Hi, I'm new here facing mitral valve repair

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
Hi Louanne & welcome to VR. I hope that in reading other's posts, your fears will be minimized & you gather as much information as you can prior to your procedure.

As others have mentioned, you are young & there's no reason why you shouldn't come out of this with flying colors! Hang in there & keep communicating!

Best wishes! :)
 
Hi Louanne,

I had mitral valve repair in February. The wait was much worse than the surgery. Keep us posted on your progress. Best wishes from Georgia!:)
 
I also had a mitral valve repair. To repeat what everyone has said, the wait is much worse than the surgery and the recovery!
 
I had my visit on Monday and gave it the go ahead to get it over with.Now I wait to hear from the Dr. whether the surgeon wants more test dne. He said they got a very good picture on echo so I may not need a TEE, which I would be thrilled about. BUT I may need an angio because of my age being on the line..I am thin and active so hopefully that helps....I'm hoping to go the last week of Oct. because my daughter will be away the week before and we are getting our last camping trip in Columbus day weekend...Just waiting for the phone call now......
 
Be sure and let us know so we can put you on the calendar- you know how we like to be full participants!
 
Good to hear from you.

Will Dr. Cary Akins be doing your surgery? Have you decided on Mass General?

Good luck with the rest of your tests. Hope they go smoothly.
 
Hi Louanne...and welcome. No advice but you are sure to get plenty from others on the site with more experience of VR.
 
Louanne:

Both my husband & I had TEE's and a heart cath pre-op. My TEE was on the OR table before they opened me up. My husband's TEE was done 2 months pre-op.

The TEE gives a much superior view of valvular damage/problems than an echo. The heart cath lets doctors assess any need for CABG.
 
Should I Wait To Have Surgery Done

Should I Wait To Have Surgery Done

I noticed Laurie said to not wait on valve replacement or repair surgery. My dr said mine is mild and it may be a month or ten years from now. I had wondered myself if it would be better to have it done now while I am in good health. What does eveyone think.
Bobbie
 
Hey Shawnee!
I said that in the instance of a poster who said she was looking at surgery within 12 months. That means her condition has already deteriorated considerably, and it sounds like she has passed the point of surgery being a "someday" thing.

I went from just fine to class IV CHF between April 12 (the date my valve likely gave way) and late July/early August when my symptoms became so severe I could not speak a full sentence without gasping. I can't help but wonder if my condition would be better today if my internist had listened to my cardiac concerns in early June, rather than ignoring me. I didn't get diagnosed for another 9 weeks (late August), and then only thanks to my persistence and a careful pulmonologist who took my continuing complaints seriously. My surgery was Sept 5, 2006, just 2 weeks after I first saw the cardiologist, and 3 days after the last tests were run to figure out the extent of my issues.

If your condition is very mild, you might never need surgery. But keep an eye on it, and see your cardio regularly so you will know if it DOES start to deteriorate, so you can go surgeon shopping and avoid an emergency surgery when you are very ill. From personal experience, surgery when you are run down and the heart is badly damaged is the PITS! But you have to wait until the risk of doing surgery is outweighed by the risk of NOT doing surgery. OHS is certainly nothing to take lightly.
 
Hi Louanne ~ Welcome to the VR family!! Sorry i'm late but i had computer problems and i'm trying to catch up on reading all the posts. I'm not able to help you, but i wanted to extend my best wishes to you. I hope you don't have to have a TEE. If you do, have no worries since they give you "happy juice" (IV amnesia sedative medicine) and i woke up in my bed later feeling just fine with no memory of anything after they told me they were giving me the medicine. Look forward to hearing how you're doing. Take care, Dawn-Marie
 
Jkm, It will be Dr. Akins at MGH as far as I know..I have been asking around and have heard good things about him. Thanks to everyone for the encouragement...
 
Louanne,

I'm sorry you have to go through this but seeing as you do, you cannot do better than MGH. My experience there for two OHS was outstanding. The nursing care in CICU and
step down unit is beyond excellent. Every nurse who cared for me, without exception, was everything you hope your nurse would be. (I still remember a number of their names.) The PA's, techs and all support staff (including the fellow who brought in my meals) were wonderful.


I am immensely grateful to everyone at MGH who took such good care of me.
The surgeons, of course, are IT but it is the nurses who get us well. IMO
 
Back
Top