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mamanordy

Active member
Joined
Oct 2, 2009
Messages
40
Location
Maineville, Oh USA
Hello everyone! So sorry I have not posted before now. It has been a whirlwind of activity around here. My AVR surgery was Oct 22. I spent 12 days in the hospital. During the surgery I got a pneumothorax (collapsed lung). I woke up in ICU with a horrible pain in my right breast, the chest tube. I will have to say I was quite out of it the entire stay in the ICU. I wasnt in a lot of pain per se but the entire ordeal just wore me down.

The surgery was successful. I now have a St Jude Masters Valve Conduit, my BAV is gone and so is my aneursym. When I got home, I had to have someone with me 24-7 for 2 weeks, per my surgeon because of the risk I had in possibly collapsing a lung again. I have no idea why I got this. Anyway, I felt tortured while there, I had to have a picc line, they tried twice, they had to take me to cath lab to do it, the chest tube, the swan, so many things. I was super tired and so glad to get home.

Believe it or not, the only pain I have really had is my breast where the chest tube was inserted and in my neck where the picc line was. Yesterday was my first day without a "babysitter". Today I went with my hubby to his work for a few hrs to get out of the house.

I am having some weird things happen when I sleep or nap. I make a strange noise like I cant breathe and I wake up. It is like a stutter step or something. Very odd.

Sleeping is still hard. The first few nights I slept on my sofa. Then I wanted to try my bed. Dh put some pillows on strategically and I slept ok, but tossed and turned a lot. Each night has been better though. The biggest problem is the breast and the neck. When I wake up I feel as if someone has tried to stab me or strangle me. Saw my surgeon yesterday. He is pleased with my progress. He said my breast hurt because when they put the chest tube in, the tube more than likely messed up some nerves, and it will take a while to heal. Yee ah! :)

So glad I have you all to come back to!!!
 
Welcome back my dear & sorry to hear of the hard time you've had. I pray that everything settles down now & you start to feel better with each passing day. Take things nice & slow....do only what you can!

Stay well! :)
 
was wondering how you got on our ops were on the same day! ,glad to see you made it hope its bump free from now on
 
Thank you Norma. The one thing too that is bothering me is that I feel as if I lost some of my smarts/common sense... my timeline is bad, I am having trouble remembering things that happened, names, words to finish a sentence, etc. I start talking and sound like a babbling idiot. Hopefully this was just a side effect of anesthesia or heart lung machine and I will get back to normal. :)
 
I had similar breathing problems when trying to sleep, startling me awake. Probably related to post-op anemia (HCT-28 on discharge), plus I had a distended abdomen which made it harder to breathe. I had great trouble falling asleep. An anti-anxiety pill (Ativan 1MG) has gotten me past that and now my HCT is over 35 (half-way back to normal) and my gastric distention was resolved with Reglan, so I no longer have this breathing problem.
 
Glad to hear you finally made it home. Actually, the things you described are fairly normal... it all takes a while. Especially, the sleeping part:) But, it sounds like you're on your way to recovery. Don't be shy about calling your doctor, though, if things don't seem right - particularly after the lung problem.
 
Welcome back to the other side of the mountain. It will get better, I promise. The not rembering things is so common. That will eventually come back too. Just remember to sleep, rest, walk and breathe and don't overdo. Your body will tell you when you have done too much at one time. It does take time. Hugs are coming your way!
 
Sorry for the late response, but so glad that you are now on your way to recovery and the 'bumpy ride' is behind you. I hope you are starting to get a bit of a better sleep.
 
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