Home Testing Options

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.

JCC

Member
Joined
Apr 14, 2012
Messages
9
Location
Tucson Arizona
Hello,

I have been doing home testing for the last 6 months. My employer switched insurance providers and now the home testing service is too expensive. I currently go through the company "Patient Home Monitoring". I am now looking into "Phillips" as they are the preferred service for my new insurance (United Health Care). I am wondering if there is a way to do home monitoring without using one of these services. Can I just buy my own machine and strips and manage my Coumadin on my own? My Cardiologist says I have to use a third party service in order to do home testing. I am just trying to find out how others do home monitoring, if everyone is forced to use a third party home monitoring company. Any info is greatly appreciated.

Thank You

Jeremy
 
Hi
Well, not forced. In preference in my case.

Personally I use a coaguchek by Roche. It seems quite reliable. Seek out the thread recently about 15second rule here for info and data about testing technique issues with that device.

If you are on a dose currently and you have no experience in dosing yourself then I suggest you do that in conjunction with your doctor.

As I have a history to follow (both INR and dose) which I documented it seems straight forward to me to continue tweaking this and monitoring my INR. Essentially I know my therapeutic range and keep within that.

I know there is a lag time between dose and effect on the INR so I factor that in with my dose, I spreadsheet it and thus can track on a graph my history and the dose.

Don't try to steer it too close and you will do fine. If you attempt to micro manage it you will have an INR graph that looks like a sine wave.

Sure its never going to be smooth but as long as the amplitude (the difference between top and bottom) is not too much then all is good.
:)

PS: this may be helpful
http://www.aafplearninglink.org/Res...rfarin Dose Adjustment Algorithm-04-18-11.pdf
 
Hi Pellicle,

I also use the Coaguchek. So do you have to test weekly and submit the results to a third party who then reports your number to your Doctor? That is currently what I do.
 
I do my own testing. I own the meter. I buy the supplies. Although I recently 'got' an Anticoagulation Clinic, I don't really trust their protocols --- they are happy with monthly testing (I'm not), and if my INR is low, they want me to increase my dose just ONCE during the week. As most of us know, with the lag time between dosing and effect, an increased dose on Monday will NOT have any effect on Saturday or Sunday.

I've read about how expensive Philips and Alere are -- and what they're doing is basically just reporting your test results to a doctor or clinic. You can do that yourself.

Personally, I've been self-testing for more than three years. I've maintained a spreadsheet for each test - results, dosage, any changes in diet, activity or medications or anything else that may be at all significant - I've recorded which meter was used (I now have more than one), time and date. This is for my own records and to prove to any doctor prescribing the Warfarin for me that I know what I'm doing. It's good to have an occasional lab test to see how close your meter is to lab results.

I got most of my meters on eBay - and, unless one was sold as an 'as is' meter, all seem to have worked fine.

I don't go crazy with dosing changes. I use the dosing protocols that you can find on this forum - and you can also find such protocols elsewhere.

As an uninsured valver, I've had to make do with self-testing and dosing management. (In the spirit of full disclosure, I have to say that I had a TIA in April--my fault -- because I didn't realize at the time that my meter was actually reporting HIGHER than actual values and I let my INR drop below 2 for too long. I don't ever plan to make that mistake again).

So -- if your copays are too high or don't cover testing, you should consider getting your own meter and supplies. Keep a record of every test so you know your dosing and INR history - have occasional blood draws to verify your meter's accuracy - get a good dosage management chart - and get a doctor who is comfortable enough to either manage your dose or trust you enough (based on your spreadsheet showing that you know how to manage your INR) to write your warfarin prescriptions. (FWIW - for a short time, I was getting my warfarin from a pharmacy in India - when I got a doctor who would prescribe my warfarin, I was able to get generic locally for less than the Indian warfarin cost).

Conclusion: You SHOULD be able to get your own meter (one that you own) and supplies. In most cases, you should also be able to manage your dosing (if not, many on this forum can probably help point you in the correct direction). If you can convince your doctor that you are able to manage your dosage, you should be able to get her support and prescriptions for Warfarin.
 
So do you have to test weekly and submit the results to a third party who then reports your number to your Doctor? That is currently what I do.

Nearly

What I was doing was getting veinus samples taken at a clinic / collection center. They would send that to a "warfarin dosing center who "managed" my dose. I did that for about a year when I got tired of their beaucracy and varying levels of skill driving a needle into me. Now I just fully dose and measure. My doctor isn't really personally involved.

As long as I keep within the therapeutic range I reckon I'm fine
 
As most of us know, with the lag time between dosing and effect, an increased dose on Monday will NOT have any effect on Saturday or Sunday.

Correction PTN:
It takes 3 to 4 days ("lag time") for ones dosage correction to take effect, therefore if an adjustment in dosage was made on a Monday the effect WILL be notice by Friday or Saturday.
 
Yes -- but SATURDAY is Five days -- and if the stupid lab wants a retest on the following Monday, the dose from a week earlier won't show up. Plus, if I understand correctly, the response tapers off, so the response to a Monday increase will be greatest on Thursday or Friday and taper off later.

