Mechanical Valve and Intense Exercise

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Conk,

I am definitely with you on the "A" type personality. I ride with a tough group on the road and occasionally race my mountain bike. I hate to leave a race without a trophy! This valve situation is driving me nuts!!!!! I'm really wanting to be onte of the Ross success stories. I'm about 6 weeks from surgery time and have about ruled out the pig valves. If I know I could keep kicking butt with a mechanical I'd go for it. I also engage in some heavy beer drinking sessions occasssionally as a competition chili cook. These things just don't seem to jive with coumadin intake.

I was thrilled to hear you were back on you rbike in two months the first time. Very inspiring.

The mechanical is the safest bet. I was told that I have a 31MM aortice orfice which would give ample hemodynamic flow with a St. Judes Regent HP. WHat size did you get?
 
The truth comes out!

The truth comes out!

Ah, Chilihead, the truth comes out. It's not so much the bike riding, it's the beer with the Chili Cookoffs that's the main motivator for the Ross!:cool:

Sorry, just giving you a hard time.:)

Karlynn

PS - beans or no beans?
 
Please.......... I'm a native Texan. Beans in chili is something we just won't hear of. Yes, that is one of the considerations. My diet and excercise are at both ends of the spectrum. I eat and drink whatever I want and get in a lot of exercise, ususally competitive typeos of things. Our motto is "Every bike ride is a race".

The International Chili Championship is upcoming in Terlingua, out in Big Bend. I'm hoping to make that my last hurrah before surgery in mid November.

Thanks,

Jim
South Side Foggy Mountain Chili

"Those who ride,
Choose South Side!"
 
Chilihead

Chilihead

I know how tough this decision is. I've had to make twice in less than 1 year. I can't tell you how disappointed (maybe devastated is a better word) I was when I heard my replacement valve (Homograft) was leaking on my first Echo after only two weeks. Somehow you have to move on. I'm very hopeful that this St. Judes Regent valve (23mm) I have will be the ticket. As for valve size, I was told I was a 25mm based on my previous surgery, so don't be surprised if you go this way that it may go down or up a size (down is the most likely direction), but being a 31mm, 29mm would certainly still be very satisfactory.

I went back to look at some statistics from earlier this year as I was recovering from my first surgery. This is what I found:

Surgery Date 12/20/02
At 4 weeks doing life cycle at avg heart rate of about 135 with max of 145.
At 6 weeks first bike ride of about an hours with avg HR of 150 and max of 158
At 7 weeks bike ride of 1.5 hours with avg HR of 148 and max of 163
At 8 weeks bike ride of 2.5 hours with avg HR of 141 and max of 159
At 11 weeks bike rides on Sat/Sun of 4 hours total at avg HR of 139 with max of 156

On our (my wife Joanne and I) trip to Europe and stay at Alpe d'Huez between July 8-15th I could not resist riding the CSC race bikes for rent as we waited for the stage up the mountain that week. During a 5 day period I rode about 7 hours with an avg HR as high as 145 and a max of 166 (realize at this point it didn't take much to get my heart rate up not to mention most of the riding was on the 7.9% grade of Alpe d'Huez. Probably not the smartest thing I've done in my life, but fortunately I didn't keel over.

I'm really hopeful that this valve will give me the performance I desire, but way too early to tell at this point. Definitely won't start exploring much higher HRs than I'm doing now until I get to about the 3-month point. Just taking a bit more conservative approach this time compared to the first surgery. Definitely don't want to experience another one any time soon.

BTW...Gotta try some of that Texas chili
 
Conk,

You're my kind of guy. I was in Germany this summer for two weeks on business and glued to the TV each afternoon watching the tour "live". Hey did you ever consider a Ross procedure?

Best of luck with your new valve. If a mechanical will work for you, I'm sure it would do me fine. I usually ride road bikes at @ 168 heart rate with highs up around 180-185 on the hills. A few years ago I hit 200 on the mountain bike, but I wasn't riding as much and that causes it to rise. I can ride all day long at 168, even with my severe leakage on the aortic valve. I'm still kicking butt on short rides, but I'm not pushing any harder than I have to. I'm going to taper off between now and surgery but still ride some 25-30 mile stints to keep the blood moving.

Keep me posted.

Regards,
Jim
 
Ross Procedure

Ross Procedure

Jim,

The reason Vaughn Starnes ended up doing my surgery was I consulted him about the Ross Procedure. However with my previous Radiation treatement for Hodgkins Disease he told me I was not a good candidate for this procedure.

