Nancy Primary hypertension ??

[Lynlw]

Nancy, I hope you can help me, I got an email from one of my CHD mom friends, she is looking for info or to connect w/ another family whose infant has primary hypertension. if you know anyone could you please let me know? if you don't want to post it here for privacy reasons, please email me and I wll either pass any info on or give you the contact info, Thanks so much , Lyn

 

[Yaps]

This is the Ph Assoc.. site..they have forums etc..may help. Love the pup


http://www.phassociation.org/

 

[Lynlw]

thanks so much I sent the link (and the parent message board ) to the babies parents, It always helps so much to know you aren't alone, Lyn

 

[Nancy]

That is a very good site (PHA website). Extra nice people. amd there is a wonderful mom there screen name- MrsNice (I think) who has a toddler (Ryan) with PH.

 

[Emma]

I know lots of mums with children with this condition if you'd like me to ask if you'd like me to contact them for you. I have no doubt they'd be only too pleased to talk to the family you know

Emma
xxx

 

[Nancy]

The PHA website has several forums. There is a General Discussion Forum and a Parent's Forum too. Both would be helpful.