The idea of giving a ONE time increase each week in order to change the overall INR doesn't make a lot of sense. Although protocols talk about 'weekly' doses, the apparent reality is that it makes a lot more sense to do a smaller increase a few times during the week than it does to make a one time change and expect it to carry through the week. (Carrying the one time increase to its ridiculous end - I take 52 mg a week -- if I was to take 46 mg on Sunday and 1 mg all the other days, I would be getting my correct weekly dose, but the result could be fatal. A one time increase, though somewhat less ridiculous, is still not the best way, in my mind, to increase the weekly dose).
 
This is what we've been doing for years.
We test on Monday morning, tweak the dose if necessary, tally up the total weekly dose Sunday night, test on Monday morning. We have one meter that we trust completely. A change in INR will register on Thursday. The upcoming weekly dose is always based on the previous week's total dose.
We prefer the KISS principle--you know Keep it Simple Stupid
I've managed my spouse's INR for 4 years. During that time he was out if range once. Range 2-3 and the test was 1.9. No bleeds, no TIA's.
Mine is managed by a hospital because I'm a member of a study about the safety and efficacy of home monitoring.
 
Right.

Overreacting and over adjusting, and making changes too frequently can create problems. (It certainly helps if you have a meter that you can completely trust....I'm still not sure about my InRatio, although I'm inclined to trust my ProTime, with 5 channel strips, even more. The problem with the ProTime is that it really isn't as easy to run a test, results take longer, more blood is needed, and the cuvettes are more expensive).

If my INR suggests that the dose should be adjusted slightly, I try to make the change as slight changes during the week, rather than one somewhat larger change once a week. Warfarin is available in so many different dosages that, when you figure that it's easy to break the in half, you can create just about any desired weekly dosage in increments of .5 or 1 mg - and taking an 'adjusting' dose two or three times a week can keep your INR more steady than a once weekly spike.
 
Can I just buy my own machine and strips and manage my Coumadin on my own? My Cardiologist says I have to use a third party service in order to do home testing. I am just trying to find out how others do home monitoring, if everyone is forced to use a third party home monitoring company. Any info is greatly appreciated.


Hello JCC,

This thread seems to have deviated quite a bit from your initial question, but I'll offer an answer on how I am dealing with the home INR testing.

If you want the costs associated with the home testing to be covered by your health insurance, then I think you are indeed forced to use the 3rd party service, who then bills the health insurance company. I currently go through Philips, and they charge $280.00 per month. Blue Cross has a max allowable charge negotiated with them of "only" $173.43/month. So, until I hit my plan's deductible, I am paying the $173.43 each month. Your particular insurance plan may have a different negotiated rate. This will easily bust my max deductible for the year (12 x $173.43 = $2,048.16/year). I don't know about you, but this seems outrageous to me for the minimal service of supplying the test strips and passing along my weekly INR phoned-in value to my doctor. They maintain ownership of the meter - it is "on loan" to you. There is some benefit to their in-home test training, so it is probably a good idea to start out with one of these services until you are more experienced with home-testing. You said that you have already been home testing for 6 months, so you should already be fairly experienced.

How you deal with it long-term depends in large part on how flexible your doctor is. Ultimately, the doctor who prescribes your warfarin is responsible for seeing that you are managing your INR properly. I'm sure there are medical liability issues involved. He/she needs to be on board for whatever test strategy you work out.

The doctor I am using is very flexible, and he has indicated that he doesn't care if I go through the Philips service or not, just as long as he gets the data.

I have been home testing through Philips for about 16 months, and up till now I was OK with the high price Philips charged because I maxed out my deductible on the initial OHS and then some follow-on surgeries to address complications from the endocarditis that necessitated the valve replacement in the first place. So, for this past plan year I was going to pay my max deductible no matter what, and the incremental cost of the Philips insurance co-pay was not unreasonable. This will not be the case going forward, since hopefully all my surgeries are now behind me.

Several months ago, I purchased an Inratio-2 meter on Ebay, along with some test strips. Ignoring the meter initial cost, the test strips run about $5 each. So, I can test once a week for only 52 x $5 = $260/year instead of the roughly $2,048 going through Philips. Actually, my true costs are slightly less since once I bust my annual deductable I am only charged the co-pay. I have been making parallel tests each week on my Ebay purchased meter and my "official" Philips/Alere meter long enough to confirm that they generally agree to within about 0.1 in INR, and they also closely match the occasional lab test, so I know my "unofficial" meter is just fine.

My plan is to discontinue the official Philips/Alere service at the start of our new health plan year when my deductible resets, and continue weekly home testing using my own meter. I will go back to once a month (or even less frequent) lab draw but only use that as a monthly confirmation that my home meter is giving the same results as the lab. The lab charges a "retail" price of $51 for the INR blood test, but the insurance negotiated rate is only about $4. so I'm only responsible for the $4 until I hit my deductible limit, then over to a lesser co-pay amount. So, this ongoing monthly lab validation of my home test meter will only cost me 12 x $4 = $48/year.