In terms of the Heart Rate, I remember the ride about one week before my first surgery I went on a 3 hr ride, but my average was about 145 and the max was 166. You're a bit younger than me, but I believe my max at that time was 175, but didn't really test it out. My resting HR before the surgery was in the 40s. I think I'm now back down to the high 60s range, but I'm sure it will continue to come down.

Currently my max has been 148, so trying to be good and not exceed that for another 4 weeks or so.

...Denis
 
Denis,

If you can bike like you could before, I'd consider the mechanical . I can do without snow skiing, but I spend a lot of time on my bikes and don't plan to give that up, even if I end up not as fast as I currenly am. It will surely suck to see these guys passing me that I have grown accustomed to stomping whenver I felt like it!

Ride hard and keep in touch,

Jim
 
Hi Conk

Hi Conk

As the Mother Hen of the group:D I would like to ask you some questions. How do you really feel at 6 weeks post-op? Are you sleeping good..all night without pain? Are you driving? Do you not feel pain in your back and shoulders from riding that bike? Do you still nap during the day? Do you have one good day and one bad day? (common) Are you not foggy-headed? How is your INR? In range? How often do you go to lab to have it checked? It usually takes 3 months to get in range 2.5-3.5.......the reason i ask all these questions..It is more important to heal first..then think about what you want to do later. It takes 1 full year to feel yourself again. Have you had your flu shot? I took my first long trip at 6 weeks to see my Daddy. Just a 6 hour trip..a few days there and back home. Took a week to feel good again...Back to your INR..Get it stable.. If you run high ..you may bleed from gums..Urine, ect. When you are on coumadin..you could trip going down the steps and hit head. ect. Always be alert for the little things. Next spring..I plan to sit somewhere during Little League games. Almost got hit in head from fly balls. Those kids can really hit that ball:eek: You may can take pain..but I found it hurts. Driving and looking around, ect. washing windows and sharp pain..in shoulder. Scares me. thought I was having a heart attack. Takes at least 6 months to heal..and still had those bad days and good days for next 6 months. Now at 18 months...have sat in Jury stand for last 2 days and probably another week. Guess what the case is..Medicine Malpractice:eek: Putting in a 9 hour day..but feel GREAT.And looking forward to going and watching Grandson play football this weekend. I'll be his team's biggest cheerleader.:D Bonnie
 
Jim

Jim

I called Hubby when I was leaving courthouse tonight and told him..Have me a cold one ready.:D Miller Lite.. Beer does not effect my taking coumadin. Stay in the 3.0 range.:D Really relaxes me after hearing 6 Lawyers argue all day.:p :p :p Bonnie
 
Okay, now I'm thirsty. A nice cold Miller Lite sounds great. I don't find that alcohol messes with my INR much. I'll have around 4 drinks a week, either beer (Miller Lite's my choice!), some red wine, or a rum and diet Coke. (Bacardi makes a rum and tequila mix called Ciclone that's really good.) Even an occasional martini doesn't seem to hurt. I figure that the de-stressing effects of an occasion drink is probably good for my heart.:cool:

Karlynn
 
Hey Bonnie,
I think you have found you a part time job. You need to print up some flyer's with all that info on it and give it out to everyone in the waiting room. That is very good information that everyone should have. I wish I would of had it.
Take Care

Dave
___________________________
Surgery: 4/21/03
Aortic Aneurysm Repair
AVR, with a St. Jude Mechanical
 
How do I really feel at six weeks

How do I really feel at six weeks

Bonnie,

You are right, today is 6 weeks, so it's a good time to do an honest assessment of how I feel.

How do I really feel at 6 weeks post-op?
You know, I almost feel guilty at how well I feel at this point. I did something about a week ago that set me back a couple of weeks in terms of my sternum and I think it was sit ups that did it, but not 100% sure. However, aside from that, I'm just as active on the job (not to hard to do on a desk job), but still all the same stresses. I'm also working out other than the long weekend rides about the same amount of time before my first surgery.

Are you sleeping good..all night without pain?
I have absolutely no pain and I sleep as if nothing is different than before. The only difference I have is that I can hear my heart beating just a bit more than before.

Are you driving?
I have been driving since about day 10 (don't tell my doctor).

