well for you. Take care :) .
 
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