Well I haven't updated on Justin lately and since June 19 was 3 years since his conduit revison surgery, this looked like a good time. Also May 3rd was his 5 year birthday for his pulmonary valve and the older part of his conduit....yeah
Also (knock on wood) his sternum that came VERY close to having surery in jan for thereoccuring, infection is looking great.
So life is good, his is stil in college and working as a stagehand in Philly and Atlantic city and everyonce in a while Hershey ect, since it is summer he's been very busy and really loves his job, even when the hours are LOOOONG (he has a hammock for naps when it is slow lol) He still gets tired, so rests alot on his days off and so far it works for him.
He also finally had his MRI/MRA and we got the written report (his appt in in Aug),.Everything is stable. Not "great" since it IS Justin's heart, but stable is good for him. Most of his last surgeries were on his right side, but his orginal CHD was his Aorta and Pulmonary Artery where backwards along with a couple other things. We were concerned about his Aortic root so relieved to see it
hasn't gotten bigger, it is still 4.3 (the same as 07) sinotubular junction 3.6- midascending 3.5 -distal arch is 2.5 and descending is 2.1. )
And of course this right ventricle is huge (vol 245, but much better than pre op of 311) the report says "right vent hypertrophy is seen again but stable," So nothing is worse than it has been, so we'll take it.
All in All life is good.
Also (knock on wood) his sternum that came VERY close to having surery in jan for thereoccuring, infection is looking great.
So life is good, his is stil in college and working as a stagehand in Philly and Atlantic city and everyonce in a while Hershey ect, since it is summer he's been very busy and really loves his job, even when the hours are LOOOONG (he has a hammock for naps when it is slow lol) He still gets tired, so rests alot on his days off and so far it works for him.
He also finally had his MRI/MRA and we got the written report (his appt in in Aug),.Everything is stable. Not "great" since it IS Justin's heart, but stable is good for him. Most of his last surgeries were on his right side, but his orginal CHD was his Aorta and Pulmonary Artery where backwards along with a couple other things. We were concerned about his Aortic root so relieved to see it
hasn't gotten bigger, it is still 4.3 (the same as 07) sinotubular junction 3.6- midascending 3.5 -distal arch is 2.5 and descending is 2.1. )
And of course this right ventricle is huge (vol 245, but much better than pre op of 311) the report says "right vent hypertrophy is seen again but stable," So nothing is worse than it has been, so we'll take it.
All in All life is good.
