Health insurance companies pull most of the strings.
It bewilders me that there is so much secrecy on the part of the health insurance companies. To me, secrecy means that you have something to hide, otherwise you would be up front with everything. Just think about it, they deny services based on their own actuarial guidelines and it is to enhance their bottom line. How many of us know who is making these decisions? Are they professionals in the medical field? Do they keep up with research? How long does it take for a new treatment, which has been approved for use by the FDA, to get approval from the insurance companies? How are these people's salaries determined??
Or are decisions ultimately made by people in the financial field, or others who have no background in medical care? How many of the initial decisions are made by people with no advanced training in any field?
In my own opinion, the gag orders which were instituted a while back and supposedly are no longer in effect (or are they?) were just a massive effort to keep the public in the dark and keep them from asking any questions about what was happening to them. Meanwhile health insurance companies denied services, and dragged their feet until the offending "patient" either shut up or expired.
Finding intelligent, excellent and caring doctors is very possible. Joe has them. He wouldn't be here without them.
Helping with your own healthcare is of vital importance. Read everything that is available on your own problems. Know the options and the new treatments, have a good feel for what the right answers are. And ask questions as you need to.
I believe that responsibility for your healthcare is a collaboritive effort. If you know nothing about your health problems, then how can you possibly assess the quality of care that is given.
In this situation, ignorance is definitely not bliss.