pellicle
Professional Dingbat, Guru and Merkintologist
Hi
and welcome ...
so far I've refrained from saying anything because I observe that I'm not good in helping with anxiety. Few think anything like me (as I'm not an emotional thinker even though I do have things I'm anxious about from time to time).
The thing about anxiety is to not allow it to be come "chronic" ... if it does its harder to weed out and will (to me) obsess you and control you.
So, if I may offer some perspectives on your issues
Firstly history in my view does not repeat, but often rhymes ... so your first point (which I understand as my mother died of early onset alzheimers so I am worried about that in myself) is that as well as the similarities
there must be also quite a number of differences, as I doubt that you mum was 29 when she passed away. This means that you have the benefit of being diagnosed much sooner and thus an intervention to save your life will happen.
A key difference to your mothers case.
If I may ask how old was she?
Next I'll say that your heart does not get weaker with stenosis, in fact the opposite ... it gets stronger. That is why the enlargement occurs. Your heart is a muscle and it is in training now because its faced with more resistance (caused by the stenosis) and just like Arnie is pumping up.
This is not actually a good thing because unlike going to the gym it doesn't get as much of a break AND unlike a muscle on the outside the muscle on the inside crowds things out. Then there is balance, one side is straining and the other not (imagine if the body builder only worked on one side of his body).
To me I see that you have an early diagnosis as a good thing.
Actually that's not entirely correct, there is a method and its to replace that valve. Just like if you have a tap in the house driving you mad, replace it. Its proven to work and all of us here are evidence of that.
I had my first OHS surgery when I was about 10 and I'm 50 now (and had 2 more since then). I can understand you feeling worried about the surgery, but to be honest its amazingly well done and has a long history. I understood its the most successful surgical intervention in modern medicine.
Instead of focusing on not wanting OHS, instead focus on wanting to be better. I lost most of my childhood running around and exersize due to delay in surgery till I was older. It was a risk they chose. I had to fight my health back again when I lost it at 28 (lost my health due to the stenotic valve which was repaird), but having seen how much improvement occured when I was 10 I was actually keen to have the surgery ... The same occured again in 2010 when I identified that it was time for a checkup and found that valve leaking (and to my surprise an aneurysm) ... having been recently married I wanted to have the surgery as soon as was needed (even though the timing was inconvenient in the midst of our house renovations) so that I could continue my life together and healthy with my wife.
I believe you'll be fine, what needs to happen now is that you believe you'll be fine. I know that without actual "putting your hands in the hole the spear left" its hard, but I hope that with all the stories and support you get from us here you'll come to believe that you will be fine.
I hope this helps in any way ...
Best Wishes
and welcome ...
so far I've refrained from saying anything because I observe that I'm not good in helping with anxiety. Few think anything like me (as I'm not an emotional thinker even though I do have things I'm anxious about from time to time).
The thing about anxiety is to not allow it to be come "chronic" ... if it does its harder to weed out and will (to me) obsess you and control you.
So, if I may offer some perspectives on your issues
Firstly history in my view does not repeat, but often rhymes ... so your first point (which I understand as my mother died of early onset alzheimers so I am worried about that in myself) is that as well as the similarities
TLC2U;n869340 said:New to this forum! So I wanted to introduce myself (long post ahead):
I am a 29 year old white female with mild aortic stenosis ...
...In 2011, my Mom died at a young age from complications due to heart valve replacement surgery. In short, the autopsy & Doctors explained her heart was simply too weak to withstand the surgery. Cause of death: aortic stenosis, sepsis, shock. No other abnormalities noted in the report.
there must be also quite a number of differences, as I doubt that you mum was 29 when she passed away. This means that you have the benefit of being diagnosed much sooner and thus an intervention to save your life will happen.
A key difference to your mothers case.
If I may ask how old was she?
Next I'll say that your heart does not get weaker with stenosis, in fact the opposite ... it gets stronger. That is why the enlargement occurs. Your heart is a muscle and it is in training now because its faced with more resistance (caused by the stenosis) and just like Arnie is pumping up.
This is not actually a good thing because unlike going to the gym it doesn't get as much of a break AND unlike a muscle on the outside the muscle on the inside crowds things out. Then there is balance, one side is straining and the other not (imagine if the body builder only worked on one side of his body).
To me I see that you have an early diagnosis as a good thing.
That being, there is no proven way to reverse, stop, or slow the progression of aortic stenosis.
Actually that's not entirely correct, there is a method and its to replace that valve. Just like if you have a tap in the house driving you mad, replace it. Its proven to work and all of us here are evidence of that.
I had my first OHS surgery when I was about 10 and I'm 50 now (and had 2 more since then). I can understand you feeling worried about the surgery, but to be honest its amazingly well done and has a long history. I understood its the most successful surgical intervention in modern medicine.
Instead of focusing on not wanting OHS, instead focus on wanting to be better. I lost most of my childhood running around and exersize due to delay in surgery till I was older. It was a risk they chose. I had to fight my health back again when I lost it at 28 (lost my health due to the stenotic valve which was repaird), but having seen how much improvement occured when I was 10 I was actually keen to have the surgery ... The same occured again in 2010 when I identified that it was time for a checkup and found that valve leaking (and to my surprise an aneurysm) ... having been recently married I wanted to have the surgery as soon as was needed (even though the timing was inconvenient in the midst of our house renovations) so that I could continue my life together and healthy with my wife.
I believe you'll be fine, what needs to happen now is that you believe you'll be fine. I know that without actual "putting your hands in the hole the spear left" its hard, but I hope that with all the stories and support you get from us here you'll come to believe that you will be fine.
I hope this helps in any way ...
Best Wishes