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Dave_40
It's taken 6 months since MI damage event to get here but last friday I finally got a surgery on books pending insurance. Oct 5 surgery and Sept 30 prep day w/ anesthesis etc.
I'm basically excited as crap to be back on track for recovery.
Background: 41yrs now. MI undiagnosed for 10 days. Lots of LV damage by that point. Best story to date, one of papelary muscle that chordae attatched to is disfunctional or dead tissue. MR 3+ - 4+ at rest and solid 4+ under load. Lots of CHF symptoms that I've learned to live with but which reduced me to having 6 good hours per normal day max and a lot of degraded ones.
#1 source of relief keeping sodium intake at absolute max 1000mg or better much lower every day so lasix can extract fluids from chest and generally keep me less miserable. Seriously, for all you CHF still fighting battle, try to go as low as possible for a week, it really improved my quality of life at a small cost, max only one small portion processed food source per day.
#2 relief learning warning signs of over done day and taking it really easy all the time.
#1 source of horrible days any time I carry 15lb like laundry/grocery/garbage.
I'm with UC San Francisco valve repair specialist. I've directed that he try to repair only if he is comfortable that it's going to last. He's offered tissue fall back option for replace, but I'm trending to mech as I really don't ever want to go through this degrade till they finally take you seriously and wait wait wait situation again.
Further I'm basing my mech decision on simple fact that though I used to live the adrenaline junkie life with either day+ of skiing or 100mi on bike /week, I am having a hard time believing my recovery is going to take me back to really strong as there is still the LV pump motion problem to sort out to get me above 10 liter/min where I'll be capable of exercising hard, and if I do get back I really think of cumaden as a annoyance with following side effects:
a) if you are sevearly injured to point that you might bleed out and die it's harder to stop - this is car crash, run over by car, punctured by tree, smashed bone that rip fresh, head tramma etc. Not common events.
b) bad cut / bruses more likely to become bleeders aka hemotoma and require hospital visit, but these are not going to kill you
c) annoyanace cut/bruses etc become more annoying as you are much more likely to bleed a lot as you don't scab up as fast - where in my history you just ignore or apply pressure and it'll stop bleeding, it becomes more than ignore event - again a reason to have compression bandages & cell phone on bike, a reason not to go hiking or back country alone, but not going to kill you.
Simple reduce risk where possible and wear medic alert that identifies this bleeding out risk.
Along the way, it's really creepy to hear card ignore echo tech saying LA/LV enlarge because he doesn't want to admit waiting had cost. Same for doc staff who know someone dropped the ball with 10day lack of MI identification.
t-echo numb juice is far less bad than I heard here. Tastes about as bad as chewing a bad tasting pill. T-Imager down throat, well we tried without sedative and I could have dealt with it but docs wimped out and gave me half dose that was less likely to crash my terribly low BP.
In any case I'm so excited to be back on track to recovering my strength/health that words can't express.
Thank you all for being there.
I'm basically excited as crap to be back on track for recovery.
Background: 41yrs now. MI undiagnosed for 10 days. Lots of LV damage by that point. Best story to date, one of papelary muscle that chordae attatched to is disfunctional or dead tissue. MR 3+ - 4+ at rest and solid 4+ under load. Lots of CHF symptoms that I've learned to live with but which reduced me to having 6 good hours per normal day max and a lot of degraded ones.
#1 source of relief keeping sodium intake at absolute max 1000mg or better much lower every day so lasix can extract fluids from chest and generally keep me less miserable. Seriously, for all you CHF still fighting battle, try to go as low as possible for a week, it really improved my quality of life at a small cost, max only one small portion processed food source per day.
#2 relief learning warning signs of over done day and taking it really easy all the time.
#1 source of horrible days any time I carry 15lb like laundry/grocery/garbage.
I'm with UC San Francisco valve repair specialist. I've directed that he try to repair only if he is comfortable that it's going to last. He's offered tissue fall back option for replace, but I'm trending to mech as I really don't ever want to go through this degrade till they finally take you seriously and wait wait wait situation again.
Further I'm basing my mech decision on simple fact that though I used to live the adrenaline junkie life with either day+ of skiing or 100mi on bike /week, I am having a hard time believing my recovery is going to take me back to really strong as there is still the LV pump motion problem to sort out to get me above 10 liter/min where I'll be capable of exercising hard, and if I do get back I really think of cumaden as a annoyance with following side effects:
a) if you are sevearly injured to point that you might bleed out and die it's harder to stop - this is car crash, run over by car, punctured by tree, smashed bone that rip fresh, head tramma etc. Not common events.
b) bad cut / bruses more likely to become bleeders aka hemotoma and require hospital visit, but these are not going to kill you
c) annoyanace cut/bruses etc become more annoying as you are much more likely to bleed a lot as you don't scab up as fast - where in my history you just ignore or apply pressure and it'll stop bleeding, it becomes more than ignore event - again a reason to have compression bandages & cell phone on bike, a reason not to go hiking or back country alone, but not going to kill you.
Simple reduce risk where possible and wear medic alert that identifies this bleeding out risk.
Along the way, it's really creepy to hear card ignore echo tech saying LA/LV enlarge because he doesn't want to admit waiting had cost. Same for doc staff who know someone dropped the ball with 10day lack of MI identification.
t-echo numb juice is far less bad than I heard here. Tastes about as bad as chewing a bad tasting pill. T-Imager down throat, well we tried without sedative and I could have dealt with it but docs wimped out and gave me half dose that was less likely to crash my terribly low BP.
In any case I'm so excited to be back on track to recovering my strength/health that words can't express.
Thank you all for being there.
