New to site and dreading coumadin

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Patty:
If you go on anticoagulants, you will have to test your blood at regular intervals to be determined by you and your doctor. (This can range from every six weeks to weekly.) The result of your test will be a number which is a ratio called INR (International Normalized Ratio). Your doctor will determine your target INR, for example 3.0, and your INR range, for example 2.5 to 3.5. If your INR is too high, beyond 3.5 in this example, you will probably need to take less Coumadin or Warfarin. If it is too low, below 2.5, you'll probably need to up your dose. That's a simplified overall view of what is needed. You can choose to go to a lab, an anticoagulation clinic, or you might even obtain your own, personal anticoagulation meter and test yourself at home. Many people here have their own machines. My husband tests weekly at home. It takes about 10 minutes from start to finish.

My husband has been on anticoagulation since 1990. With one exception, which I will mention later, it has not changed his life in anyway at all. And, if you can think of all the things that might cause problems for one on anticoagulation, they probably happened to him. He was in a car accident, bitten by a cat in a place that will not be disclosed here, injured at work when a chair collapsed under him, and he fell down the stairs. Additionally, he has stepped on glass and a nail, stapled his own hand, and received any number of small and large bruises....none at my hand! He has also had minor surgery, colonoscopies, dental surgeries, teeth removed, warts, moles, and other suspicious skin abnormalities burned off, cataract surgery,...and the list goes on. He has even had several internal bleeds, none of which caused any great difficulties at all. If you listen to him tell it, most of his problems on anticoagulation caused less inconvenience than me getting my hair colored every four weeks.

People on anticoagulation worry about bleeding and about stroking. My husband did have a stroke. The doctors said it was likely caused by his not being adequately anticoagulated. His INR at the time of the stroke was well below his target range. At that time, he was testing at a lab monthly. Had he been testing at home weekly, as he does now, there is every reason to believe, at least according to his doctors, that the stroke could have been avoided....if, indeed, inadequate anticoagulation was the cause.

Anticoagulation does not have to change your life. You will make minor changes in diet and alcohol consumption. You should not have to change activities to any extent. There is protective gear available for most sports and other pursuits. And, most things that cause problems for those on anticoagulants can be handled by frequent testing, moderation, and in some cases avoidance.

Kind regards and welcome to the board,
Blanche
 
Hayden - Remember - the key to safety is moderation. If you are going to change your diet to include salads every day, that's fine, but start about five days before you are scheduled for your next INR test so they can catch the trend and react accordingly with an increase in your Coumadin dosage. Personally, I love the green stuff, but I try to keep fairly consistant. The Brocolli in my garden is almost as big as a volley ball now, so we are looking forward to a treat with some melted cheese sauce on top. MMM MMMM :D
 
Patty,

Welcom to the site!

afraidofsurgery said:
In any case, will I really have to eat the same thing every day? What about travelling? Sex? Is coffee OK? I'm imagining my feet will bleed if I run, but I know my imagination's gotten carried away. Can anyone give me a "snapshot" of lifestyle changes post-coumadin and how frequent monitoring occurs?
No, you don't have to eat the same thing every day. Consistency of vitamin K on a weekly basis is a good idea.

Travelling is wonderful. I have taken my home testor with me onlhy once, but it was helpful.

Sex is required on a daily basis. (just kidding)...no issues.

Coffee has more to do with rythms than valves. No issues with Coumadin.

I went from couch to marathon in a year (starting several years after AVR). A few months later, hiked to the top of Pikes Peak. A few months later did another rmarathon. I guess it was my midlife crisis, but it paints a picture for you.

I've had several surgeries that required using an alternate anticoagulation "bridge therapy" over the last several years.

It's an individual decision. But if I had to do it all over again, I would make the same decision to have the surgery once and live with Coumadin. Of course, there are no guarantees. Whatever you decide, don't look back.
 
hosacktom said:
Patty,

Whatever you decide, don't look back.

We all have our own opinions and can disagree from time to time. However, if there's one thing we all tend to agree upon, it's the above quote. Life is to be lived to your fullest. Whatever your choice is, live like crazy!
 
Hey Patty,

They probably all said it already-

After a few months of stabilizing and learning I now live an almost normal life with coumadine. I will wisper this so no one hears - I eat anything I want, I do anything I want and I maintain a high enough dose to keep my INR in range. The only thing that worries me is bleeding. I am affraid of falling off my mountain bike because when I do, any minor injury develops to a huge hematoma that takes for ever to absorb.

On the other hand - and this in my view is more important - once I had my mechanical valve put in a year ago, I feel very confident with it. It is a stable long lasting solution that takes your mind off OHS for the rest of your life. I was 44 when I had MVR. If you are in good physical condition you can go through it in 10 years too, but you need to monitor the condition of your valve, don't let it fall appart before you get to surgery.
 
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