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adamsmom

We thought Adam was going home today, but a last blood test showed platelets are dropping. A second test showed more dropping. I need you guys to let me know what might be going on! Thay are going to keep him another day and said they do not know what is causing him to loose platelets. Has anyone else experienced this and how worried should we be? Thanks for any help. You guys have all been a godsend thru all of this.
 
Sorry I can't help figure out what is going on. My prayers and thoughts are with you. Hope things stabilize for him today.
 
I don't know what might be causing the platelet problem, but I wanted to let you know that Joe has had that problem many times. His hematologist has told us that SOMETIMES it is the testing method that causes clumping in the test tube (blood hanign around too long in the tube), so he usually repeats the test and makes it a stat type test or does it in his own lab rather than the hospital lab.

At other times transfusions have helped.

Joe has always recovered from this. I'm hoping they get Adam stabilized soon.
 
I had the same problem! The Dr. could not tell me why either. I had to get 2 units of blood, but after that it seemed to fix what ever the problem was. I went home the next day. Hope he gets felling better!!! I'll be praying!!!
 
Did he get Milrinone???

Did he get Milrinone???

Side effects of milrinone that have been reported in adults, such as low blood pressure, blood platelet abnormalities, and irregular heart rhythms, occurred infrequently in the children studied,

Here is the complete article...

http://stokes.chop.edu/news/press/?ID=246
 
Low platelets

Low platelets

Thanks for keeping us all up to date on Adam and sorry there has been a wrinkle in his recovery. I hope you're bearing up under all this pressure. I STILL have low platelets 5 months post surgery and no one can figure it out. I had transfusions after both of my OHS. My sodium is also low, but that could be attributed to the diuretic I take. Let us know if they figure it out.

Barbara
 
Thank you guys. Of course, I panicked a little, afraid of an infection causing it, but the dr. doesn't seem overly concerned either, so guess I should calm down. Hopefully we will be back on track to go home tomorrow.
 
Yes, Jancy, we did!

Yes, Jancy, we did!

Katie developed heparin-induced thrombocytopenia, but this is probably not the case with Adam. I repeat, this is probably not the case with Adam, especially if your docs are not too concerned. Is Adam still on heparin or have any active IV lines that they are still flushing with heparin? Is his platelet count still continuing to drop? IF so to both of these, then he MAY have developed antibodies to heparin. The only reason I mention it is because it happened to us and doctors do not routinely check for this in children.

If no to those questions, it is probably just due to the length of the surgery and how much heparin he had in his system. Have they given him any more platelets or blood?

Well, I do hope this little bump in the road is just that. The old-timers on here know why I don't like to mention the "H" word before it is official because I always feel like I jinx it....................sigh! Now, I sure wish that we had come up and seen you guys today, but I thought you would be settling in at H. Listen don't hesitate to call. We are tied up tomorrow with my dad, but we plan on visiting you guys early next week, wherever you are, and hopefully it will be at H. Many hugs. Janet
 

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