G
Guest
Hello!
I've been reading through some posts ever since I had my initial BAV diagnosis in March of this year. This site has been a great resource for stories and support.
I just wanted to say thank you to everyone who has shared their stories here. Seems like I'm in good company!
About me:
I'm 32 and have been a fairly active cyclist. At 6'2 and 183 lbs, I'm as healthy as can be - despite the condition. I've completed some fairly long rides, as much as 150km (albeit at a much more leisurely pace since the diagnosis.)
I currently have moderate-severe aortic regurgitation, 4.7cm ascending aortic aneurysm and an enlarged left ventricle which is estimated at 6.7cm but could be larger (potentially 7.4cm - waiting on official measurement). Not fun. I don't have a surgery date yet as I have not shown any signs of heart failure. I've met my surgeon and recently had an MRI. So far I've been stable except for the left ventricle size - but I have a feeling I'll be on the other side pretty soon.
I noticed my heart beating a little harder than normal back in March and got the diagnosis. I have a twin brother who also has BAV, but his valve is performing very well. We were adopted, so we didn't have any family medical records - making the diagnosis a surprise. Glad I went to the doctor as both my brother and I were no strangers to heavy lifting! Good chance we avoided something much worse.
I look forward to sharing my continued stories - hopefully they'll help others as well.
I've been reading through some posts ever since I had my initial BAV diagnosis in March of this year. This site has been a great resource for stories and support.
I just wanted to say thank you to everyone who has shared their stories here. Seems like I'm in good company!
About me:
I'm 32 and have been a fairly active cyclist. At 6'2 and 183 lbs, I'm as healthy as can be - despite the condition. I've completed some fairly long rides, as much as 150km (albeit at a much more leisurely pace since the diagnosis.)
I currently have moderate-severe aortic regurgitation, 4.7cm ascending aortic aneurysm and an enlarged left ventricle which is estimated at 6.7cm but could be larger (potentially 7.4cm - waiting on official measurement). Not fun. I don't have a surgery date yet as I have not shown any signs of heart failure. I've met my surgeon and recently had an MRI. So far I've been stable except for the left ventricle size - but I have a feeling I'll be on the other side pretty soon.
I noticed my heart beating a little harder than normal back in March and got the diagnosis. I have a twin brother who also has BAV, but his valve is performing very well. We were adopted, so we didn't have any family medical records - making the diagnosis a surprise. Glad I went to the doctor as both my brother and I were no strangers to heavy lifting! Good chance we avoided something much worse.
I look forward to sharing my continued stories - hopefully they'll help others as well.