This give me an out-of-pocket cost of $308/year to get the weekly home test plus a once-a-month meter validation check against the lab venous blood draw for a lot less money than continuing with only the "official" Philips home test service. By going this route, only the lab test costs ($48/year) are processed via my insurance, and my "unofficial" home test costs ($260/year) are outside the official insurance system.


I'm not advocating this approach for others, but just letting you know what I have elected to do for myself. My doctor is fine with this approach.


Also on the tangential issue that Protimenow and others have mentioned, my doctor is also a firm believer in taking the same exact dose of warfarin (or as close as possible) each day so that there is a uniformity of dose throughout the week. I break 1mg tablets in half and add 0.5 mg to my larger pills to get the daily dose uniform when necessary.

After hearing lots of horror stories about mis-managemant and uncooperative warfarin clinics, I consider myself fortunate to have an enlightened, competent and flexible doctor managing my ACT.
 
It depends how much the dose adjustment is. When the dose adjustment is say 3 mils it could be spread out over two or three days. Others would take all three on day 1. The objective is get in range.
 
Since my INR became stable, my clinic always adjusts once in a week, not over a series of days.

For example, I take 5 mg/day 5 days a week and on the other two 4 mg and my target range is 2-2.5. I was 3.1 last week. The first dose after the 3.1, I was told to drop the 5 mg to 2.5 mg; keep everything else the same. I was 2.6 seven days later.

What I don't like is they have the testing too far apart. Per Alere, my plan allows for weekly testing. For my 3.1, they wanted me to wait 2 1/2 weeks before retesting after being 0.6 points out. I was not comfortable with that and retested a week later.
 
Some of the meter makers suggest weekly testing. This, of course, sounds self-serving -- they sell more strips. But, in my experience, I feel a lot more confident that I am in range if I test weekly. Although, in the past, I went a LONG time untested--and somehow I didn't have any adverse effects that caused any long term issues -- now that I have a meter, I am committed to testing weekly.

I don't agree with the clinics that say monthly - or even testing every two months - is appropriate. If something happens to the INR on week 3 (and things CAN happen to change the INR), how would a person know it.

For those who are self-testing, be sure to keep a record of your results. I use a spreadsheet to record my tests, my dosage, date of test, meter used, and any comments about activity, diets, illnesses, OTRs, and other things that may impact my INR. This is not only for personal history, but is also a solid document that I can use to show my doctor that I'm serious about testing - and managing - my INR. If your doctor manages your dosing, so much the better (as long as she knows what she is doing), but keeping a record is a useful exercise and may be of some value in the future.
 
I bought my Inratio 2 new through eBay also. I buy the strips in the 48ct boxes. I tried to go through my insurance co. but I was told I live too close to the clinic.
When I went to see with my doctor about this, I heard the clinic nurse talking with the doctor outside the door, and she wasn't trusting of me to be able to do this. When I visited with my doctor, I told him I had a vested interest in the testing, and he agreed. He also told me to just let him know what I wanted as far as warfarin dosages, and he would prescribe them. The clinic wants results every 4-6 weeks, but I test weekly. Actually, I am late in getting them any numbers.
 
Newmitral's post mirrored my experience with Philips. With a $3000 annual co-pay, and them charging me $248 per month, no way in heck was I staying with their service once Phillips bought out the predecessor.
My doctor was fine with me calling his coag nurse directly - I did that when I was with philips anyway, as I could leave a message - call me back I have questions, or no questions, don't bother calling.
Now my doctor lets me self manage, because I keep good records and call when I have a problem staying in range (unless, like last week, it's identifiable, like having a tummy flu! I hit 5.0 because I wasn't eating!) I tend to go through a seasonal shift each summer. It's rather strange, and I see my cardio every 6 months anyway and take my records.
 
For me, it is not the lab for me to retest, it the cardio nurse and she can be a bit trying at times. I will begin talking to the insurance company about getting a home monitor, i use a glucose monitor for diabetes, so not too much in diference.
 
Actually, it's useful to test with the meter at the same time that you have a lab test.

A few months ago, i noticed a fairly consistent difference between some rather frequent blood draws and my meter's results and I asked Alere about what to trust -- in their words: "Trust the Lab" When it comes down to accuracy -- apparently -- the lab's results are the gold standard, even though not all labs will give you the same results even with blood drawn a few minutes apart. I would trust a hospital lab more than I trust a lab that has to pick up the blood from a doctor or clinic in order to test it because there are less controls on how the blood is handled once it's drawn.

I usually self-test at the same time as a blood draw, to give me an idea of how the two compare.

In my case, I usually expect my InRatio to be slightly higher than the labs. I expect the lab to be pretty close to accurate. And I expect that my Protime meter with 5 channel strips to be pretty close to the lab.

So -- although you aren't testing the lab by using your meter, it's not unreasonable to expect that the lab will be closer to accurate than your meter, and the reason that you'e comparing you meter to the lab results is to get an idea about the accuracy of your meter.

For me, it is not the lab for me to retest, it the cardio nurse and she can be a bit trying at times. I will begin talking to the insurance company about getting a home monitor, i use a glucose monitor for diabetes, so not too much in diference.
 
Back
Top