Do you not feel pain in your back and shoulders from riding that bike?
I feel no pain from riding the bike, however it's a bit different on a stationary bike or on your own bike in a stationary mode, so I'll let you know after my first real ride which I'm planning for this Friday. I did feel tremendous pain in my back and shoulders in the first two weeks after surgery. About 3 weeks after the pain had significantly subsided and then day by day, it just went away and I don't even think about it at this point.

Do you still nap during the day?
I haven?t taken a nap in quite some time, since about week 3 or 4 and at the end of the day I do feel like I've put in a good day, but maybe that's why I have no problem sleeping.

Do you have one good day and one bad day? (common)
All of my days now seem very even in terms of how I feel. If I've had a fairly hard workout, or didn't get to sleep as early the previous night, then I might be a bit tired at the end of the day. In the first 2-3 weeks I certainly did have some up and then down days.

Are you not foggy-headed?
I've had a few moments where I might have felt a bit this way, but it seems fairly short-lived.

How is your INR? In range? How often do you go to lab to have it checked? It usually takes 3 months to get in range 2.5-3.5.
This might be the most challenging area, but it seems to be coming together. Believe it or not, my first check after leaving the hospital was right at 3.0. My next check was 4.8 (I'm not so sure about this one), so we backed off the amount of coumadin to zero for three days. I believe that this was too aggressive. Now I've been coming up from 2.0 to 2.6 and we have been making very small adjustments (now taking 5mg every day except M/T/W when I take 4mg) and I've been trying to eat as I would normally, including drinking zero, one or two beers in the evening. These small adjustments are slowly bringing my level to the right range I hope. I'm currently checking once a week, but as soon as we get a couple at the about the target number (3.0), then will probably go to two weeks.

.......the reason i ask all these questions..It is more important to heal first..then think about what you want to do later. It takes 1 full year to feel yourself again. Have you had your flu shot? I took my first long trip at 6 weeks to see my Daddy. Just a 6 hour trip..a few days there and back home. Took a week to feel good again...
It's funny you mention a trip. I traveled to Tailhook in Reno, NV at about 3.5 weeks after surgery and drove the entire way (8 hours in the pickup) after work (left work about 2:30pm) on a Thursday and arrived in Reno about midnight. Stayed up the next two nights with my wife and hook buddies until about 11pm the first night and 1 am the next night. Drove home on Sunday (yes I did all the driving again) and I was actually surprised myself that I felt ok, although as you might expect, I was probably a bit tired that night.

It sounds like you are doing well and I certainly appreciate the sage advice. I expect that I'm not the normal individual when it comes to this and I hope that others take the message from thier body and not rush the process (I know, I should listen to that myself). I've always had an extremely positive attitude and I can't stress enough at how powerful that can be on the heeling process and recovery. Yes...I'm probably too optimistic and agressive at times, but it's certainly better than the alternative. I certainly look forward to being around when my Grandson is doing sports some day (he is only 2 months old at this point), but it's great that you can now be back to a normal long day and still have energy to watch that Grandson of yours play football.

Ok aftet this long post, time for a Negra Modelo.

Best...Conk
 
hi conk!
boy, are you one of the lucky ones!!! your recovery seems picture perfect!
i am soooo happy for you. i can't believe that you had the surgery just 6 weeks ago and you are close to being back to "normal"!!!
wishing you a continued easy recovery. i can see why you want to bike vigorously...
keep it up. sounds like you know how to listen to your body.
be well, sylvia
 
Conk,

You're my hero! Are you really sticking to only two beers a day? Even at tailhook?

Regards,

Jim in Dallas
4 weeks from surgery time and can't decide between mechanical or Ross!
 
Hi Conk

Hi Conk

You do sound great at 6 weeks. But, the driving at 10 days..more for the safety of other people than your driving...You were lucky that you did not have a sudden double vision or the gray blind on one eye..that is very common and normal for people after open-heart surgery. Driving at night is bad enough but to Reno? on those twisting mountain roads..:eek: :eek: :eek: who is managing your Coumadin? 4.8 and asked to hold for 3 days. No way..you could have taken 10% of your weekly dose LESS..and been back to 3.0....We all have a positive way of thinking positive about wanting to feel good sooner than later. but when your shoulder blades were pulled back to meet one another on operating table so surgeon could get in there good.:eek: one is going to have back and shoulder pain for a long time. That is why I encourage my girl valvers not to pull wet clothes out of.washer wash windows, ect. for at least 3 months. Reaching out..down and up..with arms... Slow down and smell the roses..you will be back to normal after 1 year. :) Don't lift that Grandson yet.. You said you want to be around to watch him play Little League. My age 11 year old cannot stay up with his Granbonny now.:D And I am age 63.. I thank God every night that I had a Husband who watched me like a hawk..Still does.:) 37 years being married to me..don't think he wants to lose me now.:) Bonnie
 
Hi Conk

Hi Conk

You do sound great at 6 weeks. But, the driving at 10 days..more for the safety of other people than your driving...You were lucky that you did not have a sudden double vision or the gray blind on one eye..that is very common and normal for people after open-heart surgery. Driving at night is bad enough but to Reno? on those twisting mountain roads..:eek: :eek: :eek: who is managing your Coumadin? 4.8 and asked to hold for 3 days. No way..you could have taken 10% of your weekly dose LESS..and been back to 3.0....We all have a positive way of thinking positive about wanting to feel good sooner than later. but when your shoulder blades were pulled back to meet one another on operating table so surgeon could get in there good.:eek: one in going to have back and shoulder pain for a long time. That is why I encourage my girl valvers not to pull wet clothes out of.washer wash windows, ect. for at least 3 months. Reaching out..down and up..with arms... Slow down and smell the roses..you will be back to normal after 1 year. :) Don't lift that Grandson yet.. You said you want to be around to watch him play Little League. My age 11 year old cannot stay up with his Granbonny now.:D And I am age 63.. I thank God every night that I had a Husband who watched me like a hawk..Still does.:) 37 years being married to me..don't think he wants to lose me now.:) Bonnie
 
Risk to Others

Risk to Others

Bonnie,

Yes you are right about the driving, but I was very cautious at first and would not have drivin if I had the slightest tinge of dizziness or balance uncertainty during any time during that period.

In addition, this was my second surgery of the same type and I did not have any of the symptoms you described on my first surgery or on this second one. Lucky I guess.

As for waiting 1 year, I'm sure this is good advice, but ya know...I'm not too good at taking it slow. Smelling the roses for me might be different than for others, but if I'm not in the game, might as well not be any roses. I feel the need for speed. Always have and I guess I always will.

I have no pain at all at this point (7 weeks post surgery), but I am going to wait a significant time before I go back to the weights, probably 3 months before I start and will gradually work myself back into it.

I am doing a 30-mile cycling ride this weekend (Saturday) in Santa Barbara for MS. I'm not going to set any speed records, but this will be my longest ride since surgery. Actually have only ridden on the bike one other time (21 miles) last weekend. I have been getting about 3-5 hours a week on the stationary and my kinetic trainer.

For Chilihead,,
I'm following the training in Chris Carmichael's (Lance Armstrong coach) book and it seems to be working very well. I can feel my ability to push more resistance and maintain the prescribed HR. Great book if you don't have it.

Regards...Denis
 
Conk,

I have the book. Did your doctor say anything about biking? Not htat it would matter. I think you can probably do what you want if you understand the risks.

I'm less than 5 weeks form surgery and I'm still kicking butt on my bike. I mountain bike last night and whipped everyone I was riding with!

Keep up the progress.

Take Care and ride as much as you can.

Jim
 
Conk

Conk

You can still have problems with your eyes...up until many months after surgery. I have read many threads..from members asking about the gray blind like a curtain coming down. I, had 2, during first months of post-surgery. I think you can find these threads by typing in eyes..(somewhere)..maybe Nancy or Ross can post how to do it??? Be careful biking. even Lance Armstrong took a nasty fall in France.:eek: :eek: :eek: Glad he wasn't on coumadin:eek: Hate to be such a Mother-Hen..but after having posted..1,883 posts on this forum..Have read it all...Just hate to see you hurt yourself..If you take 1 foot forward..you may have to pay..3 feet back..Hope you get that Protime. I love mine..Stays in range all the time.(INR) BTW..those Roses smell so good..now..Taking Grandson on motorhome trip to Smokies tomorrow. Hiking, swimming (in heated pool at campground) fishing for trout..and hey, I'm age 63.:D :D Drive the motorhome (36 ft.).but, now, at 18 months...No problems.:D :D Good Luck this weekend. Make lots of money for MS..:) :) Let us know how you did....Bonnie
 

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